@Jackie66 I’m glad to hear the social worker has arranged things for you despite the inaction of the GP (Ugghh!)
I would’ve hoped there’s nothing to pay if its part of NHS continuing care but I’m not familiar with these things and given you’ve no computer or printer I’m hoping the social worker can do what’s necessary for you moving forward.
I’ve recopied the Carers UK helpline above…you may feel reassured if you talk to an expert about all this, especially the finances.
Keep us posted on what happens, big hug
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@Victoria_1806 It would be good if GPs did help, mine certainly didn’t and I did it all myself.
The library would be able to print forms for you @Jackie66 and I always found them really useful generally in giving advice on using forms etc.
I would also use the helpline in filling out forms as @Victoria_1806 has suggested.
keep coming back for advice, there is a lot of expertise here to help.
Keep us updated
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Jackie, after a Carers Assessment you could say that you needed a printer to help with all the forms. After a battle I have gym membership and counselling funded, but it’s actually up to me what I spend it on!
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Hi do you mean the financial assessment ihad that last week and its come back its not the full charge im being billed for but a substantial amount and im probably going to need to use the bit of savings we have, actually i am having councelling i have had it for almost 3 years following the car crash we were in and our car rolled over my nerves are shot im very anxious but im thinking i will probably have to reduce or cut my therapy just when i need it more so i will mention this to the social worker but im not really expecting anything from her. I dont have a computer now and twnd to use my samsung notebook or phone for emailing. I spent the afternoon with John and asked if i could have tea with him today, he was given jam sandwiches for tea the 2nd night in a row he is a vegan so its hardly a good diet and when i said to the nurse are you aware im having tea with him she said ive only got jam sandwich the manager hasnt done shopping, im not a snob but felt upset i turned it down and had just a cup of tea. I often take bags of nuts in for him, soya desserts, fruit, strawberry drinks i feel very fed up and ive told the social.worker today in an email that i dont really feel the place is suitable but i like most of the carers
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Im having difficulty thinking with my head i am struggling with the way he was walking when he left to.go to the 2 week respite and now hes stuck in a chair all day, i dont even like having a day to myself i hate to think of him alone
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Thankyou ive emailed the social worker im just hoping ahe will help regarding the forms, im feeling very overwhelmed everythings happened so fast, its so hard to see him change so much the sepsis has worsened the dementia i think
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Hi @Jackie66 the financial assessment you’re talking about has nothing to do with Continuing Healthcare. It’s a standard social care one. But the situation has changed with your husband’s increased needs and the social worker needs to do the CHC checklist to ensure your husband (technically it’s his bill, not yours) isn’t paying for care the NHS should be.
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@Jackie66 as @Charlesh47 has said you need to get the CHC assessment as you should not pay anything for his care if he meets the criteria.
On the checklist there are certain points to check:
- 2 or more domains are selected in column A
- 5 or more domains are selected in column B, or one is selected in A and 4 in B
- one domain is selected in column A in one of the boxes marked with an asterisk (meaning those domains that carry a priority level in the decision support tool) with any number of selections in the other 2 columns
Here is a link I found for the checklist
NHS-Continuing-Healthcare-Checklist-guidance-2022.pdf
Your husband’s needs have changed considerably and this needs to be completed, I did my parents myself but you should ask the social worker to help you. Otherwise CAB are helpful too
Your head must be in turmoil with all that has gone on and the changes in your life.
Hugs
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Just some things on the checklist
Breathing, feeding, continence, bed sores etc.t, is he continent? This would be column B
These are the sort of questions on the checklist which will help in the assessment
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If you haven’t already paid for the respite, don’t, for now.
Talk to the Carers UK helpline who can go over your financial situation in confidence.
I strongly suspect the financial assessment was fundamentally flawed.
With regard to the car accident, have you made a claim for, and received any compensation?
My life changed forever when I was hit head on by a car sliding sideways straight towards me. I couldn’t walk for 5 years.
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From what you describe, it seems that you would benefit from someone helping you. You can ask Social Services to arrange a “Care Act Advocate”, someone who can get to know your situation and support you at meetings.
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The driver who cause the crash drove off never seen again. We put in a claim for the car and thats it. We both were fine really after the accident. I had a bit of physio and thats it, john didnt really go out walking after, low confidence but there was no sign of dementia being caused by accident but ive always thought it sped it up, i have no proof. He didnt even see the gp after until over a year later
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I had my knee replacements paid for, and other things, but as the years have passed I’ve become more and more disabled. I was holding the steering wheel at the time of the crash, hit so hard that it shortened my late husband’s Range Rover by 2 feet. I have painful fingers, wrists, elbow and shoulders. Sometimes it hurts so much to cut a carrot they I use a slicing machine instead. Worst of all sewing, my only real hobby, can only be done in short bursts now.
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Im guessing your knees were injured and you realised straight away? It sounds very painful im sorry you went through so much, these things take their toll on the body sometimes later, it has to come out somewhere and with me its anxiety.
John was more jumpy after but i thought it was a natural reaction.
Did the person stop who caused your crash?
I emailed the social worker back earlier today she wants a meeting next Friday with the manager of the care home, she said the nhs funding will be looked into then as part of it.
Ive been told i will receive an invoice in August so i still have time to ring the number you recommended, i have a feeling its been reduced as much as they can but i will still double check.
My Daughter struggles to get to the home as well as she has cerebral palsy and walks with a frame on wheels now, its costing us in taxis so a nearer place would be better if one comes up. I have got to know some residents and would muss them but will see after the meeting
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Thankyou ive been in contact with the social worker and she said it will be looked at next week at the 6 weeks meeting with care home manager etc thankyou for explaining this is overwhelming at the moment i dont know what im doing
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Yes im feeling exhausted nowbut plodding on somehow i just hope i dont get unwell. Thankyou for the information im going to look at that, social worker said its part of the 6 week meeting nexy Friday so will see. It woukd certainly take some of the strain off but i miss him so much…they say you dont know what you have until its gone
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Thanks i didnt know of this, wonder if it can be in time for next Friday
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@Jackie66 I hope it goes well, can you take someone with you. There will be so much information to take in that having another person with you will help remember.
Take a notebook to jot things down and ask them to explain terms. They will use acronyms which you may not understand, stop them and ask them to speak plainly.
You may feel your social worker is on your side and some are very good but another person with you who is just there to take notes etc would be really useful for you, support etc.
You are coping with a type of grief as you miss him so much. You are also coping with a mountain of admin that you would not be able to cope with at the best of times.
Come here for help and support
hugs
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Ive asked her for the advocate she said they are only available for statitory meetings, i dont have anyone else sadly my depression became so bad at one point i isolated myself. My Brother doesnt speak anymore. Its just my and my Daughter and she will struggle to i expect
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@Jackie66 that is such a shame, as there will be a lot to discuss and lots will go over your head because of the volume of it, and you are in shock with the current situation.
Perhaps ask if you can record it? I would suggest also not making any decisions but end by sayin you need to take time to consider your options.
They may say you have to make a decision but you don’t, just say you can’t as you have a lot of issues to take into consideration, not least your caring for your daughter too.
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