I am new to this site, but I have been reading all of it for the past 2 weeks I have learned a lot from all the information that you carers write . I don’t know if I’m classed as a carer or not, because I care for myself. I don’t normally join forums . I’m quiet. But as I’ve been reading all your posts I thought what lovely people .All here to help and listen and kind and caring. So I decided to join. The past 20 months have been living hell.but I’m coming through it slowly. Someone on this website wrote to read this website and to read the caretobedifferent website as power is knowledge, and they were right.
It upset me very much to read all the stories all these lovely people are going through just to get
Care for there loved ones . All I can say is disgraceful. the best advice I can say is read ,read the caretobedifferent website Care act 2014, read national framework for continued care and nursing care .dont believe anything a social worker tells you they lie. I know from experience. Not one of them has told me the truth. Whatever they tell you research it to make sure it is right,I doubt it will be.
Whatever the LA tell you research it. I’ve come to the conclusion that social workers are employed to save money. None of the ones I’ve met
Know there job or the law.Im so sorry you are all going through this it’s all wrong to me. People should come before money, but what I have learned these past 12 months is it’s all money and people don’t seem to matter.which to me is very sad.
I wish you all a lovely Evening .and whatever you are going through don’t give up.
I hope you are all having a nice day, my name is teddybear because I love them.lol. I’m sorry for all you are going through .i know life is not easy. Be kind to yourself .
@Teddybear , I’ve been a carer (until recently) for 30+yrs. I plus other people, know first hand the social worker shenanigans. As you said, profit before people. Your spot on with that phrase. This is why we are hacked off with these people because they are civil servants. They work for us. Personally someone should remind these people which side their bread is buttered. Also, it’s annoying that some social workers are abusing their authority. For most of us though, it’s proving it. Some a good at covering their tracks or using “the law” to protect themselves. It’s a sad reality.
@jjohnnyboy.hi I’ve read your messages on the site.the past two weeks and really feel for you. I don’t know if I’m classed as a carer .i care for myself. Council suspended my care well social worker did long story. I will write a message with all I went through for 20 months all I can say is living hell.i never knew people could lie so much.i went through hell in hospital there were 3 or 4 people who were kind to me stuck up for me . I came out a different person .i was quiet, never complained about anything.
@JohnnyBoy but then I came home and was put through it by social workers for five and a half months .i cried all the time trying to quote the law to them they would not listen to me.so I read everything to do with the care act 2014, continued health care, the caretobedifferent.co.uk website. They suspended my care which I know is against the law.lucky I could just about walk .i was glad to get rid off them. There was only 2 social workers . But I have reported them to the council in my complaint.. everything I was put through is all in to emails to the council which I sent to the. Quality care team .someone at the council said how I was being treated was wrong they gave me the email address . I rung CAB told them they wrote a letter to . I sent it all off the lady from quality care team acknowledged my email. Apologised and said it all had gone to a manager to be investigated. If I did not agree with what came back then she said it will go to a senior manager ,then after that it will go to local government social care ombudsman. If I don’t agree with the council. But I will write to the ombusman anyway after even if the council sort it, because I think they need looking into for other people. I can prove what they have done to me because it’s all law based. I wrote all the laws in my emails and pointed out that there social workers don’t know the law. And I wrote all your phone calls are recorded so all the harassment, lies will all be recorded won’t they.lol.
The hospital well let’s just say they were just as bad, you would not believe you had to fight for yourself on an acute medical ward. Don’t get me wrong there were about 3 people who took care of me and tried to stick up for me. The consultant ignored me for three and a half months. Spoke to me once when I was admitted everything he said to me was wrong .i thought he had come to the wrong bed. The nurse was shaking her head .when he left I said why you shaking you head she said everything he’s just said to you is wrong.then consultant walked past my bed went to everyone else and ignored me. I’ve no idea why. No one could figure out why I was in so much pain ,and I did not know till 5 months later till I came home. And the nurse practioner came read piece paper I was crying.he said you did not know did you. I said no. I had pneumonia and infections from being on my floor at home for two days I’ll someone found me. I’d broken 6 bones including my pelvis. I never slept one night the whole time I had been in hospital .i just cried in pain all day every day, and he did nothing. I was physically abused by two nurses against my will. There so may complaints.im writing it all up now most is done. PALS and the complaints team will investigated .they said when we investigated it will be sorted. I said it won’t.i said you do your investigation i will wait for the results. Then it will all go to the parliament of health ombudsman.i will see what they say if they say sue i will sue the hospital,the consultant i am reporting him to the GMC for professional misconduct. He knows I am cos I told the nice doctor to tell him and he said he had ,and he said to report him . Pals have got about 70 questions to ask the hospital.then when I get email from the council I’ll see what they say. But whatever they say the 2 social workers will be reported to Social work. all these people from the hospital and the council will never treat another person like this.its took a year to do these things because the strong painkillers I couldn’t think straight on them. So came off them.rather be in pain and be able to think. I’ve never complained about anything up to last year.i woke up one morning I was crying and district nurse came she said you have to fight anything you want you have to fight for.
