Hope everyone is coping as well as possible.
This is quite a difficult one and I’m not sure if anyone’s had any experience of this, but I figured you lovely people would be the best to ask.
My Gran is losing the ability to move her arms now and her speech is nearly gone (MND for those that haven’t seen my various posts before). I had quite a difficult conversation with her yesterday evening about what she wants to happen when she can no longer use her arms. She doesn’t have a feeding tube and this is no longer an option for her, according to her palliative team.
She told me that she does not want someone to feed her when she can no longer do this herself (this will also mean no liquids being provided for her). She told me (in her way) that she struggles to swallow when she’s controlling feeding herself, so she doesn’t want someone doing it for her and potentially effing it up (that’s the short version of what she said).
Has anyone been in this type of situation before or heard of anyone who has? I find I can cope with anything if I know what’s likely to happen, as then I can get my head around it and ‘mentally prepare’. It’s the not knowing that’s very scary at the moment- I hate the idea of her suffering and essentially starving to death.
Any thoughts greatly appreciated (and sorry if this is a sensitive topic for anyone- I just have nowhere else to turn to ask these kinds of questions).