According to the Care Act, and the accompanying Guidance, there should be a Needs Assessment, the cost of that care should be calculated to arrive at a Personal Budget. There should then be DISCUSSION between Social Services, the caree, and the carer, about how that budget should be spent. The caree should be able to choose who should care for them, when and where.
In theory, EVERYONE is entitled to a Personal Budget, if they cannot manage it themselves, then the council should arrange for someone else to manage the DP’s on their behalf. Councils are failing to consult properly, and making decisions based on what is easiest for them or a care provider.
I know someone who adopted a daughter with very special needs, at times she needs to have two people with her whenever she goes out. The council cannot find anyone to care for her, will not allow her parents to be paid for the care they provide. Thousands of pounds have been returned to the council, unspent, when the parents are caring 24/7.
So much praise is being heaped on paid carers, but it seems that unpaid carers have been forgotten about, although their care load has increased significantly.
My son has severe learning difficulties, but the same probably applies to dementia sufferers and their carers too.
How can Carers UK help?