Hi all, I’m looking for some comfort in similar experiences along with any support advice.
My story : I’ve had chromic migraine since 19, I’m now 30. I’ve not had one second of onc day headache free since I was 19, the only thing that changes is the severity of my headaches and of course the dreading high end migraine attacks that come 4/5 times per week.
2 years ago I had labyrinths that was misdiagnosed resulting in my ear nerves being damaged. As a result I now had tinnitus and vertigo constantly (not a good mixture with chronic migraine)… up until last year I was coping and it was not really affecting my mood.
However the last 12 months with the constant headaches, Vertigo and tinnitus it’s all getting a bit much. I can pin point the moment I could no longer cope. It was when I had an mri scan and the doctor called me back in the next day because they ‘found something’ - I waited 3 weeks for the results and thankfully it was nothing just a ‘birthmark’ on the brain. Something that is common and not to worry about.
As a result of having to wait 3 weeks for my results I developed server health anxiety and now have constant worry and stress that something bad is going to happen. It’s like a fuel to my headaches. I now feel like I’m stuck in a cycle and see no way out.
I’ve had Ajovy, Botox and the standard Triptans - none have worked.
Naturally it’s starting to affect my work, social interactions and time with my family
Can anyone share their experience of similar issues and anything they have done that helps?