S has finally been awarded extra money each month as he has passed ( or failed, depending how you look at it,) his work capability assessment. This will trigger a fairer charging assessment. The fairer charging assessment considers disability related expenses. These totally disregard autism specific stuff and only recognise things like incontinence products - which S doesn’t need.
At the same time, his ASD club has just doubled the cost of its club, for those needing 1 to 1 ( like S,) to £20!
I’m anticipating Fairer charging will not agree to recognise this as a disability related expense as they will say it’s a non essential hobby. However, it only costs S and others with high needs, this much because their disability means they need 1 to 1 support to access the club.
I need legislation/ arguments etc so that I’m prepared for when I have to argue this.
Oh no,another fight on your hands. Its going to be a managed/ not managed needs argument maybe. If S doesn’t go to the club,his needs won’t be managed. He needs the club with the one to one, or he can’t go. Not going will have have a detrimental affect.
Think going to an ASD club should come under his assessed social needs. Make sure it is written into his care plan as such and you should get specific funding for it, and anything else that he is assessed as eligible for.
As I understand it Disabilty Related Expenses are items of expenditure that are “ring fenced” I.e. disregarded before they then calculate his finances. Examples might be extra heating costs or costs of special food, maintenance of elctric wheelchair etc.
For S something such as purchasing head phones would be DRE but attendence at club and special Olympics, and the transport thereto and carer to accompany would be written specifically into his care plan and funded.