Ongoing saga re Mum, housing & social care / Too many procedures!/ Extremely worried

@bowlingbun Yeah, it’s so hard. I hold alot of resentment towards people after my dad died. Dad was one of the purest humans I will ever meet and probably ever meet. I’m not saying it because he’s gone. Despite being a somewhat timid man to the observer, he was strong when it came to the family.

He should not have died, he only died because of a series of complications which weren’t carried out. Had he got a nebuliser, he might have been okay.

Had the nurses realised that dad had a heart attack faster, he may have been okay. It took nurses 7 minutes to get to him in a hospital.

I don’t think any therapy will ever get me out of that resentment. It’s not like I’m angry all day every day. But because of all that, all I can see is failures in the system everywhere. I feel the need to put pressure on people who take their time. To me failure to carry out things just puts people in worse situations. Being slow hurts and kills people.

The question should never be “why am I so angry that the hospital took 7 mins to get to dad.” As it so often is, like it’s my fault for not being allowed to be concerned. Why is no one asking why it took that long?

If I remember correctly, I remember my mum saying that that night there were a lot of drunks in who were screaming down halls and everything. I know it’s hospital policy to treat them first. Was someone wrestling with an alcy whilst dad has a heart attack?

Years later it still weighs on me. I was robbed of my dad. I will never see him again, and that hurts. I stepped foot off train the other day onto the platform, and I just mouthed “I’m here dad!” I know he’s not around, dad was into paranormal stuff, so he would have wanted to prove it’s real. I’ve had nothing in three and a half years. Yet still I said it. I say to mum he’s around because she believes it, but I do it to keep her happy.

Considering everything which has happened, more so the past couple of months everyone has just had enough. I’m burning out massively, yet there is no support for this. Support services do not want to know.

I’ve tried the carers people but they aren’t very good. Their advice is always targeted towards an older carer looking after their wife or husband. Nothing for a 27 year old nerd.

I feel so hurt because the past couple of months, I’ve been ripped in two. Trying to live a normal life whilst everything is happening is extremely hard. I’ve found myself questioning more than once if there is any good left in the world, and why I should bother trying to find it.

I’m not a bad person, but lately I’ve felt like all the good in me has gone. But at the same time I knew it wasn’t me, my trust in everything has gone. I always want to do the right thing. I like helping people. However seeing people like my mums mates exploit food banks so they have more money for alcohol just made me want to stop helping food banks out, because I thought what’s the point ‘this stuff is not going to someone who needs it.’ Why should I work hard to pay for this stuff when it’s not doing much.

I often get invited to events where I see schools and young children donate to food banks, before I was always happy they were doing this to help. Now I just think it’ll all get wasted anyway. Children have worked hard to all that and it gets exploited.

I didn’t mention it before, but there was a moment on the train coming home which made me think a little differently for a brief period. It was one of those moments I’ve thought a lot about since.

I was heading home on the Liverpool to Leeds train, it cut through Manchester. A guy about my age got on. A couple of mins into the journey and came and sat next to me, he said he was worried and asked if my seat had a charger socket as he needed to charge his phone for his tickets and to get home from the station. We couldn’t find one. But I had my portable charger with me, and I said he could plug his phone in. He sat with me and we chatted for a good hour.

He was quite cute, but he said he was in a relationship with a man and was due to get married. Oh well. I didn’t ask, he just mentioned this. Haha. He was so thankful for me helping him. I did it because it was the right thing to do. I would be panicked too if I was in the same situation.

As we were approaching Manchester, he said about how nice it was just to have that moment with a total stranger and how he’s not had that sort of interaction with someone in a very long time even his friends.

It wasn’t an ego thing. If just felt like a light at the end of the tunnel, I helped someone even though it was small, and they appreciated it. It probably helped that he was cute too. Again this is odd because I haven’t really been bothered about any of that other stuff for a while.

On the Leeds to my home town train, I was deliberately pushed into a crowd by a drunk person even though I asked her to stop trying as the train was packed. So that was the badness in the world showing its colours.

And everyone wonders why I hate alcohol so much.

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I just spoke to mum. She’s still acting like I’m the bad person because I spent 10 minutes with my sister and didn’t tell her.