So that is what I’m doing. I thankyou for your message. I hope you are doing ok.
EGG,hello thankyou for your message. Very kind of you.the roll call thread I will have a look thankyou.i care for myself now long story. Read the message above I wrote to Johnny boy that will explain some.long story 35 years ago the NHS made me ill gave me the wrong medicine. Over those years I’ve got more ill. Doctors all closed ranks ,you know what it’s like. My mum passed away in 2024 which broke my heart and I’ll never get over it. Then in 2024 my neighbour used to get me shopping ,he got my shopping from Tesco. One Sunday teatime I went to empty the bin in the kitchen tidied the bin bag up lifted it out .half way across the kitchen the bag split rubbish came out .i went flieing across the floor fell here a crack. Couldn’t get up ,had to drag myself to the living room and prayed someone would come. Lay there 2 days I thought I was going to die. I could not get up.luckily my neighbour came because I’d asked him to get me something from shopping if he had not come that would been it. Paramedics came said very ill and had pneumonia, they said broken something but we don’t know. They took me to hospital , all what happened I’ve wrote above saves writing again. They discharged me from hospital in agony with pain was in agony all the time I was in there . Consultant was stopping people from helping me. And I was ill. Came home carers came they were lovely apart from a couple who tried it on .i could not cope no more after all what went on in the hospital .so I said do not come again to those two .they said why. I said don’t you dare ask me why. You know why. They never came back ,the others were lovely they took care of me , helped me. So kind to me. Then without right paragraphs. One social worker came didn’t do job properly.everything I said she ignored walked out. No one came near for 3 months another social worker rung .i even knew her and she treated me like this and I knew her. She rung everything asked she ignored. She rung up 3 days harassing me. I told her to stop .i said you can email stop phone calls. She suspended my care.which she was not allowed to do.thankgoodness I had started to walk just abit. The carers stop coming .to be honest it was relieve 29 people in my house to much for me.i felt had my house back. So since April last year took care of myself some days are better than others. District nurses lovely they come my injection every 3 months. They think it’s disgraceful. They said if you need us ring we will come. I just take my time. My neighbour is lovely he posts my letters for me and says if I need him to ring.but I don’t like to put on people.
PALS are investigating the hospital for lots of things. I will then report to the PHSO,
I’ve complained about everything to quality care team at the council and it’s gone to a manager.then I will send that to the LGHSO. Social workers reported to social works, and consultant to the GMC.
benefits to the independent complaint person .so I’ve been busy.lol.then when I’ve done my last thing is to report the NHS for destroying my life 35 years ago. I made a promise to my mum before she passed away that was 12 years ago. Now it’s time. You know when you wake up in the morning one day and you think enough is enough that’s what happened last year and since then I’ve been doing the above when have energy. The supermarket that nearly killed me , ignore me. Said I could not prove it was them . My neighbour found me, there 30 complaints about these bags on there website for over 2 years they kept selling them .and all my medical records . Couldn’t find a solicitor to help me .they said hard to prove. And then the supermarket take all these bags of there website and put a whole new range on there to replace them . And there is nothing I can do about them . So that is life.
I have read your message on the forum I will go back and refresh myself. How are you doing are things any better.
You sound like me Johnny boy.lieing,bullying and controlling behaviour .i cannot deal with. I woke up one morning last April not that I’d slept with all the stress.the district nurse came took my blood pressure said it’s to high. I said well I’m not surprised with what I’m going through.she said tell me. I said no I don’t want all my business writing for everyone to read.she said no it’s just for me.so I told her everything she said you have to fight you get nothing if you don’t fight, and that is what I’ve been doing ever since,good job I like writing.lol.i waiting 6 weeks which you suppose to if I hear nothing I go up the ladder till someone listens to me.i was very quiet . Hospital changed me I had to fight in there or id have been walked all over and I was for few weeks. But at least coming out it made me stronger to deal with all this.
@Teddybear, mum is ok but she’s bedridden because of this virus doing the rounds. I was going to visit her yesterday but, I too have not fully recovered. Especially from my chest infection and possible stomach flu (so the lady at my local chemist told me). So for now, I’m staying away. It’s galling but necessary. Also, I’m intend to keep fighting. Stubbornness runs in our family. Especially true among a lot of the Irish community.
@im sorry your mum is not to well, and I did not know that you were not very well either. That’s the trouble with care homes .one person gets something it goes round ,and then if your going visiting you pick it up.but there’s no choice. It’s not nice being bedridden I was for 8 months .i did not know if I would walk again ,and no one mentioned if I would it was like a taboo subject in hospital they all avoided it. Someone came when I came out of hospital but I was even more poorly a carer had come with a cold and I didn’t know so I ended up with that to. Wasn’t her fault at the time she did not know. When she came back later this was last year. She was full of cold. She said I didn’t know what to do. She said I did not want to come because I have this , but if I did not come you would have no one .i understood.the physio came .i said no not well and i wont be walking yet , my body will tell me when its ready and its not yet.they never came back lol. Then 3 months later i started to try walk couldn’t stand, couldn’t weight bare.but i kept trying to stand up and up. Pressing my feet on the floor.then gradually one step then increasing them . Now I can walk, inside kitchen, living room , summer room , .chronic pain in my back especially when i stand. But I can walk. My niece said its a miracle . I don’t know but I’m careful.
