I believe this is where I introduce myself. I’m sorry I’m not very technical so hope I’m in the right place. I’ve been caring for my husband on a full time basis for three years now. He had an operation on his back that went wrong, leaving him with no use of his legs or left arm. We have been provided with all the equipment needed. The only thing lacking for me is time for myself and friends who understand. In theory this groups sounds like an easy way to support each other. I hope it works.
7 Likes
Welcome to the forum. I’m dismayed to hear of your husband’s situation.
Before he came home did the hospital or Social Services do a Carers Assessment for you, talking about the help and support you would need? Was it updated annually by Social Services?
Social Services should do an annual Needs Assessment review for your husband too?
Does he have any outside care arranged?
2 Likes
Hi @Jane269 - welcome aboard!
I care for my wife and eldest son at home, and am involved in caring for our youngest son, who’s 41 and in supported living.
The forum is quite active, and you’ll find we’re all friendly and supportive! We often congregate mostly around “Roll Call”, which is more of a “chat over the garden fence” sort of place. Here’s the current one: https://forum.carersuk.org/t/roll-call-march-2026/128186/
Do drop in and join the chat!
2 Likes
Thank you very much I will do
2 Likes
Welcome @Jane269 you will find a very warm welcome here and a HUGE amount of experience and knowledge. Just keep asking questions as someone will be able to advise and give help.
1 Like
@Jane269 good morning Jane. You have a lot to deal with from your post. I hope that you are doing ok. Wanted to say hello. Have a nice day and take care.
1 Like
Thank you, I’m doing fine, stuff builds up then I’m not good, but mostly I’m very easily pleased and a simple hello on a group chat like this will boost me I’m sure. Hope you have a good day.
2 Likes
@Jane269 good I’m glad you are doing ok.when I had to go into hospital because I had a fall there was a lady next to me that came in she did about once a year as she ended up with cellulitis every so often and she could not move. From the neck down she was paralysed apart from being able to slightly move two fingers on her right hand.she was paralysed . She told me that she had gone into hospital for a little operation on her back the surgeons knife slipped and cut her spinal cord. And she ended up like she was. She said it was hard at first. They got two calls a day from the SS. and no one wanted to really know but they sued the nhs for a substantial amount of money. And she now she said has everything she needs privately paid for. Her husband doesn’t provide any care for her. She has care 24 hours a day everything else a special smart adapted bungalow had just been built for her ,husband and staff. The bungalow was 13 years later.she said they had to fight for everything . i hope your husband and you are getting all the care and support you need after what he has ended up like. Because of what has happened to him.take care.
@Jane269 ….Hi, welcome to the forum. You’ll find it a great place to say how you’re feeling and to just have a chat in general. I used to care for my husband, he’s now in assisted living and we’re separated but the forum helped me through some very tough years.
1 Like
@Jane269 , ooh, not nice. You can’t go wrong on this site. There are dedicated people who work for Carers UK who can give advice. Also, I was until recently a carer for 30+yrs. I and others can hopefully give advice.