I’m new on this forum. Looking for advice

Morning everyone. James here.

New to this forum and looking for some advice.

I’ve been caring for both my parents for nearly 25 years. Started when I was 15 and I’m now nearing 39. The level of care has been fairly low up until these past few years due to them needing more help.

My father has several ailments; heart disease, diabetes, COPD, rheumatoid arthritis

My mother suffered a benign brain tumour which the result of is now brain damage, epilepsy, memory and mobility issues

Both of them are relatively independent in terms of toilet needs, dressing etc but this is now starting to become more an issue

My father mainly cares for my mother with her needs as he’s more capable than she is and we established that she’s not safe to be on her own.

I live at home with them both and help with all needs when I’m not at work. I work locally and do a typical 40hr week.

This is my dilemma…

Sadly my father has had 2 hospital visits this year so far and is currently in hospital once again. I’ve been off work to look after my mother each time but now, understandably, work is getting agitated with the length of time off. I don’t particularly want to lose or leave my job.

I’ve briefly looked into home care or respite care for my mum so I can get back to work but curious on what your views are.

Mum is a homebird and with her brain injury, routine and familiar surroundings are quite important but I am concerned about cost etc

Sorry, I’m waffling on a bit now

Any advice/help would be greatly appreciated

Many thanks

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First, look up “disabled by association” and “constructive dismissal”. Talk to ACAS about your rights.

You are a brilliant son who has given up so much to care for your parents, but you have a right to a life away from caring.
Lets start first with money. Are both your parents receiving all the disability benefits they are entitled to?
Do your parents own or rent their home? Presumably you live with them full time?
Do you have Power of Attorney for both of them?
Do they have over £46,000 in savings, or £23,000 for mum or dad, individually. Just Yes/No, it’s the limit set for subsidised council care.
I’ll be back later, grounded by a poorly ankle!

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@JHobbs87 welcome to the forum. do you live England, Scotland ,wales the rules for care limits and care systems are different depending where you live.the nation.

Carersuk have an adviceline open mon -Fri 9am -6pm phone number 0808 808 7777. you could give them a ring and chat with them. Also tell them the benefits your mum and dad get so they can check they are getting all the benefits they should be. If they are not ask them to help you apply for them for your mum and dad.

Also there is your local citizens advice bureau they also know a lot about benefits and care .lots of things you could give them a ring type citizens advice bureau into google the area you live and there phone number will come up.

Depending on income and savings (but not including your home you live in ) this is for England ,but that is just for home care.

Over £23,500 in savings and assets they are classed as self funder and have to pay for their own care.

Between £14,250-£23,500 have to pay a contribution.

Below £14,250 there capital is disregarded and may pay contribution from there income but depends.

But all these depend on which nation you live in they all have there own care systems .the above I’ve wrote is for England.

Your mum and dad would each have a care needs assessment and a financial assessment to see what help they needed and how much they could afford to pay. You would also have a carers assessment caring for them.

Also with your dad being in hospital I obviously don’t know how he is . But if people in hospital are discharged and need help ,they can get reablement care for 6 weeks which is free from the date they come out of hospital to help them as they recover. You need to ask to speak to the care co ordinator at the hospital where you dad is. They organise discharge and would be able to arrange this before he came home if he needs help.

I hope this helps. I would ring one of the numbers above and speak to them or even both if you want.

Ask any questions you want to hear also.

This is just something I was once told. If your mum and dad end up having to much in savings and income .and are told they are self funder the age uk do homecare I was once told and they may be cheaper than using the agencies the council use if they were classed as a self funder. Depending on capital , etc.

Also I was once told sometimes when there is 2 people from the same house and they both need care and help depending what .they could have one call of however much time you think it would take and the call be for both of them .

The Ageuk national phone line is 0800 678 1602. they would give you advice and the phone number for your local ageuk .

