My mum is being ‘bullied’ into agreeing to having my bedbound/ palliative dad nursed downstairs in the lounge. OT has said a profiling bed can’t go upstairs (too narrow, too open, too slippy, changes all the time). OT said, yesterday, he could get ‘mates rates’ from his friend at the local mobility shop if she wants a bed upstairs and is willing to pay. Mum been told she would have to have her lounge in her bedroom. Dad happy as Larry. Carers not happy with height of the bed/ doesn’t adjust and ‘may withdraw care package.’ Can mum point blank refuse? She has been a carer for 12 years. Dad been bedbound for 10 months, which SS are fully aware of. Any help would be appreciated, SS coming tomorrow morning!!!
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hi @Exeter1978 , is the OT from the hostpial or social services OT? As with regards the bed, you should not be asked to pay for it as equitpment is loaned to you, so sounds like a con. where is your dad now at home or elsewhere? if he is in some where then explain the situation and that it will be a unsafe discharge. Carers can’t refuse or withdraw the care package that is either down to the company to object or for social service to stop the package of care. Your mum has got the right to object to plans being made with out a full chat and value reason. Ask them do they think that 999 service could get your dad downstairs with out taking the house apart? The reason for that question it will stall socail services but also might get them to get someone out to check. I know that if the 999 service need to get someone out and they can’t manage a easy way ,they will take the house apart, I have seen that on 999 rescure squad on tv. Also what other rooms could your dad can use to sleep in and get to the bathroom but also what other things he needs for his care? You can ask for the district nurses or ambulance service to do a welfare check and safety for him like I suggested in the post earlier. also remind them that they got a duty of care not just for your dad but everyone else. I would suggest contacting the carers helpline as well. @Charlesh47 , @susieq , @Michael_CarersUK for further help.
Dad is at home, bedbound, upstairs (has been for 9 months). OT was from social services. No other rooms downstairs. Just a ‘2 up 2 down’ house (lounge and kitchen). The carers aren’t happy with the height of the bed (not great on their backs, which I completely understand). Thanks for replying
@Exeter1978 when my mum came home she had a hospital bed upstairs with no problem, and the height was adjustable for the carers. This sounds awful for you and @Michael_1910123 has set out some great advice.