My husband has had a stroke and has vascular Parkinsonism. I have been his carer for 4 years and I am at the end of my tether. I can’t do this any more. I see no light at the end of the tunnel.
Hi @Patsyknows,
welcome to the forum.
It sound like your husband has a very high care needs. Does he have paid carers coming in each day?
Do you think it’s time for him to have residential care?
1 Like
Welcome to the forum. Caring non stop for years is incredibly tough. Are you getting any support at all? Whilst Health and Social Services want family to care, the fact is that no one can be forced to care, not even for a spouse. The more support we have the longer we can care, but too often that support is too little too late, or non existant. My own health was ruined after years of caring. Mum went into a nursing home a mile away from me for the last year of her life. It was lovely just being her daughter again after years of struggling. I could pop in whenever I wanted and have quality time, knowing that whatever happened someone was always there to help her. What would you like to happen now?
1 Like
@Patsyknows Hello from me too and welcome to the Forum. You do sound burnt out. Do you have a local ‘Support for Carers’? May be worth making contact? I agree it may be time to step back and decide what YOU want. If your husband has very high care needs then it could well be time for a Residential Home. I agree with BB that NO ONE can be made to care and a lot of Social Workers and those working in the NHS do not seem aware of this. What do YOU want? No judgement here - we all understand how exhausting physically and mentally caring is.
@Patsyknows ….welcome to the forum from me too. Do you have any help at the moment, if not can social services arrange carers so you’re not struggling alone?