Dealing with caring for a schizoaffective partner when you become the focus of their ire

Hi,

Five weeks ago my wife suddenly handed me a note to tell me that she was leaving me and our marriage was over, and a couple of days later she left and took all of her possessions. Although I am used to there being a cycle where I my wife feels she does not love me, this normally resolves within a week or two. Normally her wedding ring might come off for a bit, but when I notice it going back on she soon becomes affectionate with me and she will be telling me she loves me and adores me. Then when you ask her what all that was about saying that she did not love me, she will say she didn’t mean it.

This time was different. We had a meeting with her immigration solicitor on the Monday. My wife was really eager to push her visa renewal as soon as possible, and even got the solicitor to write a letter for her new employer confirming the renewal would be completed in the coming days. Everything seemed to be fine, but she had got covid for the first time. Towards Thursday and Friday she had gone a bit blank, and I was starting to get a bit concerned she was getting sick. However she showed a bit of life when I nipped back for lunch. When I returned home, she handed me a note telling me she was leaving me, which was really just very confusing, putting the blame on me, but written in a very flowery form. She then disappeared for 6 hours and would not tell me where she was. When she came back, the first thing she did was say I was ignoring her. She then said she wanted the crisis team, that she thought she was “heading back into the looney bin” and that she “just wanted to feel normal”. Unfortunately we could not get hold of the crisis team immediately. She shut me out of the bedroom to call them by herself, but gave up when she got an answerphone. That was the last constructive conversation we had. I did call them early the next morning, but by 7.15am my wife had gone out roaming again, and she did not get assessed until the next day, by which time it appears she did not have any insight as she apparently walked away without being admitted.

She asked to meet outside of our home on the Monday, and she told me again, our marriage was over, and that she would not be returning to our home that night. She was flat and cold and display symptoms, very much “the other person” rather than my wife. I asked her to consider marriage counseling and maybe we could meet in a few days. We met again on the Friday. She was moving around the time a lot at the last minute, and I was certainly thinking I was an afterthought. Straight out I could see clear signs of symptoms of an episode. She was even more flat, but also stopped me to ask quite firmly why I had bit my lip. She asked me so firmly, and was so angry about it, I ended up apologising for it. From the start of the conversation she counted out counseling and just said our marriage was over. It was not really a two way conversation. She was hostile and seemed angry with me. She got up to leave in the middle of it, and I said to her “I am really upset about this” and she said “you have got you nice jeans on, your nice shoes on, your nice t-shirt, you have shaved and you have your nice hat on. How can you be upset?”

The reason that I go into detail on this is because that is really all I have to go on in regards to her present state of mind. I know what I saw was illness on those days. Since then we exchanged a few text messages where her reason for the breakup changed to an argument we had two weeks before where she had been extremely jealous about a two sentence conversation I had with my ex (who I do not get on with) in the shop door at Tesco. None of this makes any sense. She said she would get in touch with me when she was ready, but three weeks passed with no contact. In that time she started blocking me from everything, including changing her phone number, and basically living in hiding.

I eventually message her on Facebook last week, asking if we could have a call, and she refused saying “I am moving on” and when I pressed she said “you need to move on”. She then blocked myself and my family from that too.

The hospital told me this happens very often, and people can go for months, but often come back eventually. My doctor has told me that everything I say indicates she is unwell, in an episode, but functioning enough to get by, and most people will probably think she is just down or a bit wacky. He says to keep the home fires burning. When I called her father, straight away he said she must be sick. By the way, she had not told any of her family about this before she did it.

So far I have only managed to get anything out of two of what I thought were our friends, and it turns out they were solely her friends. One of them I saw in the street a couple of days ago, and she looked at me as if I was pure evil. I can not help but think, my wife is telling tall tales about me. She was insistent that my wife was fine, and that she had just broken up with me. I tried to tell her, she can not tell me that she is fine. This friend will have no idea if she is fine. She knows absolutely nothing this illness of my wife’s condition. I need to see her with my own eyes and talk to her. I was saying, how does any of this make sense? She literally seemed to make a decision to disappear in the space of day or two, she has disconnected from me via almost every possible channel, she refuses to speak with me, she really does appear to be paranoid about me, and she is about to lose her right to live here because he visa expires in a matter of days. Turning against those against those closest to you is a symptom of the illness. It is not just like she has left me, she is hiding, she seems to be actually angry with me and I have done nothing to deserve this.

