Surprisingly my brother scored high enough on the checklist to get a full assessment from the NHS. During the checklist meeting I got the distinct impression that the social worker was trying to push for more B’s than were actually necessary, but that’s another story.
I’m here to ask anyone who’s been through it what to expect when it comes to the full CHC assessment?
Who actually attends these things?
The letter states someone from the NHS will visit my brother’s home to carry out the assessment, and that people who know of his situation will be involved, like a social worker - but his social worker doesn’t have a clue about him at all, so I can’t see the point in any of them showing up.
His house is small and there’s not enough room or furniture to seat a whole bunch of people, so I hope they don’t come mob handed, but of course, short of phoning round everyone associated with him we’re not sure who to actually expect on the day.
The only ones who actually have a clue about his needs are his carers and family. The social worker, and the specialist nurses etc have never taken the time to understand the full extent of his needs until recently when the council started insisting on “evidencing” needs.
Can anyone tell me if it’s likely to just be the NHS assessor visiting, or if every Tom, Dick and Harry will be tagging along too?
What happens during the assessment?
I assume it’s just a more in depth version of the checklist? But can anyone tell me from their experience what was asked, how much detail they wanted and if you needed to provide any paper work or documentation etc in order to validate what you were saying in any way?
Do they want to look around the house?
My brother has some mental health issues (PTSD/OCD/Anxiety) on top of his primary condition, and he is extremely funny about people he doesn’t know going around his home (had thefts in the past) and so I’m wondering if it’s part of the assessment to go snooping around a person’s home in any way?
He had a home assessment for PIP and they didn’t ask to look anywhere, so I hope it’s the same case for this?
Do they carry out any [physical tests?
Again, with the PIP assessment they wanted to do minor balance and grip type tests and some other things on him, so I’m wondering if the CHC people will come with any physical checks they need to carry out?
Realistically, is this a waste of time? What are his chances of actually getting CHC?
I know no one but them can tell me for sure, but I can’t help feeling like all this is for nothing, because he just scraped through the checklist on B’s, that I (and his carers) personally would have put as C’s.
Short of helping with toileting (bladder and very rarely bowel incontinence) minor to moderate spasms, monitoring to avoid choking, giving him his daily tablets, helping with his physio and handling his depression and lack of motivation (and aggression born of frustration) some days there really isn’t a huge amount of “health care” support that he needs. He doesn’t need anything like manual evacuations or tube feeding or any specialist kind of medical care really…yet at least. He’s nowhere near as bad as some people are that I know who have been refused NHS funding.
Has anyone got funding with mostly B’s and C’s, or do you really need some A’s in there to get accepted?
If anyone has received either full CHC funding or joint funding - what’s it like?
Is it as much a blessing and a curse as some people say? If so, why?
What happens if they refuse to fund?
Will the fact the NHS say his needs aren’t high enough impact on his current care package with the council in any way?
Is CHC still governed by the Care Act like Direct Payments?
I hate to say it and sound ungrateful, but I’m kind of annoyed that he’s being assessed and could potentially move to NHS funding, because I’ve spoken with a community care solicitor this week, who assured me the council are acting unlawfully in how they’ve handled his case, so I was ready for a fight with the council and we’d been feeling confident we’d actually win and maintain his current funding level regardless of their attempts to cut it, but now I feel like I’ve got to go back to the drawing board to understand what the NHS can and can’t do. It’s all new and unfamiliar territory and I know my brother is going to stress out if he doesn’t understand how the CHC differs to Direct Payments and how much this assessment could impact on his current care package.
Any advice and stories of personal experience would be a big help, thanks all!