State of Caring Report 2019

This morning Carers UK has released our State of Caring report which shows the huge personal and financial cost of caring unpaid for a loved one.

The report is based on the results of our 2019 State of Caring Survey of over 7,500 people currently caring unpaid for family or friends, the majority of whom provide over 50 hours of care every week. Thank you to everyone who took the time to complete the survey.

Some of the key findings are:

  • More than two thirds (68%) of carers are using their own income or savings to cover the cost of care, equipment or products for the person they care for.


  • Two in five carers (39%) say they are struggling to make ends meet


  • More than half (53%) of all carers are unable to save for retirement.


  • 90% of carers don’t know what might happen to the practical support they receive in the future or worry that it might be reduced


  • 81% of all carers reported having felt lonely or isolated as a result of their caring role

You can read the full report at:
[url]https://www.carersuk.org/images/News__campaigns/CUK_State_of_Caring_2019_Report.pdf

We hope to get plenty of media coverage of the findings throughout the day.

Michael

Thanks Michael.

Findings ?

Will come as no great revelation … after all , most reading this post will have experienced the continuing meltdown across ALL
day to day caring scenarios first hand.

( Probably that 8.8 million figure came as a shock. Only recently , CUK stuck to 6.5 million despite AGE UK’s 7.8 million ? )

Latest quarterly figures from Trussells also due … that curve upwards … getting steeper ?

Still , good to see CUK will be getting some publicity soon.

As for us … as silent as the perverbial grave … with no visitors or mourners in sight ( Our plight media coverage. )

I’m getting an Error code :404 at that link.

Make that two , Ayjay.

This one works :

Prologue :

https://www.carersuk.org/news-and-campaigns/news/state-of-caring-report-2019

Survey results … 15 pages worth … in .pdf format :

http://www.carersuk.org/images/News__campaigns/CUK_State_of_Caring_2019_Report.pdf

Bottom line ?

" So what ? " … a change of policies to meet what said report reveals ???

( 7,525 … largest sample to date … 8.8 million family / kinship carers … 1 in every 1,170 … and those with Internet access.
If it’s bad for them , what must it be like for those low millions who cannot afford Internet access ??? )

Just love the NHS statement on emergency planning when the carer has a crisis … upto 100,000 mentioned … 8.8 million of us !!!

Are we to draw lots ???

Recommendations ?

I prefer NOT to be thrown off the forum !

The state of caring is grim.
So why on earth are so many people in this report smiling???

I’m having a really tough time this week after Social Services sent me a letter. I won’t divulge the contents at the moment, but it’s really upsetting. Of course I will challenge it and get it sorted, but I’m so, so weary of saying the same things, over, and over, and over again.
I’m not supposed to be doing any caring ever again, all I want is to know my son is safe, HAPPY, and healthy.
Last Friday he went shopping. Saturday did nothing in particular, Sunday he went to a car boot sale. 21 hours of care allowed for and this was the best they could do??? No walks in the New Forest on his doorstep, no trips anywhere, although the manager has an extra allowance for trips out?

So why on earth are so many people in this report smiling???

Could ask the same of the Greens / Reds choice of avatars , BB … a sense of … mocking ?

( At least they’ll be happy with mine … behind bars ? )

Grim ?

If it’s grim on your manor , spare a thought for mine … better still , a few cans for our food bank ?
( Just spotted … 6.5 million quoted at the end … map showing 8.8 million on FaceAche … which I nicked for a thread …
seems to be 2.3 million missing … should we put out an apb ??? )

https://www.carersuk.org/forum/support-and-advice/all-about-caring/now-8-8-million-of-us-the-bean-counters-have-finally-finished-their-nationwide-door-to-door-head-count-37579?hilit=8.8%20million

A forthcoming vacancy for a proof reader , me thinks.

Oh dear , FaceAche followers NOT happy !

Spare a thought for CUK … someone upstairs had to read it ?

For us , what’s new … we just look out of our windows , and ponder on our own miseries.

