I am new to this site, but I have been reading all of it for the past 2 weeks I have learned a lot from all the information that you carers write . I don’t know if I’m classed as a carer or not, because I care for myself. I don’t normally join forums . I’m quiet. But as I’ve been reading all your posts I thought what lovely people .All here to help and listen and kind and caring. So I decided to join. The past 20 months have been living hell.but I’m coming through it slowly. Someone on this website wrote to read this website and to read the caretobedifferent website as power is knowledge, and they were right.
It upset me very much to read all the stories all these lovely people are going through just to get
Care for there loved ones . All I can say is disgraceful. the best advice I can say is read ,read the caretobedifferent website Care act 2014, read national framework for continued care and nursing care .dont believe anything a social worker tells you they lie. I know from experience. Not one of them has told me the truth. Whatever they tell you research it to make sure it is right,I doubt it will be.
Whatever the LA tell you research it. I’ve come to the conclusion that social workers are employed to save money. None of the ones I’ve met
Know there job or the law.Im so sorry you are all going through this it’s all wrong to me. People should come before money, but what I have learned these past 12 months is it’s all money and people don’t seem to matter.which to me is very sad.
I wish you all a lovely Evening .and whatever you are going through don’t give up.
I hope you are all having a nice day, my name is teddybear because I love them.lol. I’m sorry for all you are going through .i know life is not easy. Be kind to yourself .
@Teddybear , I’ve been a carer (until recently) for 30+yrs. I plus other people, know first hand the social worker shenanigans. As you said, profit before people. Your spot on with that phrase. This is why we are hacked off with these people because they are civil servants. They work for us. Personally someone should remind these people which side their bread is buttered. Also, it’s annoying that some social workers are abusing their authority. For most of us though, it’s proving it. Some a good at covering their tracks or using “the law” to protect themselves. It’s a sad reality.
@jjohnnyboy.hi I’ve read your messages on the site.the past two weeks and really feel for you. I don’t know if I’m classed as a carer .i care for myself. Council suspended my care well social worker did long story. I will write a message with all I went through for 20 months all I can say is living hell.i never knew people could lie so much.i went through hell in hospital there were 3 or 4 people who were kind to me stuck up for me . I came out a different person .i was quiet, never complained about anything.
@JohnnyBoy but then I came home and was put through it by social workers for five and a half months .i cried all the time trying to quote the law to them they would not listen to me.so I read everything to do with the care act 2014, continued health care, the caretobedifferent.co.uk website. They suspended my care which I know is against the law.lucky I could just about walk .i was glad to get rid off them. There was only 2 social workers . But I have reported them to the council in my complaint.. everything I was put through is all in to emails to the council which I sent to the. Quality care team .someone at the council said how I was being treated was wrong they gave me the email address . I rung CAB told them they wrote a letter to . I sent it all off the lady from quality care team acknowledged my email. Apologised and said it all had gone to a manager to be investigated. If I did not agree with what came back then she said it will go to a senior manager ,then after that it will go to local government social care ombudsman. If I don’t agree with the council. But I will write to the ombusman anyway after even if the council sort it, because I think they need looking into for other people. I can prove what they have done to me because it’s all law based. I wrote all the laws in my emails and pointed out that there social workers don’t know the law. And I wrote all your phone calls are recorded so all the harassment, lies will all be recorded won’t they.lol.
The hospital well let’s just say they were just as bad, you would not believe you had to fight for yourself on an acute medical ward. Don’t get me wrong there were about 3 people who took care of me and tried to stick up for me. The consultant ignored me for three and a half months. Spoke to me once when I was admitted everything he said to me was wrong .i thought he had come to the wrong bed. The nurse was shaking her head .when he left I said why you shaking you head she said everything he’s just said to you is wrong.then consultant walked past my bed went to everyone else and ignored me. I’ve no idea why. No one could figure out why I was in so much pain ,and I did not know till 5 months later till I came home. And the nurse practioner came read piece paper I was crying.he said you did not know did you. I said no. I had pneumonia and infections from being on my floor at home for two days I’ll someone found me. I’d broken 6 bones including my pelvis. I never slept one night the whole time I had been in hospital .i just cried in pain all day every day, and he did nothing. I was physically abused by two nurses against my will. There so may complaints.im writing it all up now most is done. PALS and the complaints team will investigated .they said when we investigated it will be sorted. I said it won’t.i said you do your investigation i will wait for the results. Then it will all go to the parliament of health ombudsman.i will see what they say if they say sue i will sue the hospital,the consultant i am reporting him to the GMC for professional misconduct. He knows I am cos I told the nice doctor to tell him and he said he had ,and he said to report him . Pals have got about 70 questions to ask the hospital.then when I get email from the council I’ll see what they say. But whatever they say the 2 social workers will be reported to Social work. all these people from the hospital and the council will never treat another person like this.its took a year to do these things because the strong painkillers I couldn’t think straight on them. So came off them.rather be in pain and be able to think. I’ve never complained about anything up to last year.i woke up one morning I was crying and district nurse came she said you have to fight anything you want you have to fight for.
