It has been over a month since I met with senior members of the health team. I met with them at short notice in order to solve the situation of my son not having accessible health support. It solved nothing or hasn’t done and at the same time ‘they’ haven’t done what they said they would. Not any of it.
When I mention the lack of accessibility, that remains as a consequence of requesting a reassessment of my son’s needs 3 years ago. A part of which they conducted a review via a DST document. They messed up the first one and made me wait excessively for another meeting to take place. Much unfairness took place at the final one. The first one was a farce and so was the response I got from the service.
Finally, it was set-up to fail my son and his health needs by professionals making scoring decisions on the document when they weren’t even slightly familiar with my son or his disabilities and case. One ‘professional’ scoring for health left during the meeting. I believe this nurse was very obviously drafted in to do a job on my son which was to ensure he didn’t get full continuing health care.
And I was expected to ‘work with him’ afterward.
The same goes for the Continuing health care nurse assessor who was also making decisions after never even meeting my son. It was he who over-rode the whole decision making whilst at the same time doing my son an actual dis-service.
The ex-social worker and his manager did very little to get this situation overturned.
From it all, I never received one single written explanation of the decision from any of the professionals involved with it. It’s pretty much a poor show from the learning disability service who are only really there in name only. They don’t actually include my son in support from the service even though he is on the books of certain professionals and probably on the books of professionals I don’t even know of as yet.
I have been told, a nurse is allocated but she has only been ‘in touch’ on a withheld phone number, to arrange a 117 meeting…and she couldn’t do that properly. I turned up to it to find no-one in attendance and that was almost 2 months ago. I have not had any follow-up from her or her apology or her explanation and absolutely no further arrangements have been made or in the process, to resolve this.
Possibly, it could turn out to be an end of month syndrome…last port of call for the month….or more than likely it will be dragged out until after the Easter bunny makes an appearance.
Welcome to a learning disability service who are too rude and overpaid, around about now, to be considerate enough to exercise their duty of care to a client who is my son actually and he has learning disability…as well as uncontrolled seizures and autism.
They think it’s perfectly fine to ignore him…as if he’s not even worthy of ‘being a client’ of the service, judging on the actions of individual employees of that service and they think they are entitled to carry on with this. Obviously, they do as he is still not getting any services from the learning disability team and he’s not an ordinary client. He is a client in fact on 117 aftercare and they have chosen that for him, and for him to remain on it.
That was the decision taken by both health and social services…and made behind my back at the time, in the last few years. Regularly they ‘quote the costs of it’ to me and to any other organisation, who has ever become involved. More especially, when dealing with a case on his behalf. I have had all the quoting which has been read as a Riot Act, virtually every time I seek to gain justice for the lack of services that aren’t provided.
That fact, they pay paid carers just £9.00 an hour is never brought into the equation. The fact, they use me as an unpaid version of ‘the package’ also is never mentioned. Nor is it ever mentioned that it saves them copious amounts of funding which they would have to pay without my commitment.
Social services have even gone to the extremes of threatening me to do unpaid care. I would be ‘abandoning’ if I refused to do it…apparently. Not that I would want to refuse if it was not for the fact of an unlivable income which they have had every opportunity to resolve and they have not taken that opportunity even though I have applied for assistance and consideration of exceptional circumstance, some 3 years ago now.
Unpaid carers it seems, and according to ‘sod’s law’ which is administered by the likes of these types of professionals, is the way forward to resolve issues of unpaid care and carers who are ‘rebelling’ against its force. Then is the kangaroo Courts according to sod’s law itself. Of course, those administering this are encouraged to do so by their not so learned managers.
It is not this scaremongering that keeps me actually caring. I don’t do it for their benefit I actually do it for my son. They couldn’t actually do ‘sod all’ if I fully refused to do it and I never have refused either.
I did say as they have a kangaroo court ruling, that apparently no-one gets paid who lives in the same household, that I could move out and satisfy ‘the rules’. That is when the threats came about at the time of ‘we would consider’ you are abandoning. How exactly though as I would be coming back to care, if I chose that option.
To be fair, it was a stupid threat made by a social worker at the time who called himself ‘we’. But it goes to show exactly the forms of control used by the services, either individually or together. Then the end result was the social worker bailing out, ejecting from duty last month and officially ridding his own ‘duty of care’ in doing so.
I consider he’s moved house, so to speak, so in the same respect he’s abandoned the ship. This is now a problem for all future social workers who like him will do nothing, judging on my experience of that ‘service’ and in return, they will get nothing either. That’s how it is, as there’s only so much of a wild goose chase anyone could actually take.
Besides that, I have been awaiting an outcome to a meeting with two managers for over a month. A so-called nurse who’s supposed to be allocated to arrange another meeting but has taken nearly 2 months and counting to contact me and I have a number of outstanding issues which should have been sorted out years ago and one that’s been outstanding for 11 months.
I have added another ‘meet and greet’ camera and also replaced one. In preparation, towards the next installment of my home security which I am in no doubt will come in very useful, as all meetings will be taking place at my home from now onwards.