Hi everyone,
I guess I’ve joined here so that I can talk a bit about my story and seek advice or support from others.
Myself (28) and my partner (32) have been together for 5 years. We rent a lovely property and our lives and careers were on the up. We both have demanding, stressful but well-paid jobs.
Until, his father was made redundant from his job abroad.
His father and his mother had to return to the UK with no savings, no belongings, nothing but the clothes on their back. They’re both in their early 60s. Obviously that has had mental health implications for the both of them especially as they have had to rely heavily on their children and children’s partners.
My partner and I converted our spare room so that his mother could stay with us. She has a list as long as my arm of medical conditions, COPD, diverticulitis, incontinence, irregular heart rhythm, mastocytosis, neuropathy, chronic pancreatitis, kidney disease, malnutrition, adrenal disease, several severe mental health problems, as well as being a smoker and alcoholic. His father is staying with his sister whilst he’s looking for jobs but for the past 5-months has been unsuccessful. He has a lot of skills and experience but seems to be being passed over due to his age and being so close to retirement (next year).
My partner and I have become carers for his mother due to her health. We have encouraged her to reduced the amount she smokes (successful), she was an alcoholic and is now abstinent (despite a few relapses), she takes her medication as directed now that we manage it for her. She has begun to eat regular meals and washes and dresses every other day now. All in all, she would self-neglect if it wasn’t for us helping her with almost every aspect of her life. She doesn’t go out of the house unless accompanied, partly due to mental health but also because she can’t walk very far.
The long-term plan is that when his father gets a job/pension that they will get their own property but I am terrified that all the hard work in improving her health will be undone because his father will not be able to care for her. The reason why she is in this condition is because she received no care when they lived abroad. She had a steady decline which we were not aware of. We have now made referrals to the local authority and are awaiting an assessment. She is not eligible for PIP but is on the higher rate for DLA. We were rejected a blue badge which we are appealing.
A big concern of mine is that our property is a Victorian-build, very high ceilings meaning an extremely steep set of stairs up to the bedrooms and bathroom, stairs down into the kitchen, and two large sets at the front door. I am terrified that his mother is going to fall down them. She has had 3 falls in the last 4-months (all associated with alcohol intake requiring hospitalization). We have her under an alcohol service and she has been started on medication, we’ve removed all the alcohol from the house however as is with most addicts, they always find a way.
In a very selfish sense, I sometime feel like this isn’t my problem. It is having a large impact on our relationship and it is really affecting my mental health. I’ve spoken with Samaritans on a few occasions because I get so scared and panicked. I don’t feel safe or able to relax in my own home. I get no breaks. I work in a caring industry so there is a lot of expectation and responsibility on me to know what to do and what to say. But I just can’t cope with it. Some days I want to suggest a care home. But I know the family would not agree to that or be able to afford it. His mother has capacity and is in no way mentally impaired, but she clearly is not able to care for herself. And we / I are unable to continue caring for her. I have, on occasions, left the house and gone to stay with my parents but this causes my partner and his mother stress and worry that I’m leaving and that they are a burden and that I won’t come back. I wouldn’t do that to them because I feel like they are my family now. But I’ve got to find an alternative otherwise I’m going to break.
Her health continues to deteriorate. She was hospitalised last week due to concealed alcohol and a worsening of her chronic pancreatitis. She’s lost 28kg in 8-months and has been investigated for cancer under a variety of specialisms, thankfully all clear.
I’ve tried to keep the story short but it hasn’t really been. There’s just so much going on and it feels like every day there is a new challenge.
Thanks for reading,
MB