First report spotted … 5 food bank vouchers , whoopie ! … Daily Mirror POLITICS section ( ? ) again :

https://www.mirror.co.uk/news/politics/more-two-thirds-unpaid-carers-17554681


**Carers ‘bankrupting their future’ as HALF are unable to save for own retirement.

Care UK survey finds that 68% of unpaid carers are dipping into their own income or saving to cover costs.**


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More than half of unpaid carers are unable to save for their own retirement, a report reveals.

Some 68% are dipping into their own income or savings to help cover the costs of caring for someone else, according to charity Carers UK.

Its survey of more than 7,500 people across the UK who are caring unpaid for family or friends found that 53% are unable to save for retirement.

More than eight in 10 (81%) of carers surveyed are female.

Nearly two-fifths (39%) are also in paid work and the majority provide well over 50 hours of care every week.

Carers UK chief executive Helen Walker said: “This is a classic case of robbing Peter to pay Paul, with carers already providing high levels of support left short-changed as they use money for their retirement trying to cover the care costs of their loved one today.”

Many unpaid carers surveyed were aged between 50 and 64 - an age at which people tend to become more focused on retirement plans.

Carers UK said the findings show the huge personal and financial cost of caring for a loved one.

Some 39% of carers said they were struggling to make ends meet.

Twelve per cent carers said they or their loved one had received less care or support in the previous year, as a result of reduced support from social service.

Care UK says the issue of struggling carers needs to be addressed.

Ms Walker added: “Our current social care system is on the brink."

“Families urgently need affordable, high quality care services and carers need access to regular breaks and stronger workplace rights to ensure they can combine work and care if they wish to.

“The Conservative leadership candidates cannot afford to ignore this burning issue affecting millions across the country and must commit to funding and delivering a reformed system that has families at its heart.”

Carers UK said thousands of unpaid carers were "bankrupting their future to pay for the present”.
>



More than eight in 10 (81%) of carers surveyed are female.

( Does not reflect percentage of male / female carers in that 8.8 million … 42 / 58 … I wonder why ? )


TYPOS ?

Left in … a free food bank voucher for every one you can spot.

Suffice to say , a COMMENTS section at the bottom.

Could be a little more interesting than the above ?

The Guardian ?

Nothing so far … looking forward to their " View " … as opposed to copying and pasting from CUK !

Only the British Medical Journal so far this morning :

Cuts force unpaid carers to use own savings to fund relatives’ care.

Unpaid carers are being forced to use their own income or savings to cover the cost of caring for friends or relatives as well as providing significant levels of care themselves, a report by a UK charity has found.1

Carers UK, which represents unpaid carers in the four UK nations, said that chronic underfunding of the social care system was forcing many carers to buy equipment or products for the person they were caring for, leaving many struggling financially and unable to save for their own retirement.

( Need to subscribe / log in for the rest of the article )

I’ll continue to monitor major news sites for reports / spin off articles.

CUK FaceAche ? Comments increasing …

( Given the momentus news from New Zealand , everything else pales in insignificance ? )

Still no major news coverage … secondary sources are picking up on the expenditure aspect.

The use of the word UNPAID … without clarification … does NOT aid our plight !

Again , another important point they are NOT picking up on ?

If the carer is in dire straits , what of the caree ??? … No caree ? no carer ! … the partnership angle !

https://thiis.co.uk/unpaid-carers-financially-crippled-covering-care-costs-including-mobility-and-independent-livings-aids/

**Unpaid carers financially crippled covering care costs including mobility and independent livings aids.

Unpaid carers are “bankrupting their future to pay for the present” claims new research by Carers UK, with the charity calling on the Tory leadership candidates to put UK’s families first and commit to funding adult social care.**


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Surveying over 7,500 unpaid carers currently caring for someone, with the majority providing over 50 hours each week, the State of Caring Report 2019 highlights the huge personal and financial cost incurred by unpaid carers looking after family and friends.