You could have got it with all this stress your under stress wears you down . You need to look after yourself to be able to help your mum.You have to fight you ,me all of us .we have no choice. One day you will have a break through.its just preserving .
You know I’m dreading getting old. If they can treat me like this when I’m not. What are they going to Be like when I am . It doesn’t bare thinking about.i never ever want social services in my life ever again, im sure id have had a breakdown if i had not wrote to the quality care team it was relentless they would not lay off. I know the pals want to know why he sent me home with inadequate care as they said my needs primary .i think the trouble is the hospital think the social services will do it after 6 weeks. Social workers you mention the words continued health care and I told them the hospital said they just ignored me. They Cancelled my care instead. lol luckily I could stand walk abit .i thought stuff you. But it’s got easier. I’ve never known messed up system. PALS said they want to know why.
I said get the consultant to sort it or one the doctors . As he ignored me for 3.5 months so won’t probably help. I said I’m not going near social services again I’ve been put through enough hell.so we see what they come back with.
Are you able to speak to mum .is there any staff there that are nice that will help her to ring you.cos your not well enough to go. So at least you can speak to her. Did the lady suggest anything for your tummy or you to help feel better,I hope so.
@Teddybear, mum is still bedridden because of this virus going around but, she is slowly recovering. I’ll call the care home later in the week. I’m still in poor shape, my chest infection isn’t easing up and my stomach is still bothering me. It’s difficult to eat without my stomach playing hell with me some time after eating a meal. As for looking after myself, I’m trying my best. For the moment, I’m trying to keep busy. For my ailments, I’m currently having some cough mixture to help with the mucus on chest and Pepto-Bismol of my stomach. I’ll see how things go, otherwise I’ll try to see my local doctor. Thank for your concerns.
@johnnyboy.nice to hear from you. Even though your mum is still bedridden when you ring tell her to move her legs a little bit in bed and move her feet and wiggle her toes to keep the circulation going in her legs being in bed all the time. I was bedridden from July 2024 to Feb 2025. And this what I used to do. When I’d had my accident the lovely healthcare who looked after me she had worked over 20 years on the stroke ward ,but then she moved to this new ward as she got older, and she told me to do the above.i had been doing it.she said even though you can’t walk. You cannot stand. You can still help you. She said it keep them working. I used to sit there all day wiggling my toes lol. I don’t know how your mum is with mobility but tell her to do this .i hope you don’t mind me saying.
I’m sorry about you not being well, your immune system probably abit low with all the stress and worry and your abit worn out. If you rest it should pick back up. Your tummy try eating things that are light .like soup , omelettes .things that are not hard for your tummy digest might help. If it don’t get better you could get to the see doctor. If you cannot get to see him ask if someone can ring you. Tell them that you’re taking that stuff. Hopefully things will improve.
@Teddybear , my former family doctor said that because I’m asthmatic (I was born with it apparently) I have a weakened immune system. So some various cold and flu viruses can absolutely floor me. Stress could also be another factor. But I can’t relax because I’m busy with dealing with incompetent social services, rude to the point of racist social worker and various authorities. So in short, I’m swamped under. That’s not including legal paperwork (Court of Protection papers).
@JohnnyBoy ring quality care team on your local council website or email. Say I would like another social worker. They will then give you a different one
HiJohnnyboyHi do you.mind me asking the charges for Court of Protection, i havnt got power of attorney and did think of applying for it but heard its very costly
@Jackie66, charges wise, it’s a bit dearer than LPA. With COP, it’s like LPA but you get also an appointed attorney to help carry out wish on behalf of you relative. Cost wise, it’s between £800 - £1000. Depending on circumstances. Try gov.uk/courtofprotection. They can guide you from there. Also try gov.uk/powerofattorney. It cheaper. I suggest research first before deciding.
@Jackie66 cheaper than I just found,I have just found with AI.thought I would look for Jackie.as you may have been busy it came up with £1,500- £3,000+ vat. .management fees for professional deputies are often around.£752 first year,& £650 annually therefore.
Additional conditions costs
Security bond - an insurance premium is usually required property & affairs. Deputies to protect the persons assets.
Medical report fees to obtain MCA.& disbursements third part costs such as electronic identity vertication checks (approx £25+vat)
Considerations help with fees exemptions or reductions are available if the person has low income or receives certain benefits.
The above is AI regenerated. It says more Johnny says but I don’t know if it depends on area and circumstances.gosh they know how to charge.dont know if it help
@Teddybear, that’s true. I forgot to say it does depend on circumstances. It’s best to contact the people involved over the phone. Then once you tell them your circumstances, they can advise what to do. Sorry for not saying so earlier. It slipped my mind.
@ you did say change of circumstances.it was me that missed it not you. I was just showing Jackie what AI said ,Aswell as you.they certainly know how to charge don’t they.