When I spoke to her she said she’s fed up of being taken for an idiot. No one is taking her for an idiot. I went to the sodding supermarket.

I’ve spoken to the housing people. They said the property is now ready to let, they have the keys. There are no works.

All they have to do now is wait for bidding to close in three hours.

They will then do sheltered accommodation checks, then affordability. They will contact us about this but there will be no pre tenancy interview.

From there they will contact mum for a viewing and she can sign up there and then. She can then start to move in and prepare. They just have to wait for the contractors to switch electric and gas on.

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Brilliant news. Fingers and toes crossed for you!

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Coolcar, that’s great news.

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Everything crossed for you and for your mother. x

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All may not be so great.

Bidding closed. Mum came first. However when you look at the bidding numbers, it says 0 people bid on that property.

Last time it happened they offered it as a direct let to someone and they pulled it, but it still came up at the end. I’ve asked time and time again if they will offer mum a direct let.

I don’t understand, when I called them earlier they didn’t mention the property being allocated under direct let. They said they had the keys ready and waiting, I don’t understand.

We all had our hopes up on this place. Mum has band A everything. Why is there always another layer.

I’ve enquired about it a couple of times such as I asked about if it was ready to let and today I asked about the procedure. Not once did anyone say it was pulled.

I don’t know how to tell mum if it was offered as direct let. We thought that considering she was so high on the list it was a given. We’re already very down trodden by everything, Hull City Council push us down even further.

I will have to call them in the morning.

I just cannot take the disappointment anymore.

First bungalow, still under major works.

Then they messed around with allocating a Band A.

Now it’s due to direct lets.

Back into the effing system we go. Ffs

I’m absolutely effing stressed now and so uncomfortable. Whilst nothing has happened technically today, I’m too out of mu comfort zone to feel normal.

I didn’t mention my car failed a Pre not quite badly last week and I have been trying to get a new one. I finally got the new one today. The trouble is there was a major incident in the city which caused major gridlock everywhere. The first five minutes in that car caused me to panic. Then I had to go and pick up my sister. Got caught in it all. Complete standstill. Only just got home. I collected the car at 4:30. I’m so stressed and feeling out of it, plus the fact that I have new surroundings. I don’t like any of it.

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I can’t believe there were no expressions of interest - it could be that the system hasn’t been updated properly or the offer in progress refers to your Mum after all they said:

Sounds a stressful commute.

Possibly.

It’s likely there were very few expressions of interest. It’s quite common for bungalows to be more high demand than a supported place in the area. I’ve seen similar cross the city in recent weeks (too far for mum) but it’s not uncommon for there to be less than 10 people applying.

A 2 bed apartment for over 55’s had 16 offers this week. Two -three bedroomed houses usually have hundreds. Bungalows are often in the 80 to early 110’s.

I’m just hoping they got the system wrong or it glitched or something. When I spoke to them earlier they were trying to find out about the property If it was ready to let and they said it had the keys. They would have known if it was under offer they would have checked.

I get why direct lets exist, but I don’t think it’s fair that they trump those high on the list who have been for a very long time. Once it’s advertised- it shouldn’t be taken away. Mum could get a direct let-there is a three month wait on Band A. They say it never really goes that far. Band A’s here are rare because they rely on two priorities.

One priority is an Upper Band B.

Like I say they have done it before where they pulled a property we bid on. However, I do know the system is temperamental apparently.

Right now. I feel totally depressed. I know I’m still going, but I kind of have to. It’s like I don’t have any desire to harm myself in any shape or form. Maybe not feeling hungry is an issue, but that could also be due to the weather.

So many little things have happened, and I feel so lonely and without much support. It’s kind of just me. I feel like I’m going through the motions and feel unfazed when something bad happens.

I tend to have the “just hop on” kind of attitude, not the big “right legs sort it” attitude. Things just become another 10 ton weight that you can’t offload.

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It’s a very stressful situation for you to be in, even without your mum’s recent behaviour. I hope when this situation is finally resolved you can take a complete break from dealing with things for a while, avoid stress.

