Hi Im new here
I care for my husband who has non alcoholic cirrhosis of the liver, diabetes type 2, neuropathy and every so often gets HE encephalopathy which is really scary to see, my mum passed away in June last year, she lived in Essex and we live in Kent up until her death I was driving over to see her every weekend and get her shopping for her, up until September last year my husband was getting about on crutches when a day before we were due on holiday in September he had his first HE encephalopathy attack and was taken to hospital and has been in and out of hospital since then, spending all over Christmas in hospital, I was called in at 7.00am one morning and was told that Chris was very ill, they hadn’t been able to raise him in the morning, it was 50/50 whether he would survive but he did, it went on to be critical a further two times while he was in the hospital but came home in March, now totally bedbound and we have a hospital bed in the front room, we have double up carers in 4 times a day and they wash him etc in the morning hoist him in and out of the armchair got hoist taking up room in the front room as well, though sometimes he doesn’t feel well enough to get out of bed, he is constantly whining in pain which breaks my heart as apart from giving painkillers I feel helpless to be able to help him. I did buy him an overlay air mattress as he was told he didn’t qualify for one because he hasn’t got any pressure sores. I do all the meals and his medication. I am unwell myself and was very ill at the beginning of last year and I was diagnosed with incurable cancer, treatable but incurable was the words were said to me when I got the news. Im’ up and down all day and night with bottles and bedpans for Chris, I had to go to the hospital myself today for a blood test, nipped into Asda for a loaf of bread and when I came out there were 6 missed calls on my phone from Chris asking me how long I’d be cos he wanted a wee. I’ve got hospital appointment again tomorrow for me treatment which thankfully Im doing well on but Im 60 now and soooo exhausted, I retired from my job last November after being off sick for a year Im now 60 and feel I’ve been cheated out of a retirement, sorry to rant but just came on to introduce myself
Anita
) I wish there were something I could say other than I genuinely care for all that you have and are enduring; and of course WELCOME 