Grateful for advice on how to respond to nhs continuing care

Dear Friends

Susan here; i would love any comments;my blind friend is in a crap care home, just out of the special measures; it is dreadful there. I asked liverpool social services for help and the social worker sends me to the NHs Continuing care team; and yes the nhs continuing care team send me back to the local authority; which is very cheeky; this is the reply from the nhs cont care below

have you any ideas on how I can support my lovely friend, ( I am her advocate) to be safe in an unsafe care home or how to get her moved; it’s so hard and I am frightened she will die in the care home; she was assaulted there 2 years ago; they call it historical safeguarding; it is a very poor care home

thanks for any comments

Good Afternoon,

Apologies for the delay in response.

CMICB acknowledge your communications, however, please be assured that CMICB regularly review, monitor and communicate with Susan.

Due to GDPR and confidentiality, we are unable to discuss Susan’s care without her consent, due to not being an identified legal representative and.

Please can we request that you cease sourcing placements on behalf of Susan, as under the Commissioning policy, this role falls upon CMICB and will be identified at the review process or if there is a change in need.

Any identified concerns/needs will be acted upon, from CMICB, as per request from Susan or the nursing home provider, who maintains her own mental capacity.

Therefore, can we request any safeguarding concerns be signposted to LA.

Any requests or change of care to come for the nursing placement or Susan direct.

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If it’s a rubbish care home, contact the Care Quality Commission, CQC.

thankyou so much; yes will do; they can have my diary of poor care here; a thousand thanks

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What an appallingly written response.

Can your friend sign a letter saying she is instructing you to look for somewhere else for her (or is still saying she wants to stay where she is?)

Someone we know; her son was involved in safeguarding at the mercy of staff in his care home and he was moved immediately. He has a learning disability.

Perhaps try Sense for advice.

Would your friend talk truthfully to an advocate?

Have you looked at the fees for this home, I expect the LA sole reason for keeping her there is that it’s cheap.

Dear Melly A thousand , a thousand thanks for your most compassionate response Melly; thank you so so much; yes it is appalling, I will try the SENSE organisation. My friend is desperate to move; she is blind. i will record her voice when she say she wants to move, A thousand thanks; I am frightened she will die here; yes i am sure the home is dirt cheap
thanks so much; you will never know how much this feedback meant Susan x

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@susan_170912 It’s a typical letter from officialdom, and must be massively frustrating to read. I agree with @Melly1’s suggestion about getting your friend to agree in writing that you can act on her behalf.

The reason for that is that the ICB are correct that they can’t just accept that you have any right to discuss your friend’s case. They can get into all sorts of legal trouble if they do - unless you can show them that you’re acting with your friend’s knowledge.

Their comment about safeguarding suggests that some of the concerns you’ve raised are a safeguarding issue. While they’re right that you should contact the local authority, which has the responsibility for safeguarding matters, the ICB should have contacted them to inform them of your report. It would appear that they haven’t, on the mistaken grounds that it’s nothing to do with them. And I find that appalling.

I do suggest you contact the local safeguarding team, and inform them also that both the ICB and their own social work team have not acted on your concerns.

Thankyou so so so much Charles; thankyou for your reply; i will do as you and Melly suggest. I will get Susan to verify I am acting on her behalf this week. Thankyou for your thoughts ; it is appalling that they are not concerned to pass on my concerns to the local authority; I am so grateful for your thoughts

Susan