According to CUK’s figures, I have made more posts than any other forum member, almost 22,000!
Having had ten carees in the last 41 years, I suspect that is also a dubious record!
I have been increasingly concerned that the same problems crop up over and over again, and wonder if forum members could help CUK nip some of these problems in the bud, once and for all?
I’ve just been to the main site, copied and pasted one of the main aims of CUK.
“We will keep campaigning until every carer gets proper recognition and support”
Would be useful to have specific goals which reflect this aim for 2021?
From my own observations, councils struggle to meet the needs of those with the greatest needs.
People who need a lot of night time support.
People who have challenging behaviour.
Services of the right quality at the right time are not available, although the Care Act says they should be.
I recently met a mum whose adult daughter had challenging behaviour, the LA had awarded her a large care budget, but mum couldn’t find anyone able to care for her daughter, so had to send back the direct payments and care for her herself. The LA told her she couldn’t have the money for the care she provided, although the Care Act says she can.
Those with the highest needs should be entitled to Continuing Health care, but in reality, it’s a poscode lottery. In my area there is a very low rate of eligibility, in parts of the north west of England, you are 800% more likely to be eligible.
Hospitals are continually ignoring the rules about discharges, leading to unsafe discharges and carers wrongly being told they have to care.
How can we work with CUK to resolve these issues?