Update From Gilli

Specific disabilities and conditions
1

Hi All,

Sorry I haven’t been around for so long. I thought it was time for an update on my 3 care-ees.

M, my youngest, is in supported living accommodation for people with learning difficulties and autism. He is no longer looking for work, but still plays basketball with the local Special Olympics basketball club. He comes to my house every day to walk the dog and feed and water the parrot.

A & J are still at home with me. A has social anxiety and is very self conscious about her hair, which is badly tatted and tangled and difficult to detangle. We’re very sure she has ADHD, just hasn’t got the diagnosis. She says she has AuDHD, which is a combination of ADHD and autism.

On Mondays and Tuesdaymornings James goes to a facility run by a charity called Mind You, where they hang out together and watch TV together. It’s for people with mental health issues. On Fridays he goes to a facility provided by All About Us, an autism charity, where they play video games, pool and darts. His support worker and I have been working on getting him out of the house more.

My oldest, P, and I have been trying to get A & J referred for social work support, but every team has said No

Gillian

2

Hi @Gilli Good to hear from you again.

Did they give their reasons for refusing support in writing?

3

Some did, some didn’t. One rang up and told me her team , the Physical and Sensory Disability team, had agreed do a Carer’s Assessment for me.

I read an article on the Carers UK website which said that people like A & J were entitled to a Care Needs assessment. My oldest son, who is neurotypical and has been helping me navigate the challenges of trying to access social work support, has been making enquiries about how to contact Social Services and make that happen.

Gillian

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