My caree was diagnosed with Fibromyalgia in 2001 by a rheumatologist, my caree was prescribed Pregablin (Lyrica) to help with nerve pain and Amytriptolene to help with sleeping.
Since then very little has been done, not seen anyone in relation to Fibromyalgia.
There has been no support given, my caree is frequently in a lot of pain, which leads to not being able to sleep, tiredness and extreme fatigue.
This has led to agoraphobia and severe depression, my caree is frequently just not able to go out socially too tired or in too much pain.
My caree is locked in a cycle of pain, takes painkillers Tramadol but that does not get rid of the pain, dulls it but does not get rid of it.
The G.P. has done absolutely nothing referrals to any specialist, rheumatology or the pain clinic.
Despite a trip to A&E, 2 years ago where my caree freely admitted, they could not stand the pain and tiredness any longer and wanted to die.
My caree saw the crisis team, given a few leaflets, there was no follow up by mental health services.
A letter was written to the G.P. about this incident but nothing was done by the G.P. , fibromyalgia help and support, mental health help and support, just nothing.
I have looked and asked around just seems to be no local support group for Fibromyalgia, you are just to cope on your own.
2 years on I feel my caree is at the same stage Rock Bottom and I think one day something bad will happen-Suicide?
I am helping the best I can but there just seems to be no help and support, proper mental health support, any therapy is limited 6-8 sessions then again you are left with no help.
Fibromyalgia is a life long condition, there is no cure.
And it is a very misunderstood condition, some days you feel well, others you can barely get out of bed.