@Jackie66 this is just why they like to talk on the phone and we need to have evidence in writing. What they have told you seems contradictory. They say you told them he doesn’t drink much because of going to the toilet a lot then they said if they had known it he would have been assessed more thoroughly. Well they did know from what they have told you.
Despite what you said, it is perfectly normal not to drink a lot to avoid keep going to the toilet but, as you say, in the heat they have a duty to keep his fluids up and monitored.
It should be on his records if he has had sepsis, it is all to do with the numbers. Do you have a copy of his records? If not ask for a copy to be provided which would alert them to you taking this seriously.
I think it is still worth going to the ombudsman and I do not think this reply is satisfactory, but sadly is typical response from NHS and Social Services.
Don’t stress about it, it is important to look after yourself and email if you want any help in drafting something for ombudsman
I have a copy of his discharge letter thats all, it has no mention of Sepsis i am going to try and see if hospitall will send me an updated discharge letter but they may rrfuse as i dont have poa. The home are saying i told them he doesnt drink due to toilet actually on day they called ambulance i dont recall. My daughter said she told a carer 2 days before that he wasnt getting his drink out of cup as couldnt lift his head back she topped cup up and thats it. I will write to Ombudsmen but im feeling it wont get me anywhere they just fob me off its very disheartening. Same with dangerous plug socket they dont care just left it until get round to it i even reported to the fire service.
Yes please if you can help with the draft it be very helpful
@Jackie66 they may do it for you but you can have access to his records too I think. I got access to my Mum’s without poa.
The home is trying to cover their backs but without evidence it is your words against theirs. But you are dealing with one person, so more likely to remember than them who are dealing with many.
Then also your daughter noted it, so you have more evidence that they were aware of his needs.
I am not a nurse but I also think it is a basic requirement to drink a certain amount. I am sure others will know.
Totally up to you about ombudsman and you have a year to bring complaints, it made me feel better but we are all dealing with things differently.
I will send an email to you on this site if that helps
Keep strong you are doing well
Hi Ann
The home are saying that on the day manager called to say he was going to hospital i told her on the phone that he didnt like drinking too much so it was after he had got ill. I remember telling her that but dont know if it was that day or during view of home but i managed luckily to speak to the consultant who diagnosed John i rang her today and she said obviously it was June but from reading his notes she said he had a very high infection pylenephritus and delirium on back of dementia i may have spelt that wrong sorry im not looking at form, it was kidney type infection, she did say its likely the home didnt cause it but regardless he should have been monitored for drinking as he was being assessed and during a heatwave. I do remember quite clearly manager saying its probably dehydration thats what they usually say, like its a regular occurence but i doubt she would admit that. My daughter told me that when she was there 2 days before going to hospital john couldnt stand up and they had to hoist him i woukd have thought that be a warning even.
Im really struggling at moment in my head i tell myself when he dies i just dont want to carry on, its been a horrible few months and i wish i hadnt placed him there. I try and make most of my visits but he doesnt know anything really, i played some music quietly then his advocate arrived unexpected to introduce himself. John seemed to get tearful its so hard and what with that plug socket it was the last straw a week ago. All i seem to have done is complain and im scared there wont be any apology and i dont want to pay our money for this treatment even though much gas changed like his food and everything its not what we want for people we care for and i dont want to keep being angry. Sorry for rambling i dont gave any family left just my unwell daughter who has alot of pain going on but we argue quite abit due to the adoption of her daughter, long story…
I have started to draft a letter to the Ombudsmen i was thinking of handwriting it and get it photocopied
You have to go through the process of a formal complaint to the LA first before you can go to the Ombudsman.
@Jackie66 did the letter from the LA say that the claim was dealt with as @bowlingbun is correct you need to go through their whole process before going to the ombudsman. Bowlingbun has a lot of experience in bringing these challenges. You have a year to make the ombudsman complaint so try not to stress about it.
I think when we challenge those who ‘help’ us care we feel all we do is complain but in a way that is one of our roles, getting them proper care.
The claim was dealt with regarding the responsibility of the fluids being given or not yes, that part has finished and it states i can go to ombudsman at end of the email. The other things like toileting hasnt been dealt with yet…
I really am thinking of John and the fact he knows the staff and residents well he is settled and i dont wont to cause him more upset than i need to so i am thinking as they are actually now feeding him well and everything he will be better to remain where he is. If he was in a better physical state i would move him
That’s good that they have confirmed that you can do so, as the ombudsman asks for this.
If you feel John is settling in then that is good as you will not worry.
So the concern now is payment for care which is why you need to get the CHC assessment progressed.
