Hi, I am so sorry everyone for not responding after people kindly did. After my first post I hav3 been so busy, trying to get everything in place/relevant training for myself to prepare for my mom coming home. I am please to say she came home on Monday - so far things are going okay.
Just a little context missing from my first post, so in December my mom had a massive hemorrhagic stroke. Following this she spent 2 months in acute hospital, then 2 months in rehab hospital and then 2 months in a nursing home on a discharge to assess basis. At rehab they were telling us we had no choice and that mom would need nursing care - so we kind of reluctantly accepted this and she moved the while the CHC assessment was completed etc (needless to say - funding was NOt approved) Within a couple of days at the nursing home I came to the conclusion this is not what I wanted for her (and now - seeing her back home - I know it was not what she wanted either) I was really worried about her while in the NH and her needs not being met - she was left bed bound for 8 weeks due to a mix up with the physio teams not ordering her an appropriate chair and her room was a tiny box room - I’m assuming as it was a nhs then LA funded D2A room - it was not fit for anyone imo.
I didn’t mean to go on as much as I have but I just thought I would add some background.
Anyway, fast forward to this week. She is back home 
we have carers 4 times a day - having a few teething issues with them but I’ll come back to that another time. I do all her meds which go through her peg tube and run the feeds etc, and of course do basic care takes between carer visits and the emotional, practical support that every one seems to overlook.
My mom’s condition now is that she is still mainly bed bound although we have the correct tilt in space chair and hoist etc - just waiting on the appropriate RAs to be approved between the OT and care staff and hopefully she’ll be getting out into that daily. She is paralysed on her right side (left sided brain bleed and so all the usual cognitive impairment that comes with that) she is peg feed in the main however since she has been home she is more inclined to eat, we’ve had one really difficult day so far when she was really agitated and was pulling at her peg tube - she is so strong on her left side, I’ve had a few slaps and hair pulls - and yes it’s very early days so I’m sure there will be many more bad days to come, but on the whole she has settled really well back here.
I will leave this here, I could go on and on, I will add to this another time and I think I may be popping on a lot more now that I am officially an unpaid carer.
Thankyou for everyone who responded to my first post and I look forward to sharing more and gaining some knowledge from all of you.
Amie