Hi my partner had a double lung transplant last week, it’s wonderful and he’s doing really well, but the medication regimen is intense and we will have to make lifestyle changes, I’ve been caring for him while he was ill with lung disease, but this seems like more (although it’s his responsibility) and I’m hoping to talk to others who have experience.
Hi Brigid, I don’t think we have anyone else caring for a lung transplant patient here, by lots of experience of caring in general. It must have been incredibly stressful over the last few months, or years. Are you getting any outside help? He should be entitled to 6 weeks free post op care. Make sure he gets it.