Yep … know that one only too well from my own experience , Sally.
( Not so much a chain , more akin to an umbilical cord that refuses to fall off in many cases ? )
Nor does it help / assist lone carers unless …of course … they have the financial means to pay for it … including
the cost of someone to look after their caree in their absence … possibly on a 24/7 basis ( Less hours spend sleeping …
that Sleepover ruling again ! ) … 3 carees a day to avoid breaching hours worked under Employment law ?
Assuming , of course , said scheme is NOT free.
Waiting for CUK to confirm.
We were lucky that we could have found the money to pay, Dad had a good pension. But again Dad wouldn’t consent to the financial assessment, so that was that. Mum was left to struggle on 24/7. Through violence outbursts, sleepless nights, erratic behaviour, double incontinence. It was only when she was suspected of having dementia herself that things came to a head and even then they wanted to send him home from hospital with a care package in place for her to fend for herself at night, at time he was often at his worse. No one gave a cr*p about Mum and her well-being. She cared for him for over 10 years.
I honestly can’t think of any group in society who’s human rights in this matter are so disregarded and no one seems to care.
FaceAche response ?
Muted … replies slightly up on those in this thread.
Together as I type ?
-
Perhaps CUK will now take the opportunity to pad out this scheme ?
FREE or cap in hand job ?
Hit or miss … pop pickers ?
So, taking a break is a carer’s ‘fundamental right’? In reality, Id love for all those who received any funding to take a break to post their experience here!
Smoke and mirrors , R ?
Even our supporting organisations are at it.
Like being stranded in desert ( CarerLand ) … need water like yesterday ( A break ) and … along comes a Samaritan with
bottles of water ( Supporting organisations ) … all yours … if you have the money to pay for them ???
( A little premature … still waiting for CUK to confirm … free or … a cap in hand job ?
Their continuing silence means that the best price now available is 1 to 20 ON … in a two horse race ? )
It looks like a well put together collection of web pages with lots of smiling faces but basically money only available if you are destitute, sought every government benefit, and search numerous charitable organizations for grant or loan! And then it’s a lottery.
Web pages do look pretty though. Someone will have exceeded expectations for their goal/objective in their annual review.
Even the commercial bit.
Paragraphs and pretty pictures … sell the dream … draw the punters in … hide the cost / price in the small print at the
very bottom … hoping that said punter has already bought the product even without asking " How much ? "
In CarerLand , we know what snake oil tastes like … it’s constantly poured down our throats.
( Perhaps CUK will argue that their snake oil is superior to all others out there ?
Until we know the price , we await judgement.)
20 years of caring never had any support or break, only offered was to send my caree to a day centre about 4 hours a day, firstly, my caree doesn’t want to go to a day centre.
AND YOU HAVE TO PAY FOR IT.
And even if they do go to a day centre how abouts the evenings, night and weekends.
There must be human rights that an unpaid carer can have an evening out and enjoy themselves, evenings out have been very rare.
Unpaid carers should have a life on their own the government says.
And when you do get a break there is a list of rules as long as your arm, they cannot toilet, they cannot take the person out, they are not allowed to do food, a sitting service is just that a sitting service.
In order to give me a break, you need to have an exact copy of me, with my knowledge of equipment, I can toilet, I can take the caree out, I know what the caree likes, I get on and identify with the caree.
My carees are severely disabled, they need someone to go with them and help when they go out, there are services that take the disabled out for the day FOR FREE . BUT you have to pay for a carer-20 pound an hour.
Which in turn gives the unpaid carer a day off. But it is just unrealistic to expect a caree on benefits to pay 20 pound an hour.
So no day out for the caree, no day off for the unpaid carer.
Well said … and echoed by millions of fellow carers out there.
Live in the East Kent area, i get support from Crossroads link http://www.carerskm.org/ might be means tested which i think is fair but they do a lovely job and they sit with my wife for 3 hours a week, enough to take a deep breath.
Might help someone.
Yep … Crossroads well known to us … I knew of them a decade or so before their link up with the Carers Trust
A rep came on the forum a couple of months ago … offering something very similar to what CUK is now offering … at a
price … thus ruling out 3.8 / 3.9 million carers immediately … eat / heat / roof being their daily juggling act … and
probably a couple of million more once the costs of looking after their caree are factored in.
In essence , for every 100 carers in the mire … only 24 could afford to pay for the rope thrown to them ?
Of that 24 , how many sinking further into debt … some borrowing from family members and not outside sources ?
I hope it’s not from their caree … opens up yet another case containing cans of works …
Hi
The link doesn’t work.
Sally raises an interesting point, that of Human Rights.
I have previously raised the issue of carers needing rights similar to employment rights, specially holiday pay.
Maybe CUK could consider a campaign based on human rights for us instead.
Plenty in our Lord Kitch to form the basic of whatever.
Part of THE move back towards a real CARERS CHARTER ( 2008 - 2009 ) … which would set out who we are / what we do / what resources we should have … in essence , redefined as a " Clog in the wheel of social care " … with a status under ALL law … just like any worker but falling short of that definition ( Thus still giving the System the upper hand … the trade off ? ).
No more " Rights " … which exist on paper but … need a carer to either enforce or take legal action … the provisions of the Care
Act , 2014 , being a prime example in 2019 … especially when dealing with the LA cuts.
BACK TO THREAD … and in anticipation of CUK spelling out … free or cap in hand job ?
( The book has now closed on that one ! )
Is the Charter on the internet anywhere? Maybe it need reviving?
Yes … inside the old CarerWatch site … we were creating and developing it until we hit that brick wall … the last
Green Paper in 2009 … everything we had worked towards for 2 years prior just tossed out into the rubbish bin by
the CarerKillers at that time , Pink Labour … aka New … The Labour Party.
( 2019 … our Lord Kitch … created from the original CARERS LETTER … which was in turn a precis of the ideas and
solutions we came up with by the time that Green Paper was due. Strange … most of the solutions are even more valid
today than they were a decade ago … many , even more so ! )
If a consensus , I’ll start a stand alone thread … copy , and then paste over. NOT A THREAD FOR THE FAINT HEARTED …
mindset needed … thinking of CarerLand and , NOT one’s own situation !!!
NOT a " CarerWatch mark 2 " … not enough expertise on this forum for starters. Outside help in specialist fields would be
needed as the first priority … then , general agreement towards a clear and concise target.
( Just like this forum … there will be relevant bits scattered amongst other threads … that word INTERLOCKING again. )
BACK TO THREAD !!!
Any indication of a commercial tie spotted in your findings , Moonlight ?
( I must confess … I haven’t watched the video. )
Or , just a case of visiting a market … and all stallholders are selling the same product at roughly the same price … each
encouraging you to purchase from them as theirs has something special ?
Half those loking cannot afford the price being asked.
For sure you need to taking a break,after it u will understand what u needed
