Hi all - pleased to have found this forum. I have a full time job and I also care for my wife who has Parkinson’s disease. She was diagnosed 11 years ago and mostly copes quite well.
Caring is a tough job and I sometimes find the emotional impact really draining. I’ve started counselling which is helping me understand that my underlying feelings of guilt/resentment/frustration are ok, and I actually need some respite.
I’m currently thinking about how that’s going to work and am interested to hear how other people have managed this.
Hi Kelvin, welcome to the forum.
Can I ask how old both of you are?
Have you had a Carers Assessment from Social Services?
Is your wife claiming PIP?
Hi Kelvin and welcome,
It sounds like life is full on, juggling work and caring and life’s demands.
Do you and your wife receive any support from social services? This is the best place to start re respite.
In an ideal world what would respite look like for you?
I have ‘short breaks’ which means S is cared for when I’m working etc and I have had friends move in when I have had operations/ been to a funeral etc but I would love some fabulous respite when I got a proper break. S has complex needs and I haven’t found a solution yet, but that doesn’t mean we won’t be able to help you.
Melly1