I am taking the bull by the horns and seeing if I can get this for my Mum. She has really deteriorated in the past few weeks.
Has anybody on here been successful?
I filled in as much of the form as I could, dropped them at the medical centre. A GP rang me and said he knew nothing at all about Continuing Health Care but said he looked up Fasttrack CHC and did I know it was for end of life patients. I corrected him and he was very polite and listened to what I read out to him and said he will go and see her on Monday and I am to ring him on Tuesday.
CHC is kept very quiet here but my SIL in Leicestershire told me that they were TOLD about it and got it for her MIL for a long time and also for her Mum but that was only for a few weeks until she passed away.
Pet’s husband had CHC - might be worth dropping her a PM.
Melly1
Penny, maybe download details of the Poynton (might be Pointon) CHC case for the GP?
You shouldn’t have to do this though, so annoying when they know nothing about this aspect of their duties.
Literally just had a phone call to say Our Fast Track claim HAS been accepted! NHS will pay Mum’s full fees from today. This will be reviewed every 4 weeks for up to 12 weeks then they will look at it again.
I am sad and happy at the same time. Sad that Mum is getting this only because she has deteriorated but happy that at last she is getting some help with her fees. She has been paying everything herself since Winter 2016 and had to sell her house. I daren’t even add up how much that amounts to.
For anybody in our position, it is worth pursuing.
Penny, you have done your best for your mum, but know that it marks a sad milestone too.
Well done Penny. I know what a double edged sword it is.
Had a call to say the bill for this month …nearly £4,000 will be refunded to Mum’s account. I am so used to having to fight for everything and chase things up that I can’t believe this is all going through without having to kick up a fuss.
Penny, well done. One less thing for you to worry about.
Melly1
Penny
So pleased for you. Would be so easy to give up the battle, but you didn’t!
Thank you Pet66. I am still a bit in shock to be honest. I went to the Bank today to stop the monthly payment to the Care Home. The young man who served me said “is your Mum moving to a different home?” I don’t suppose he really should have asked me anything but I let it go.
I told him she was being funded by the NHS now. He said “my Gran has dementia and is in a care home. I get people in all the time with invoices like this so I know how expensive it can be.” I said “is your Grandma paying a similar amount.” Then … and this is the bizarre part, he said “oh no she doesn’t have to pay anything because she has no money and lived in a council bungalow.” I said my mum had no money either, she never smoked, drank or had foreign holidays but she did own her old council house so she had to sell that to pay her care home bills. He said “she would have been better off not buying her house wouldn’t she”. Like I didn’t know that! 
Penny
But what sort of a home is the young man’s grandmother in? Some are awful.
Just a thought from me. I didn’t tell many people hubby was funded, even though he had such complex needs. In the home, a visitor asked me once how much I was paying, and alarm bells rang as she fought and fought for help and never had any. Her husband, bless him had dementia, but no complex needs. Felt she would have resented if I told her. So I said the going rate. Felt terrible but had enough going on with the battles, for funding,over seeing hubby’s care and the dreadful slow loss and goodbye. I did however help a friend who’s father was in the home, by downloading the NHS care tool for her, and advise key words.
Some things are best left unsaid, as you have been through such a battle, and all the emotions you will be encountering now, without comments that may not be welcome.
You may not agree with me of course.