I am now very irritated by the lack of response by social services towards my son, more especially in the last few months. I have found myself being totally blanked by the allocated social worker and her general manager, who I have emailed twice for a response.
The latest request for a response was made to this general manager on 22/6/2020, asking her to respond to my email to her on 24/4/2020. I had asked for assistance during lockdown for my son. It has been 10 weeks since I first alerted the general manager of problems.
Neither she nor the allocated social worker has responded at all.
I strongly sense, this time around, that the lack of response is due to the minutes to my son’s meeting, which have been distributed to the service, by health, and the handpicked ‘history’ which is contained within these minutes. All the so-called ‘history’, is 3 decades old and not applicable to my son here and now. I am also aware the social services will do as they want with the information they have been given. I believe this is the reason they are ignoring me regarding my son, as they now believe my son primarily has A.D.H.D. and ‘challenging behaviour’.
After emailing the new locum, he has said he’s going to ‘address it’, that he’s intending to address ‘his’ minutes. However, he hasn’t done so, for the last 3 months, after circulating them. This is a worry, as is what is contained within them, and that social services appear to be adhering to making my son a non-urgency, due to what has been stated.
I find it absolutely appalling that there is also a non-urgency to rectify these matters if only to put it right for my son’s future. His future is looking bleak right now, due to the misinformation from the locum consultant. I believe it was done on purpose, in order to hamper my efforts to gain enough support for my son. The review is due to be done by social services of my son’s package of support and it appears to have been placed on longterm hold, by social services.
I am deeply concerned by this and the obvious complete ignoring by social services.
I have reason to be concerned, as I have had the experience of my son’s package being slashed and, of struggling severely after this was done. This time it is imperative that doesn’t happen again. I must say I have no faith in social services reviews of packages of support, as I have already had the situation of social care being able to tell an Ombudsman, my son’s seizures are behavioural and not part of his epilepsy.
How can I ever trust this department again? They even lied about providing respite and got away with it and it wasn’t a one-off situation, it was years of denying any respite. It wasn’t just an injustice, it was more than that. They lied to an Ombudsman, who in turn took their lies onboard. Even though, there was no evidence they had provided funding for respite, in the many years they hadn’t actually provided it at all.
It’s their dishonesty I resent the most.
One of the worst things is having to have social services ‘involved’ due to my son’s section 117 and they only appear when they want to try justifying a care cutting activity via review. Even if they can’t justify doing this, I have found they will ‘just do it’ and any excuse will be made, to do this.
This is why I’m so concerned about the ‘minutes’ to my son’s meeting which have been constructively written up by a consultant who now claims that he’s been ‘getting to know my son’ since early March. When he hasn’t so much as even met him in order ‘to get to know him’.
It is a false claim, by someone using their professional position to mislead other professionals, and at the same time making it official, within my son’s health file.
I have to ask myself why, would any consultant do that, and the answer coming back is because the previous one set this situation in motion. I have always known that was happening, but failed to view the file. That is even when I specifically requested to view them, I found myself being delayed and ignored. Also, barriers being set-up to prevent me viewing my son’s file and I did ask to view them, long before he was an adult even.
There’s obviously, much in my son’s files, that shouldn’t even be written or read by others.
I have mentioned, my son’s files contain information that could only have been gained as I had been meeting ‘the professional’s’ and speaking with them. Yet I have been denied access to see what is actually written. I have capacity regardless of whether my son has.
It is an important point, I am making.
These professionals mainly randomly demand my time and then they write in my son’s file and then don’t allow me access to see what they have written. It isn’t the case that I could ‘just trust’ what has been written does actually tally, with what I have said. So it is wrong to be denied access to my son’s health files.
From my experience, I am subjected to being ignored, even though I am advocating on my son’s behalf and it seems I am spoken to when it suits. I only make myself accessible for a short time before I am reminded, that nothing ever changes, in my experiences of contact with these services. I am not happy, with disregard and often wonder where they ‘get off’ about repeatedly doing it.
It is torture, to be in this position where my son is being ignored because he is complexly disabled and I am ignored when relaying my son’s health needs and social care needs. I find the worst way of communicating with these services is to speak on the phone or face to face, as that is the time where they will twist and totally misrepresent what I have told them. Either by dismissal or completely.
But when I email them or write, I often receive no responses. Both service complaint teams also dismiss and ignore my complaints about this doing. In the meantime, my son gets no proper services.
In fact, the mention of the roundabout, of epilepsy charts, has been mentioned yet again. I have completed these for up to 3/4 years solid at 1 stage, for absolutely nothing to come from doing this.
Is this just my experience or do others face similar experiences of being ignored by the services? Has it actually got worse since lockdown or the same as before?