Lastly do you get carers allowance for looking after your mum and dad. Or your dad get carers allowance for looking after mum. You need to ask about and look into that aswell with the numbers above ok. If you don’t make a claim . There is criteria you could only claim carers allowance for mum or dad.even though you care for both of them you can only claim it for one. If dad cares for mum he may be able to claim for her.but you will have to ask about these as there are criteria based on income thresholds, benefits and if they overlap ,and care hour limits have to care for 35 hours a week. Tell the places above everything carersuk ,or citizen advice bureau whichever they deal with these sorts of things everyday.

I hope that you are ok, have a nice day and take care.

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Hi and welcome to this lovely forum. You will certainly get lots of useful advice and support on here. I am not an expert, but can offer my experience. I worked as a teacher and went part time in 2018 when my dad was diagnosed with Alzheimer’s, mainly because my mum wouldn’t look after him.
Carers were put in place for him until he couldn’t be managed at home and went into a care home until the end. Mum has mental health as opposed to physical health issues, and again, carers helped me support her until that became unmanageable too and she is now also in a Care Home.
My circumstances were slightly different to yours because I didn’t live with my parents, but I would echo @bowlingbun above; you absolutely need Power of Attorney if possible so you can make best interest decisions on your parents behalfs. Also they should qualify for Attendance Allowance. I got that in place for both my parents and it helped towards the carers costs.
Your employer should be more understanding of your caring role, so make sure you are registered with them as a carer and also with your GP. This will (should) give you a certain level of protection. Sending you strength. :people_hugging:

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Thank you. Really appreciate the kind words and advice.

Yes, I believe both my parents are receiving all the benefits they are entitled to. They both claim PIP and my father also claims DLA (Higher rate). As I understand, due to both of them on PIP, they can’t claim Attendance Allowance?

My parents own their home.

Yes, I live with them full time.

I don’t have POA currently but in the process of talking to solicitors to hopefully get this in place.

I’m not privy to their financial circumstances at this moment. So unsure on Savings.

Wishing you a speedy recovery with the ankle :folded_hands:t2:

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Thank you for all this information, kind words and support. It’s greatly appreciated

We live in England. Cambridgeshire to be precise.

I’m not currently privy to my parents financial circumstances but I’m in the process of getting Power of Attorney which in turn, will help get more clarification on this

Sadly my father can’t claim carers allowance due to being on PIP and I can’t claim due to my earnings being too much

I suffer with depression and anxiety and lately, it’s had a slight hold over me but I’m powering through.

Hope you’re safe and well also

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Thank you. Really do appreciate the kind words, support and sharing your own experiences.

So sorry to hear about your parents health. Any health complaint is awful but Alzheimer’s or mental health issues are particularly cruel. The confusion, distress, misunderstandings they can cause. Much respect for all you did and continue to do :folded_hands:t2:

I believe due to both mum and dad already claiming PIP, they’re not eligible for Attendance Allowance sadly.

I’m currently in the process with solicitors to hopefully get POA arranged and sorted

To be fair, my employment have been very supportive and understanding over the years and in the recent, with both parents being hospitalised but I’m sensing a shift lately with their patience. I understand to a degree but to be honest, it’s another stress and pressure I could kindly do without. I suffer with depression/anxiety myself and obviously this whole situation isn’t helping

Hope you’re safe and well

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@JHobbs87 you could talk to ageuk about the POA and also look at there website on the subject if you haven’t started with solicitors yet.i think ageuk can help you with that ask them .it would be cheaper that solicitors find out the costs, and if dads in hospital the free reablement 6 week care package.

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I would suggest you have a serious conversation with dad about finances.
He is clearly very unwell, and what help he needs, and gets, depends on his finances. Currently mum needs care so you can keep your job, and the options available also depend on finances. He might, or might not, welcome the discussion, but your priority must be keeping your job.
So I’d start by explaining to dad about the pressure you are getting from your employer.
At least ask him to put all his financial information together in one place, ie a ring binder.
I had to sort out 10 years of paperwork when my brother was dying of pancreatic cancer in Uruguay, too ill to come home. Dreadful.