I think in my wife’s mind, she is cured because of her medication. The reality is not quite like that. The delusions are remarkably well controlled compared to where she was five years ago and a lot of this is down to stabilizing her home life and her medication. She has really moved forward with her insight into her delusions. But he mood disorder component of her illness, she just does not seem to understand. Her last major episode was 3 years ago when she was not under my care. However, we have had some near misses, and interventions to keep her well when things were getting out of hand. Prior to this in January, she had started to come home and get very aggressively angry about one of her colleagues. Eventually she was screaming at me at 2am in the morning about this colleague. I decided to support her in a decision to resign, as I was worried something was going to happen in the workplace. She was signed off for the whole of her notice people with symptoms of her illness as the reason given by the GP. She does not recognise that this was a problem or an illness thing at all. The thing is, she was out of work for 5 months, and she lived a life of leisure for most of that time. She did whatever she wanted to, and on top of my job I did nearly all of the cooking, cleaning and laundry. I never came back and was angry or anything because she had just been relaxing all day. I just wanted her to recover.

Unless she is fully delusional, she does not accept anything as a result of the illness. So I am pretty sure she is telling everyone that she has been well for three years and that I have been using the illness to try and control her, when the reality is I have often been trying to rein in unacceptable behaviour, or explain why her illness was making really big demands on myself.

Because my wife does not feel any love for me when she is unwell, I think there is a fair chance she is telling people I have been exploiting her with her illness, or something similar.

So the problems is, this happens ALL OF THE TIME with those closest to the loved one. My mum was a receptionist at a mental health hospital for many years. She said to me, “How many people do you think are happy that their partner has brought them to the hospital?” She told me, day in, day out, they get people coming to hospital saying all kinds of things about their partners. It is the expectation to have this. We as carers of people with these conditions are routinely subject to paranoia and outrageous false allegations. So why is it that I can not actually get any information about what is happening with my wife, even though we are looking at a textbook case of a sudden radical life changing plan being made and executed, when her right to UK residency is on the line, and when it is in her interests for me to be informed?

At present, my wife has locked me out everything and thrown away the keys. I should know more that what I know. Her father has spoken to her, but she is not giving him much information either. How can it be, that people are looking at me like I have done something wrong, when I have done nothing but make sacrifice after sacrifice, mostly without complaint, to take care of my wife. How can I be the one person who is in regular close contact with this illness for years, and yet people she has met in the last few months think they know better than me? Why are people judging me when they know she has this illness, and they even see me running around after her, helping her with whatever she needs to do.

I think so many people do not understand that people can look ok, but be unwell. It is driving me potty. My wife is going to make radical decisions whilst displayed symptoms, I can not see her, I don’t know if I should just think she is actually leaving me, I made a vow in sickness and in health to take of her, and I am in limbo, watching the days count down until she has to leave. At any moment, she might just go. How can we not have a system in place that means those who care for those with psychosis type illness have a degree of protection against false allegations, and that they can access recorded and get health updates on their loved one, even if they’ve tried to lock them. This situation I am in is just cruel. It will never end. I am so loyal to my wife. I am just going to be sat here waiting, and she could be anywhere in the world, and I she might never talk to me again, and I will not know if she is ill, or if she is actually now callous person. It is just so cruel.

If anybody had any ideas how to get out of this situation, please let me know. Otherwise, I think we are snookered.

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Hi @LowProfiler, welcome to the forum. This is the problem with mental health the system is broken and no on is fixing it. Is your wife at home or elsewhere?
Normally it take 7 years to come up some mental health results, it took that long to say mum had bipolar.
I would suggest that you keep pressing the mental health team for help, as for the crisis team they are useful as a chocolate teapot and I have had my fair share of arguments with them. If they will not see her or speak to her when you phone, take her to A&E, 1,she will be safe, 2 she will be looked after. If she goes wondering off contact the police about her for her own safety and others. You can contact the safeguarding team for help as well as citizen advice and the charity mind. Also contact the carers helpline for further information and advice.
Helpline and other support | Carers UK.

Keep in touch

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Sorry, I left some detail out. She has not stayed in our home for five weeks. She basically went into hiding and has not spoken to me properly since. She announced she was leaving on the Friday and had some insight that she needed to see the crisis team on that night, but did not see them until Sunday. She did attend the meeting to see them, but it seems like they just thought she was fine as she was not admitted. The crisis team can not tell me anything beyond that they had located her and had made an appointment to see them. I sent my wife an email last Tuesday after three weeks of hearing nothing from her, trying to discuss the situation and the response was “Do not contact me.”.