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I feel like I’m melting away and I cannot see the light at the end of the tunnel. I’m fed up of everything

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You are very nearly at the end of the tunnel now, so just be patient (I know, patience is a virtue I don’t possess much of either!). But you must be very nearly there now. Mum is now graded at A now. Feel proud that you have got her this far. Try to distract yourself from mum’s housing issue tonight think of your next Escape Plan, snuggle down and allow yourself happy thoughts tonight.

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I know it sounds entitled, but I’m not sure it’s about being patient although I get what you mean. Generally, I’m very patient, but when it comes to anything relating to mum and her care, no one ever seems to do good enough.

It’s just another round of unnecessary disappointment. How do I tell mum she’s at the top of the list but it’s not quite good enough. Imagine waiting in a queue and everytime you get to the front, there’s always someone who cuts in front. I hate it.

The waiting list for mums homeless application was weeks despite mum already being on the housing list with a priority bidding anyway.

The first bungalow is still under major works. They said week before last it will take at least a month to sort it. She hasn’t even viewed it, so could take two months if she moved in here. No they never mentioned this on the bid.

Then there is the issue with the case worker refusing to listen or accept evidence in black and white and give mum the Banding needed. Two days after bids closed and there was a perfect property she was awarded the Band A.

Now it looks like yet another disappointment. It’s upsetting, every week you think you are getting somewhere and then they just have to go and do something.

Even extra care have a policy where they suggest when someone is in desperate need such as homelessness they will act. They aren’t anywhere to be seen despite trying.

The council just aren’t even following their own policies.

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Have you spoken to a councillor about this?

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Two things have happened.

First mum has actually been offered a property with the council, finally. They just have to do some checks, but they came back fine last time.

Second just had a viewing for another place. My god it was awful. It’s not a good sign when the first thing it says on the door mentions bed bugs and communal areas being closed.
Who have they let into this place?

We drove by and there were three people sat outside drinking. It was 10:30am.

It’s dated as heck. Not expecting modern luxury, but this is not nice.

The place is nearly £800 a month. You’d expect better. (I’m in the north)

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What did you and mum think of the first place?

We believe the council property should be fine. Mum said she has been in there before. They also do extra checks for people to get in.

This property today on the other hand was not great. Mum didn’t really like it. There was an odd smell of must, and the communal areas looked as plain as anything. It was basically a grey room with a couple of chairs and a pool table. The place looked like it hadn’t been painted in a long long time. Makes you wonder where the service charge is going.

The men with the tattoos on their faces and alcohol in their hands at 10:30am put her off the most. I agree with her when she says she’s worried about it. It wasn’t so much the flat, but the bed bugs and the alcoholics.

She was open minded about the area and trying to accept it, but I think she has defo being put off now.

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Got the phone call today to offer mum a viewing tomorrow. Have to take the day off work at short notice.

However, they have said that we cannot sign up on the day, as the Occupational Therapists need to assess the property, alongside the sheltered housing people. Both are going to be there tomorrow.

I’ve already explained to them that a bath lift would suffice. An OT told me it would take days to install.

I’m fed up of these silly processes now.

  • No fault section 21 due to sale of the property (should be illegal. Its funny how they stopped all this happening in Covid- why not do it again?

  • 7 week wait to get a case worker.

  • Offered 1st property. OT did assessment without attending- said mum could have bath lift. Told under major works due to rats in the property. No alternative offer- advised to go back in the system.

  • 2 week wait to get a case worker allocated. Turns out to be an idiot and doesn’t accept plain fact. Complaint made but forced to withdraw.

  • New case worker allocated. (Only good thing they have done). They are pretty decent, awarded Band A straight away.

  • A week later the perfect property comes up. Bid, bidding close (5pm last monday 6) and came first. The same week got the call that the previous bungalow was ready. Said we would prefer new bid. New bid offered.

  • Said they would complete ASB and sheltered checks- both came back fine. Offered a financial assessment this morning (Monday 13). Completed check completely fine and mum has been greenlighted.

  • Just got the call that mum and I can go and visit the property tomorrow, but we aren’t allowed to sign up there and then. Told that the OT’s now need to do additional checks at the property tomorrow. The sheltered team also need to see if the level of support offered is right for my mum.