You have done really well to get to this point, well done
Im so divided by my feelings about this care home, there is always something. Today its medication. John was coughing quite abit and trying to clear his chest i got him to cough into tissues, i knew he was abit breathless i spot the signs so asked for his inhalor, its a Ventolin which is used as and when needed usually but is kept in the homes medicine room and if i hadnt been there it would just be given at drug round times, so the way i see that is, hes asthmatic and could deteriorate if he doesnt use it more often. He is still on anti biotic they said. Anyway the carer gave me the inhalor and i could tell it is almost empty so said has his new prescription arrived as his and my meds are always same dates and i got mine last week. When the gp recently prescribed the antibiotics the home manager said to me its better his meds are delivered to their local chemist in future and then if he needs more anti biotics they will be easier to get. It turns out she hasnt sorted it out so if they cant do his prescription this time i need to put his prescription into Gp tomorrow and collect from my local chemist next week now. It may sound trivial but its just another messing up of important things. Another social.worker has done the assessment for Dols and he doesnt have capacity, odd thing he asked me to come home today. Shes emailed my Daughter to get het opinion bare in mind my Daughter never visited him before he was taken to hospital maybe 2 times, but went to the hospital and once a week to care home. Shes told this lady i couldnt cope to have my husband home due to my mental health and im so angry shes told her my personal info plus ive not got room plus i wouldt be able to go out. Right now i feel everyones against me, yes i am vulnerable at moment im tearful at times its normal to feel alone and missing him and seeing the way hes deteriorated so quickly and i still think its lack.of monitoring that first week. My friend worked in an Nhs care home and every patient had fluid charts in hot weather especially she said. I feel the home have an answer for everything, ive stuck my neck out trying to do the right thing and i dont think they are used to someone sticking up for their relative, this new social worker even said families usually put their family member in a home and just step back but i cant do that i am a principled person if something doesnt sit right thats it. Physiotherapists turned up to see whether the physio was going to be started and they left again as he was asleep so now its another 3 weeks. I feel they are just laughing at me sometimes….
@Jackie66 I think that confusion of feelings in one many will understand.
This is a further record of why you are not paying for his care in the home, total failure of duty. Not to have his ventolin to hand is awful and will be frightening for him, and you.
Not to have filled his prescription when they took responsibility is an issue to have on record too.
These are not trivial things they are the erosion of your confidence in this home.
Your daughter may have felt that she was doing what was right to point out that he needs to be given proper care support and the stress it is causing you to be in this situation. However, in this situation it is easy to feel isolated, which is why coming to the forum is good.
The home is well versed in deflecting complaints and they will unite to make you feel isolated and that you are wrong. You are right to remain involved and they need to be able to support you in this too, rather than act against you.
If you can join a carers group near you where you can get out and speak to people in person too, so you have some physical interaction with others who understand. You must feel battered by it all but take time to step back and look after yourself
Hugs
I have sent my email to the social wotker, i have told her that there are still mistakes being made as i saw the folder with CQC stuff in and they are still not getting residents fluids right so they havnt learnt. I took the bull by the horns and ended my email saying if her findings are not in my favour i shall be going to the newspapers dont know if they will listen but i will certainly tell them….
@jackie66.beenjackie66.been reading your website a lot to read I will read it.wanted to know have you got continued health care assessment and it funding yet. Don’t listen to social workers saying no.they always say no.ring your local citizens advice bureau if you haven’t got it yet. Ask them to help you.he will be entitled to it it’s just hard to get you have to fight.go on the caretobedifferent website look up the national framework for continued heath care and nursing care.read that that will tell you all you need to know.has he got his vitamin B12 injection. Wherever his medicines come from it needs to be ordered every 3 months Has he had any physio like you asked doctors they said the put request in.have they?.have you managed to move to new home. Are you ok ?. I wanted to see how you are?also council have quality care team feedback and complaints there email address will be on your local councils website.if your not getting anywhere .complain to them in an email put on email when wrote to acknowledge it. Ask for advocate they will get you one. You may be doing ok. And got all this don’t know still reading. I hope so. If not hope these will help.ill go back and read more.hugs.
@Jackie66 i sent you a message above this one Jackie it won’t let me edit it. I did not use capital,J.so when you get this ,you will see message above it take care.
Hi thankyou for writing it is nice to hear from someone. The social worker recently filled the form out to see if my husband could receive the chc and he wasnt entitled to get it she said, i think he was one letter short on one of the conditions its a bit confusing i think but this social worker has stepped back and he is to get another one soon so i dont know if i can reapply as he has deteriorated in past couple of weeks and is so very tired all the time that he is mostly in bed. Iam struggling very much with seeing him like it and have now been allocated a mental health nurse.
I complained about various things to the cqc and there was a safeguarding which has resulted in 8 days of fees being waived. All the rest of what i said they mostly.made excuses for. I feel like all ive done since he went in is worry and complain. I wanted him to be nearer to me as i have to get 4 buses each time i visit 2 going and 2 back and although its not miles away it takes time a couple of hours with waiting around etc they say it will disrupt him to move him and that bothers me but the care home manager sees how upset i am and has requested they relook at him being moved, i just really worry if it does upset him. I am so tired at moment ive lost my fight for a bit xx
He didnt get the b12 no, i take the b12 spray in