Caring for someone with ASD and psychosis awaiting adhd diagnosis also now

Hi all new to this forum but not to caring ! Done it for years no real help no support ( other then my carers support ) but support for my son unfortunately been awful from mental health which then puts the pressure on me. He’s complex and has episodes of psychosis and the anxiety it causes me is getting to much now and I think I’m going to have a breakdown and don’t know what to do anymore. I feel totally lost and alone can no longer work ( had a good career ) due to my role now and the pressure no way could I work. Just need some hope :pray: anyone can relate this situation please and where the person who is mentally ill “ think they are gifted and psychic etc “ it’s so hard as no one will help unless he asks for help and he won’t. I’m exhausted now and it’s draining me and listening to all of the delusions etc and been supportive. We are all human and I’m the only support he has. Wont let or want anyone else to help him.

1 Like

Hi @Supernerogirl

Your caring situation for your son sounds very stressful and isolating.

Have you spoken to your GP about how you feel and how your caring situation is impacting on you?

Are you able to get out of the house each day even if only for a walk and some fresh air?

I think the best thing you can do whilst your son is waiting for a diagnosis is to look after your own well-being. Not easy, I know. This will benefit the both of you.

This information from Mind might be helpful, if you haven’t seen it already:

https://www.mind.org.uk/information-support/helping-someone-else/carers-friends-family-coping-support/

Thank you :pray: it can be overwhelming as we all know and then somehow we re set the next day. I just wish there was more support for my son. Mental health just don’t listen unfortunately he doesn’t even have a social worker ! It’s ridiculous. Thanks for replying though :heart:

Hello @Supernerogirl

Thanks for joining Carers Connect and for sharing some information about the impact that looking after your son is having on your mental health. It sounds like this has been a really difficult time for you and in addition to the helpful support suggested by Melly1, I hope the following organisations may also be of help:

  • Rethink Mental Illness https://www.rethink.org
  • Shout is the UK’s first 24/7 text service, free on all major mobile networks, for anyone in crisis anytime, anywhere. It’s free to text Shout on 85258 from all major mobile networks in the UK. You can find more information on their website: https://giveusashout.org/
  • The Samaritans are available at any time to provide a listening ear and can be contacted by telephone on 116 123 or by email at jo@samaritans.org

You would also be very welcome to join one of Carers UK’s weekly Care for a Cuppa sessions which are held on Zoom. This is a really friendly and supportive group of carers and former carers from all areas of the UK, and our sessions provide an opportunity for you to talk about how you are feeling and the challenges you are facing at the moment with other people who will understanding what you are going through.
www.carersuk.org/cuppa

Wishing you well

Michael

Thank you :pray:

Kindest regards
Deborah

“ Be the change you wish to see in the world “