2 carers 4 times a day is the maximum, however, that still leaves 22 hours or so a day without any paid care!
As you have a young child who will also want your attention at night at times, who deserves an active happy mum, your situation is utterly unsustainable.
One thing that assessments often forget is that there are also routine jobs around the house that need doing. Things like cleaning the oven, the cooker, the bathroom, vacuuming up etc. etc., the gardening, washing up which you must be doing because no one else can!!
Is your parents house streamlined or cluttered? Do you have a tumble dryer, dishwasher?
Do they accept that they can’t do much in the house any more?
At very least, given their incapacity and the fact that dad is certainly entitled to Attendance Allowance, and probably mum too, they have enough money to pay for domestic help to take that responsibility from you.
Has this occurred to them?
On the subject of money, do you have Power of Attorney?
Do they have over £46,000 in savings (the Social Services limit for contributing towards care in the home).
If you don’t know, it’s time you found out. Social Services will want to do a financial assessment soon.
Mum should gather together all their financial paperwork together, sharing the contents with you.
My in laws still had receipts going back to when they moved into their house, in 1947!!!
My mum was a nightmare after dad died, said she didn’t know anything about anything financial. I was left to sort things out!
First, I had to do a major search for everything, bin all the junk mail and utility bills over 2 years old.
ou are now effectively responsible for both of them, or still expect you to be an obedient child in their hour of need? (Mine did!)
Do you have any time of the day when they leave you in peace to play with your baby, or go out for a walk?
No one wants residential, but those with severe disabilities need a team of carers on call 24/7, and that means residential care.