Hi, appreciate this is an old thread but I’ve been googling to find a support network for partners of ME patients. I am based in the UK in my 30s & this thread seems to be the only place I have found anything. If anyone in this thread is still active I would love to hear from you.
Hi @Louise1992 and welcome. I’ve moved your post to a fresh topic soit will be noticed more - the old thread was over 5 years old and often they get revived by spammers…which you are not!
There are local support groups across the UK for people who have ME and their families. You can find out more here: Local Support Groups - The ME Association
You can search by postcode. Different local groups will have different types of support, but hopefully you’ll find some support that way as well as on here.
We’re a very mixed bunch here - most of my experience with ME and similar conditions is from my time working at a carers charity, but my caring experience has been across different conditions. Currently I care for my wife, who had an incomplete spinal cord injury, my oldest son, who has mental health issues, and my youngest, who’s 41 (eek!) and has autism.
Anyway, welcome aboard again - hopefully others will pop by and say hi!
@Louise1992 …welcome to the forum from me too.