The only other factor in this is I noticed a book in our Kindle account called “The Liminent Mind” buy someone called Alice Bain. This is a public forum so I will not make and direct allegations, but I flicked through it and it seemed quite unimpressive and unscientific and suggests that when having problems in a relationship that upset you, you should just completely cut off from your partner. I am beginning to think this might be what she is doing. She is pretty susceptible to pseudoscience, particularly when unwell and it does suggest to not communicate at all.

I had been thinking for a while that my wife’s resistance to accepting the mood disorder part of her illness was causing her to cycle around blame for how she was feeling. If it was not me it was her job, or nobody hearing her music, or the weather, or having no friends. Now she has friends, she is doing well with her job, the weather is nice, she has nothing left to blame for the feelings of the mood disorder but me. I suspect she is getting angrier and angrier with me as time goes on.

I can not understand how asking her for contact can be so wrong. There was really no warning for this, and she must know it is reasonable for me to want to keep in contact so I can be at ease in my own mind that she is not unwell. One of the things she said to a relative was that she left me because I am manipulative and controlling, which is mind boggling to me as I feel have not had any control over my own life for the duration of the marriage. When pushed on it, she said that when she had a doubt about our marriage, we would discuss it and she would always feel better about it.

She had also said to me that I was always shouting at her. This is a real problem as I know I was not always shouting at her, it got to the point I was recording any argument, and then any stronger conversation to prove it to myself. A few weeks before all of this started she accused me of shouting at her in front of a family member that was staying with us. The family member told her straight that I was not shouting, but she just did not believe it.

I am trying to accept that we have lost to my wife’s illness. She is going to be robbed of the closest person to her, who cares for her and has done more for her than anyone in the world. I have given her 5 years of my life and seen her through to the longest period of stability she has ever had. I just can not believe she has made these radical and sudden decisions without being affected by the illness. It is just cruel that I have no contact with her so that I can not judge for myself what her state is. It might be because she knows something is not right that she is trying to avoid me. It might be that she knows she can not maintain a negative delusion if I interact with her. It is just horrible.

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@LowProfiler, it the illness by the sounds of. As I said the crisis team are as useful as a chocolate teapot, they never act when it needed. I would suggest speaking to both sides of the family for help before you speak to any of your friends as this can get messy. I would suggest seeing a mental health solicitor for advice but I would also suggest that you go to see the police and tell them the situation, I know they are cutting back on mental health calls but if you believe she is at risk then they can hold her under the mental health act. The crisis team, in house crisis team and any of the other mental health teams don’t like it when you throw at them the duty of care act which means they have to do something. You need support not just from family members and friends but you need help from the GPS. Do your best to get help and support for yourself and your wife. Contact your local councillor or mp as well if the mental health team don’t help or respond to the request and if you are involved in a meeting with mental health don’t be afraid to ask questions or ask them what is the outcome. It a lot to take in but you got to be strong. Keep in touch and if you need to talk to someone else at odd hours speak the samaritian as they do help their number is 116 123.

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I did speak to the police early on and all I got was a call back from a very angry policeman who had not had any contact with my wife saying my wife has left me and I was a controlling husband that would not accept it, which was somewhat upsetting.

The problem is that she seems to be getting by without attracting attention. Her medication is probably stopping the episode from becoming outwardly noticeable, and I am probably main focus. She told a relative she is struggling without my support, but I suspect she is angry with me for that too.

I am not sure what the crisis teams can do. I don’t know how they are seeing it. Ultimately she did ask to see the team, and she was assessed, although in the end I was the one that made the call that triggered it. But if they believe she is still sound of mind enough to make her own decisions, can they do anything more? Do they have a duty of care to act based on my assessment of how she is on the limited information that I have? If she tells them she just wants to leave me, and she wants to leave the country, and she tells tall tales about me, and they honest do not believe she is unwell even though it would probably evident if I was present, can they actually do anything?

At present the hospital outpatients team are very hostile to me and will only take information, they will not give me any information. The crisis team told me flat out they could tell me nothing beyond confirming she had arrived for an assessment.

I tried contacting my MP’s office about the visa issue, but it seemed quite limited what they could do. We are just running out of time, and she seems to be becoming more and more confirmed in her conviction. I still have this lingering feeling that would struggle to maintain her position if she was in contact with me. It is like she is trying to avoid me so her real feelings about me do not come up. She has never been out of contact with me for more than a couple of days, so it is so hard to see how this could change.

