I agree, something must change.
My mum has been ill all my life, from menapause, thyroid, car accident inury that led to slipped discs and now copd copped with old age (70) although it feels like she gave up years ago.
I find there isn’t much info about carers being used and abused. It’s always stuff about the disabled person and their needs. We definetly need a carers exit act or something.
I cannot honestly answer the question about the holiday. Normally if I go anywhere i’m the baby sitter. I think it was about 2018 when i had a weekend away with an ex.
With my sister, she also has another son and we all work together to keep him safe as he has some issues too and is very vulnerable. The thing with my older nephew who is 12 is that I know it’s a genuine problem. She does provide him food, pocket money and does throw in some treats for me. I’m happy to help with genuine needs.
with mum though, i feel used. I know for a fact she is not taking meds that would actually help her but she always takes her other meds without fail. Like an inhaler for her nose drip, it’s a few quid over the counter and helps massively, but does she use it, nope. The meds to remove the rubbish on her chest she refuses to take because it brings too much up, even though that is what it is supposed to do. That I don’t wanna help with, that is her choice and it truely effects my quality of life to listen to the repeated farts, nose horns, coughing fits, heavy breathing and stomping.
with her now taking solitude in her room, it has made me feel like im always being listened too or i can’t escape.
I’m nearly finished with my cbt course for skin picking as my anxiety got so bad i was clawing at my own face. I was going days on end without sleep as she is always up until 3-5am listening to opera, x factor, music, horror, police shows with lots of sirens, bombs and screaming. I’ve taken up meditation but I am worried that I am starting to struggle with it since she decided to bedbound herself for no reason what so ever