Carer for partner and sister

No she lives about 25 miles away in Manchester (i live in Cheshire). I keep tabs on visits etc, via a camera and use an alexa to speak to any medical visitors as she gets confused and tells them what she thinks is right in her head (or what she wants them to believe). The care company have given me access to the carer notes, which helps keep tabs on her eating and drinking.

She is 77 next month

2 Likes

Do you manage her money? She should be entitled to Attendance Allowance and EXEMPTION from Council Tax.

Caring at a distance is very difficult.

1 Like

Sending you much love and support. We’ve all had days like this.

The tears that you cried in front of him have jolted him out of his comfort zone with you. Take advantage of this 'crack’ in your relationship to seek change. Moments of courage to change your situation come rarely - don’t let it slip past you.

You don’t have to do anything drastic, but small changes can have a massive impact on your wellbeing.
As someone else suggested, you can encourage your husband to get out more. This would give you some breathing space. Or you can carve out some me-time.

Small steps, love.

1 Like

@Kazzy65 , I know what your going through, I too just broke down and cried (I don’t do that often). It was around Christmas 2025. I’m use to been lonely, sometimes I enjoy the peace and quiet. But for me, there is peace and quiet and eerie silence. I didn’t feel festive that day. I’m glad to hear you have POA regarding your sister. I’m currently doing something similar via Court of Protection. I haven’t finished to paperwork yet but, I’m getting there albeit slowly. I like yourself am juggling lots of things at the moment. I’m glad you are using this site to vent. I don’t know if you’ve done this but, try and find out if you can have respite care for your relative. Can’t hurt to try. :folded_hands:

2 Likes

@bowlingbun She gets Attendance Allowance and is exempt on her council tax.

I also tried for the pension credit and ahe got it, including the top up. We use this to pay for her befriender visit each week

2 Likes

@Pujibob thank you.

It is difficult as he is not very sociable, whereas I am. I have to coax him to go to meet ups with friends / family and once he is there he is OK, it is the initial getting him there.

I am back on track again, it is just a build up over time and then you need to release it with a good scream or cry. I just don’t normally do that infront of my husband!!! Maybe it has made him realise (until the next time)

3 Likes

We did try for respite, but my sister flatly refused to go. As she said this, they said she has capacity and cannot be forced to go.

It drives me nuts sometimes. We have a POA but because she can say yes or no, even if it is not in her best interests, we cannot do anything. That is why she was sent back home after her assessment 3 years ago and ended up with the care package.
You should never feel like you are alone, there are so many of us on this forum (granted we cannot all get on it 24/7) but it is such a help and I guess a lifeline to help us cope with the care issues.
Stay strong, its a long difficult journey, but you don’t have to go through it completely alone

3 Likes

Has she had a Needs Assessment from Social Services? If she is on Pension Credit there is a strong possibility that they would pay for her befriender.

1 Like

Loneliness is something I’m used too (not that I like it).

1 Like

The council come round to do an assessment, but never mentioned anything. My sister has to contribute to her monthly care bill, due to her state pension and now the pension credit. It means the attendance allowance doesn’t cover the full cost of the bill now :confused:

2 Likes

Maybe check with our CUK helpliine that they’ve applied the rules properly?
Did they give you sister written information about their calculations? If not, it wasn’t done properly!

My top tip to everyone is ā€œNever trust a social worker when it comes to maths or assessmentsā€.

I reclaimed Ā£8,000 from Hampshire when they didn’t do her assessments properly.

(I once turned finances for a small hospital round from worst performing in the state of Western Australia, to best performing, in two years, with nothing more than a maths O level!)

2 Likes

It’s sad that it comes down ā€œcounting the penniesā€ on the social services part. Or as I call it, ā€œprofit over peopleā€. Sickening.

2 Likes

@Kazzy65 Thinking of you. It is so isolating and I have never felt so alone as I have done last few days. But this is a very supportive Forum and we do understand. My heart goes out to you regarding the death of your beloved dog.

3 Likes

Most social workers I’ve met can’t even count!

I have lots of accountancy experience and realised that my son’s carer was stealing substantial amounts of money. Whatever the balance left was in his tin on Sunday evening, according to the paper records, ā€œdisappearedā€ by Monday morning. I reported this to Social Services, the head of LD had a look and said she could see nothing wrong. I drove to my son’s home to get the records, then right across to the other side of the New Forest to show her, then home (78 miles for this journey in total). When I showed her what was wrong, she said ā€œthat’s terribleā€ but she had never noticed herself. She is now one of the most senior officers in Hampshire Social Services! I rest my case.

2 Likes

@bowlingbun, Oh no! Sorry to hear that. I hope your son got his money back and the SW thief was caught. Once again, this shows a very broken system. It saddens me that head of LD got a promotion for sheer incompetence. I wonder what favors did she pull to get this position? I also wonder how these people became social workers? It’s another case of ā€œone rule for them, other rules for usā€. Your case I reckon is one of many reasons the system should be overhauled. It shows in our case plus others, we are been treated like we’re nothing to them. It’s a shame that we can’t name and shame them. :zipper_mouth_face:

1 Like

Thank you. I know, this forum and a group I was on, on Facebook for dogs with Cushings and Kidney Disease have been a godsend to me tbe past couple of months. It is being able to connect with people in thr same situations. Sometimes you just need a few kind words so you know others understand.

1 Like

That is awful - I have a camera at my sister’s so I check in regularly and go through the footage each day. This is how we found a befriender that we were paying an hour for, only staying for 30 minutes. I could video capture the info to send to the care agency.

The Head of LD here was convicted of possessing many indecent photos of minors and deregistered for life!

2 Likes

I hope he suffered a little more than that…

1 Like

@bowlingbun, :open_mouth: OMG. I guess karma has given him a kicking. Rightly so. It made me wonder how long has the LD ā€œpossessedā€ these images?