Unfortunately I took care of her well enough that she has never had a major episode in this country. I am starting to regret that now, as I realise if she did have at least one episode, I would be in a much stronger position. I walked away every time I thought she might be violent towards me.

@LowProfiler, the police officer should not have been hostile with you as you were raising a concern. You can complain about the officer or get another family member to raise the concerns.

As for the medical profession, they should not be hostile to you either but some are idiots. I do understand why they can’t tell you for confidentiality reasons but you could ask them what can you do to help her.

Some mp will hide their heads in the sand when some people ask for help.

If other people raise concerns they might listen or go to the newspapers about your treatment in asking for help.

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Hi @LowProfiler

I’m sorry I’m not going to be able to add much in the way of advice but I did want to let you know that you aren’t alone and there are others here who have been through similar. I was a young carer for my mother who also had severe mental health problems. As a family we all stood by her, helped and supported her, and made sure we did whatever she wanted (often to keep the peace). But the last time I saw her she had been sectioned and there was a family meeting. While all together and with the professionals present she said her daughters (myself and my sister) were evil, that her husband was controlling and manipulative and that she wanted the hospital to erase the fact we were her next of kin. As such we were never talked to again by the professionals involved and the answers given tended to revolve around, just because someone has mental health problems doesn’t mean they don’t have capacity, and people are allowed to make bad choices even if we don’t agree with them. Shortly afterwards my father received a petition for divorce (following 35 years of marriage) and none of us have seen her since. It’s really sad. As I said I have no advice, it’s been tough all round, but ultimately we weren’t allowed to be any more involved than she wanted. Thinking of you x

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I think one of the things that had really got me about this is how the people around my wife do not seem to be challenging this “manipulative and controlling” thing, they just seem to be thinking I am a bad man and they are enabling her to get away. It is amazing how people that claim to care are actually often so superficial in their understanding. When people are getting unwell with these conditions, they are often wanting to be unwell and they want to protect the excitement, or the delusion or whatever it is. They just see a well person. They have no idea what illness is or what it means. Carers should be identified and protected in these circumstances, and the loved one who suffers the condition should be protected from themselves.

@Michael_1910123 I’ve just wrote to my MP about the whole situation so that we have something down in writing as a contingency if anything changes in the coming days. They have already told me they can not do much about the visa with her consent thought. There is no way that she will give that.

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If anybody has got any ideas, now is the time to let me know. This week I sent a very long letter on behalf of myself and her father to the hospital where my wife is an outpatient. Working on the idea that it can only be a one way communication, I sent them as much information as I could, including a recording of a past outburst where she suddenly starting to rant very negative delusions about me, a video of an incident happening in public, explaining that she masks symptoms exceptionally well, advising that she has a history of late admissions that has placed her in danger, including an abduction which she somehow managed to escape without serious harm.

I repeatedly stated that they had a duty of care to prevent her taking action that would cause her to break the law, such as by overstaying.her visa. The member of the crisis team that came to see me yesterday for my own health told me she would contact the hospital to emphasize the importance of this week.

I was talking to the HR department at my work and they told me that it is unlikely that my wife has been able to ignore that visa situation because the way visas work now is that you have to enter a visa code into the wages system, and it will flag up and cause warnings if a code is due to expire. It is possible that she has already made decisions and plans, but she has not informed any of her family yet as far as we are aware. She seems to have not had much contact wither her family for a couple of weeks.

I have prepared a visa application and tomorrow her cousin is going to speak to her and mention that if she agreed to do the spousal visa, I will cover the costs, and she just needs to confirm her ID or attend the ID meeting, and nothing will have to change. She has been utterly hostile to any suggestion of my involvement in anything in any way up until this point, but I am keeping my mind open to the possibility that when we come to the crunch time around Thursday, she might agree to submitting an application. That then at least gives us more time for things to calm down.

I think the reality will be that she may already have plans in place to leave, and she will never change her perspective on me. Last week I met with a friend whose partner has a similar condition to my wife. I told her what happened and I asked her to tell me straight if she thought it was the illness. She said she might not come back, but it really sounds like it is the illness. I think we have just lost to the illness.

@LowProfiler, I would suggest speaking to a solicitor or advocate who deals with medical conditions especially mental health as you need some help and support on this. It is sad how this has played but it is all down to red tape and it needs someone who can help you with this.

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