Husband very unwell

@Jackie66 I’m glad to hear the social worker has arranged things for you despite the inaction of the GP (Ugghh!)
I would’ve hoped there’s nothing to pay if its part of NHS continuing care but I’m not familiar with these things and given you’ve no computer or printer I’m hoping the social worker can do what’s necessary for you moving forward.
I’ve recopied the Carers UK helpline above…you may feel reassured if you talk to an expert about all this, especially the finances.
Keep us posted on what happens, big hug

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@Victoria_1806 It would be good if GPs did help, mine certainly didn’t and I did it all myself.
The library would be able to print forms for you @Jackie66 and I always found them really useful generally in giving advice on using forms etc.
I would also use the helpline in filling out forms as @Victoria_1806 has suggested.
keep coming back for advice, there is a lot of expertise here to help.
Keep us updated

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Jackie, after a Carers Assessment you could say that you needed a printer to help with all the forms. After a battle I have gym membership and counselling funded, but it’s actually up to me what I spend it on!

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Hi do you mean the financial assessment ihad that last week and its come back its not the full charge im being billed for but a substantial amount and im probably going to need to use the bit of savings we have, actually i am having councelling i have had it for almost 3 years following the car crash we were in and our car rolled over my nerves are shot im very anxious but im thinking i will probably have to reduce or cut my therapy just when i need it more so i will mention this to the social worker but im not really expecting anything from her. I dont have a computer now and twnd to use my samsung notebook or phone for emailing. I spent the afternoon with John and asked if i could have tea with him today, he was given jam sandwiches for tea the 2nd night in a row he is a vegan so its hardly a good diet and when i said to the nurse are you aware im having tea with him she said ive only got jam sandwich the manager hasnt done shopping, im not a snob but felt upset i turned it down and had just a cup of tea. I often take bags of nuts in for him, soya desserts, fruit, strawberry drinks i feel very fed up and ive told the social.worker today in an email that i dont really feel the place is suitable but i like most of the carers

Im having difficulty thinking with my head i am struggling with the way he was walking when he left to.go to the 2 week respite and now hes stuck in a chair all day, i dont even like having a day to myself i hate to think of him alone

Thankyou ive emailed the social worker im just hoping ahe will help regarding the forms, im feeling very overwhelmed everythings happened so fast, its so hard to see him change so much the sepsis has worsened the dementia i think

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Hi @Jackie66 the financial assessment you’re talking about has nothing to do with Continuing Healthcare. It’s a standard social care one. But the situation has changed with your husband’s increased needs and the social worker needs to do the CHC checklist to ensure your husband (technically it’s his bill, not yours) isn’t paying for care the NHS should be.

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@Jackie66 as @Charlesh47 has said you need to get the CHC assessment as you should not pay anything for his care if he meets the criteria.
On the checklist there are certain points to check:

  • 2 or more domains are selected in column A
  • 5 or more domains are selected in column B, or one is selected in A and 4 in B
  • one domain is selected in column A in one of the boxes marked with an asterisk (meaning those domains that carry a priority level in the decision support tool) with any number of selections in the other 2 columns

Here is a link I found for the checklist
NHS-Continuing-Healthcare-Checklist-guidance-2022.pdf
Your husband’s needs have changed considerably and this needs to be completed, I did my parents myself but you should ask the social worker to help you. Otherwise CAB are helpful too
Your head must be in turmoil with all that has gone on and the changes in your life.
Hugs

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