With recent polling published by Carers UK suggesting there could now be as many as 8.8 million adult carers in the UK, the report shines a light on the financial cost of caring, with 39 percent of this year’s respondents stating that they are struggling to make ends meet.

According to the study, over two-thirds of respondents confirm having to regularly use their own income or savings to pay for care or support services, equipment or products for the person they care for, with that figure jumping to 78 percent for those identified as already on the breadline.

As a result, the financial pressure on carers is having a knock-on effect on their futures says Carers UK, with more than half of all carers unable to save for retirement, whilst those struggling financially are the hardest hit, using what little money they have spare to pay hundreds of pounds to cover the costs of essential equipment.

Helen Walker, Chief Executive of Carers UK, said: “This is a classic case of robbing Peter to pay Paul, with carers already providing high levels of support left short-changed as they use money for their retirement trying to cover the care costs of their loved one today.

“As it stands, providing unpaid care is pushing thousands of families into poverty and is having a lasting impact on their finances and quality of life.”

Aids to daily living and equipment for the home including hoists, grab rails and easy-grip handles for taps are identified as being the most common piece of equipment carers receive or buy, with almost half (48 percent) of all carers obtaining such equipment.

Additionally, 26 percent of carers confirm buying or receiving alarms, sensors and remote monitoring equipment, whilst 21 percent receive or pay for a Motability vehicle.

In addition, Carers UK highlights unpaid carers are at a higher risk of experiencing loneliness and social isolation, alongside struggling to juggle their paid jobs, leading to a reduction in hours, refusal of promotions or exiting work altogether.

For those on a low income or receiving Carer’s Allowance – the benefit for those caring for more than 35 hours a week at just £66.15 per week – the charity says is a never-ending struggle to make ends meet.

“Our current social care system is on the brink,” continued Helen.

“Families urgently need affordable, high quality care services and carers need access to regular breaks and stronger workplace rights to ensure they can combine work and care if they wish to.”

In response to the troubling findings in the report, Carers UK is urging the government to urgently put in place the financial and practical support that carers need, both in the short-term and over the longer term, to ensure the sustainability of the health and social care system.

“The leadership candidates cannot afford to ignore this burning issue affecting millions across the country and must commit to funding and delivering a reformed system that has families at its heart,” she finished.



That obvious question again … " … And ? " … over to CUK to answer that one without the use of the word LOBBYING ?

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“The leadership candidates cannot afford to ignore this burning issue affecting millions across the country and must commit to funding and delivering a reformed system that has families at its heart,” she finished.

Shall I delve into the CarerWatch archives from more than a decade ago to provide an answer to " A reformed system " ?

Almost all of which is just as valid today as it was then … even more so in many aspects.

( A recombined NHS / Social Care allied with a Carers Charter , perhaps ? )

Still zilch on the main media front … what’s been said has been posted.

Just before we close off on this one until next year’s Report , CUK would be wise to take in the comments posted on their
FaceAche page … all made independently of this forum , and without reference to the numerous threads that interlock with
the results thereof.

Straight off the cuff comments without a hint of malice … or detailed thinking … from the very soul ?

As for that word DIFFICULT … used to describe the current conditions in CarerLand … in future , please use the word TOXIC ???

Not just in some areas … at the end of all points on the compass … some now radioactive as opposed to toxic … finances and
supporting care services to name just two !!!

Birmingham next week … could be interesting … especially if you forget to pack the bovril ?

When you search for “Carers UK” the first details that come up are not for CUK, but for another organisation. This needs sorting, we need to reclaim the titled carers somehow, and get paid “carers” described as support staff.

If needed , I’ll have a trawl for the old threads on that issue … another one left unresolved.

Family carers … a definition that adequately spells out precisely what we do … as carers … more than a Swiss army knife …
given the nursing and doctoring roles many of us have assumed by default … not forgetting the legal advocacy roles in respect
of our carees ???

BACK TO THREAD … if there is anything more to add not covered by the numerous interlocking threads ?