I have looked after my mother for more years than I care to remember and have witnessed her gradual decline from someone quite active to her current situation in which she has only the use of her left arm and some use of her left hand.
Lately, for some meals, I spoon feed her as some food is more difficult for her to handle.
In September I was diagnosed with Parkinson’s disease. I was advised to apply for PIP. DWP sent me a “We haven’t received your ‘How your disability affects you’ form” text 24 October. Even though DWP sent me a “Thanks for sending us your ‘How your disability affects you form’” text 5 November“ and Capita assessed me for PIP at their offices 5 December and DWP sent me a “We’ve received the written report of your Pip assessment” text 20 December and I also received, by post, a letter from DWP to advise that I am not to be awarded PIP today, I have continued to receive the original “We haven’t received your ‘How your disability affects you’ form” text several times every day since 24th October (including twice today). I phoned DWP 12 December to ask them to stop texting me but I think I might block them for now!
Sorry about that rant! I hope everyone has had a nice start to the year!

Hi … four links that may help you.

Parkinson’s UK and PIP … help and guidance :



SCOPE online forum … several tens of threads on Parkinson’s disease and … PIP refusals / appeals :


Solely PIP appeals :

How to win a PIP appeal | Advicenow

I trust that you will find them to be of assistance.

Hello Chris
Thanks for that but I joined Parkinson’s UK the day I was diagnosed. If I appeal I will certainly use your link

Your welcome.

You’ll find SCOPE to be invaluable.

Do NOT throw away any DWP paperwork. Print off emails. Put everything in a file, then ask your MP to take a look and find out what the heck is going on!