So that is what I’m doing. I thankyou for your message. I hope you are doing ok.
You sound like me Johnny boy.lieing,bullying and controlling behaviour .i cannot deal with. I woke up one morning last April not that I’d slept with all the stress.the district nurse came took my blood pressure said it’s to high. I said well I’m not surprised with what I’m going through.she said tell me. I said no I don’t want all my business writing for everyone to read.she said no it’s just for me.so I told her everything she said you have to fight you get nothing if you don’t fight, and that is what I’ve been doing ever since,good job I like writing.lol.i waiting 6 weeks which you suppose to if I hear nothing I go up the ladder till someone listens to me.i was very quiet . Hospital changed me I had to fight in there or id have been walked all over and I was for few weeks. But at least coming out it made me stronger to deal with all this.
@Teddybear, mum is ok but she’s bedridden because of this virus doing the rounds. I was going to visit her yesterday but, I too have not fully recovered. Especially from my chest infection and possible stomach flu (so the lady at my local chemist told me). So for now, I’m staying away. It’s galling but necessary. Also, I’m intend to keep fighting. Stubbornness runs in our family. Especially true among a lot of the Irish community.
@Teddybear, mum is still bedridden because of this virus going around but, she is slowly recovering. I’ll call the care home later in the week. I’m still in poor shape, my chest infection isn’t easing up and my stomach is still bothering me. It’s difficult to eat without my stomach playing hell with me some time after eating a meal. As for looking after myself, I’m trying my best. For the moment, I’m trying to keep busy. For my ailments, I’m currently having some cough mixture to help with the mucus on chest and Pepto-Bismol of my stomach. I’ll see how things go, otherwise I’ll try to see my local doctor. Thank for your concerns.
@johnnyboy.nice to hear from you. Even though your mum is still bedridden when you ring tell her to move her legs a little bit in bed and move her feet and wiggle her toes to keep the circulation going in her legs being in bed all the time. I was bedridden from July 2024 to Feb 2025. And this what I used to do. When I’d had my accident the lovely healthcare who looked after me she had worked over 20 years on the stroke ward ,but then she moved to this new ward as she got older, and she told me to do the above.i had been doing it.she said even though you can’t walk. You cannot stand. You can still help you. She said it keep them working. I used to sit there all day wiggling my toes lol. I don’t know how your mum is with mobility but tell her to do this .i hope you don’t mind me saying.
I’m sorry about you not being well, your immune system probably abit low with all the stress and worry and your abit worn out. If you rest it should pick back up. Your tummy try eating things that are light .like soup , omelettes .things that are not hard for your tummy digest might help. If it don’t get better you could get to the see doctor. If you cannot get to see him ask if someone can ring you. Tell them that you’re taking that stuff. Hopefully things will improve.
@Teddybear , my former family doctor said that because I’m asthmatic (I was born with it apparently) I have a weakened immune system. So some various cold and flu viruses can absolutely floor me. Stress could also be another factor. But I can’t relax because I’m busy with dealing with incompetent social services, rude to the point of racist social worker and various authorities. So in short, I’m swamped under. That’s not including legal paperwork (Court of Protection papers).
@JohnnyBoy ring quality care team on your local council website or email. Say I would like another social worker. They will then give you a different one
HiJohnnyboyHi do you.mind me asking the charges for Court of Protection, i havnt got power of attorney and did think of applying for it but heard its very costly
@Jackie66, charges wise, it’s a bit dearer than LPA. With COP, it’s like LPA but you get also an appointed attorney to help carry out wish on behalf of you relative. Cost wise, it’s between £800 - £1000. Depending on circumstances. Try gov.uk/courtofprotection. They can guide you from there. Also try gov.uk/powerofattorney. It cheaper. I suggest research first before deciding.
@Jackie66 cheaper than I just found,I have just found with AI.thought I would look for Jackie.as you may have been busy it came up with £1,500- £3,000+ vat. .management fees for professional deputies are often around.£752 first year,& £650 annually therefore.
Additional conditions costs
Security bond - an insurance premium is usually required property & affairs. Deputies to protect the persons assets.
Medical report fees to obtain MCA.& disbursements third part costs such as electronic identity vertication checks (approx £25+vat)
Considerations help with fees exemptions or reductions are available if the person has low income or receives certain benefits.
The above is AI regenerated. It says more Johnny says but I don’t know if it depends on area and circumstances.gosh they know how to charge.dont know if it help
@Teddybear, that’s true. I forgot to say it does depend on circumstances. It’s best to contact the people involved over the phone. Then once you tell them your circumstances, they can advise what to do. Sorry for not saying so earlier. It slipped my mind.
@ you did say change of circumstances.it was me that missed it not you. I was just showing Jackie what AI said ,Aswell as you.they certainly know how to charge don’t they.
