The hardest task for me was to create a thread that was easy to understand and navigate.
Virtually impossible given the nature of this beast.
Start with the video from Professor Luke Clements … visual as opposed to bland text.
This is one area where every carer REALLY earns their wedge … fighting their caree’s corner against a system designed to be complex … so as to dissuade many from completing the course. For many , could be the difference between life and a premature death … literally.
For the moment, just concentrate on making sure that they investigate everything thoroughly, and REFUSE to have her home until they have made certain you feel it is sensible to discharge her.
A CHC checklist assessment can only take place when treatment is complete.
We have 2 carers four times a day. Will that simply continue? Do we get six weeks free again? I must tell the council that we are now below the 23,250 threashold.
Have spent most of today resting. Feel properly worn out. Dr for me next week I reakon.
You cannot now rearrange the care, as she is now under the threshold.
In theory, the CHC checklist Assessment should be done BEFORE Social Services are asked to arrange care. That must be a good delaying tactic. Social Services should do a Needs Assessment for mum AND a Carers Assessment for you.
Someone else on here a while ago refused to provide her husband without any care on discharge, as she didn’t believe he was fit to be discharged.
Then you could also argue that mum needed some “rehabilitation” before coming home?
Yes, it’s difficult to know what to wish for.
My mum became so poorly that I realised that I couldn’t wish her to live a moment longer in the state that she was, although I didn’t want her to die., and I still miss her every day.
Are they talking to you about her condition?
Jacqueline
Re-enablement care is different to rehab (rehabilitation). Its where she might be given up to 6 weeks free in either a small hospital or residential or nursing home while they try to see if she will get any better/improved. Sometimes it can also be given at home
BUT until they start talking to you about discharge, you just take the time to do as little as possible and to rest as much as possible.
When they do start talking about discharge, if they talk about her coming home , you keep saying it wouldn’t be safe because you are so tired. Just listen to what they say, say you need time to think, then come back here to tell us EXACTLY what they say.
Hi Jaqueline
As before you are following in my footsteps. It is time to think about how you feel about prolonging treatment v managing decline. Does your mum have an “Allow natural death” form or just a “DNR”? Can you find an understanding consultant to discuss the options with ? If mum is deteriorating rapidly to the point of merely exisitng it is time to make some hard decisions, no right or wrong but decide what you feel would be for the best.
It’s actually very GOOD from your point of view that she is shouting “Help, help” all the time, because that is NOT normal, and is a demonstration of her deteriorating mind. I’m sure it’s driving them nuts (I’ve been in a ward with a shouter!) but staff can go home at the end of a shift, you can’t!
It’s a while since I read the CHC Framework, but I know that there is something in it about behaviour. Might be worth checking yourself.
So many of us here have been in a similar situation, we will support you all we can. In the meantime, try to sleep. Maybe take a day off from visiting tomorrow? Visiting daily is going to make them think you are more likely to have her home again.
The checklist covers the following categories (also known as ‘care domains’):
behaviour
cognition (understanding)
communication
psychological/emotional needs
mobility (ability to move around)
nutrition (food and drink)
continence
skin (including wounds and ulcers)
breathing
symptom control through drug therapies and medication
altered states of consciousness
other significant needs.
\
**Shades of PIP … and the initial application success rate … many overturned on appeal ???
Put another way , try winning a card game with the dealer using a marked deck ???**