Thank you so much for your response. I feel so desperate, alone and afraid.
I do have lasting power of attorney - the hospital and council know that (have seen the papers).
It was the Chief Exec who wrote to say my father’s prognosis had changed and that the hospital were not now pursuing a fast track NHS Continuing Healthcare funding for either access to a hospice or increased care at home. The letter I received on Thursday said that once Dad is home the council will undertake a CHC Assessment. I’m afraid I just don’t trust any of them anymore. We asked for a CHC Assessment to be done in July but the council simply didn’t do it. I am scared they will send him home on his existing package and we simply won’t cope.
I also just want a dr to tell us what his prognosis is - the last said three months, the letter said he had improved but not how (he looks exactly the same to us- not talking, eating, drinking - just sleeping). Is he now likely to live for longer?- what you could do/put up with for three months is very different to say a year…
I have complained to the Chief Execs office and they have acknowledged the complaint but I’m worried they-are just going to try and send him home. My Dad’s MPdoesnt have a surgery until Friday. I have taken all the flat keys. Not sure what else I can do? Am I being unreasonable?- they all speak to me as though I am mad but I just don’t seem to be able to get them to understand my concerns.