  • Spoke to the OT previously and they said they will go off what mum says. They also may need to check the property can be adapted.
    -Sheltered team-unknown, although mum can live fairly independently.

  • Only when these checks are completed and come back fine mum sign up. They will arrange a sign up offer for the keys. If not suitable- back into the system she goes to start again.

  • Then will take another week to get the gas and electric on.

The section 21 ends on Thursday.

The case worker called me earlier and asked me what is happening. They are trying to get it extended.
If not will go to courts where mum will be forced to pay. She cannot afford it- Carers take everything!!

Asked if could put her up in the meantime. I LIVE IN A ROOM IN A BEDSIT

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my mum had an Archimedes bath lift. no alterations required, although she could only walk with a zimmer.

Fuming isn’t the word right now.

Mum and I just went to the property, absolutely amazing property,recently done up, amazing spaces. By all means perfect.

The OT saw the property and within 10 seconds she said yes. It actually has everything mum needs despite allocations saying it didn’t.

The massive issue, anti-social behaviour. The building is rife of it with a select few individuals according to the sheltered team who went to today.

They now have to do some talks to see if mum would be okay for it, but looks like it’s a no.

They are now concerned because they think mum is in their words “way too vulnerable for this property due to the anti-social behaviour.”

I get their honesty, but it’s not on. Why is there anti-social behaviour in a facility designed for people over the age of 55 with disabilities and are vulnerable.

I cried when they said it and the person from the sheltered team, and tried to put their arm around me to console me. I nearly told them where to shove it, but I kept my cool. It was more tears than anything.

I told them how much impact this will have and they understood, but it doesn’t change anything.

They said they wanted to speak to us personally because they’ve put people in the facility who have become more vulnerable as a result and they felt remorse about doing it. ONCE AGAIN THIS IS A FACILITY DESIGNED FOR VULNERABLE OLDER PEOPLE.

The person tried to say to me that there were plenty of others similar in the area then proceeded to mention a place called Beverley Road and Pearson park. If anyone knows these two areas they are absolutely notorious for crime of the worst kind, much worse than drugs.

The area has become abit of a dumping ground for asylum seekers/foreign settlers and the amount of crime committed especially towards women is shocking. Sex crime, indecent exposure, I’m not going to say the next one but everyone will know. This has all been reported in the area recently. Then you have to think of the crimes that don’t get reported because lots of women don’t report sex crime.

Some of you may know that Beverley Road was the scene of a very shocking incident where a University Student was murdered as she was leaving a nightclub in the area. I was at the university at the time. The steps taken to protect us female students were extreme. Let’s just say, although it was a shock, there were many concerns about this previously.

The area is known for single foreign men and therefore without being racist, I do not believe it’s safe. I’m not saying that only these people can do this; I know it’s not the case. I’ve just seen enough of it.

Two things spring to mind.

  1. is mum going to be safe living there.
  2. are me and my sister going to be safe going there.

Even if they exist, you’ve got the added issue of places coming available, it doesn’t guarantee they will.

There’s always going to be anti-social behaviour everywhere you go, and that’s caused by lack of policing and the corrupt Tory government. Should we not house vulnerable people anymore?

So now we’ve been left unknowing what to do. They said they would go back and discuss it but wouldn’t give us any length of time. I pushed them for answers, but nothing they couldn’t tell me. They refused to tell me what the behaviour entailed only that it was a police issue.

AS a journalist, you learn ‘authority speak’ and get used to people working their way around things without saying what it is. All the while they say exactly what it is. Such as last time they said the previous property was due to ‘pests.’ Obviously rats.

This time It has to be drugs.

They won’t tell me anything. We’re stuck in limbo.
This is the second property they’ve peed about with now. WTAF is going on!

I’ve called the case worker and they are absolutely baffled too.

Ironic isn’t it, there’s an entire generation of people under the age of 30 so desperate to get a house rented/ bought or otherwise. Many of us work full time and still can’t afford it. We’re so house proud, I love my little space I do have and have done it up, And yet houses are being destroyed, places are becoming unliveable, all because of a select few people.

The section 21 ends on Thursday.

CHUCK THESE PEOPLE IN TENTS THAT WHAT I SAY.