Hello I am new here and not sure how this works. I am my husbands primary care giver and have been for a long time. He has atrial fibrilation, angina, heart failure, osteo arthritis and a old back injury that is causing mobilty issues, he has anxiety and panic attacks and is housebound, he is also having a lot of memory issues like not being able to find the words he wants and unable to recall how to do things. . There is no family to talk to or help out. Some days I feel overwhelmed and I know that sounds pathetic. I am 71 and my husband will be 74 in a couple of days time. It would be nice to know I have a place where I can talk about things and not feel judged. I havde talked to the Doctor and District Nurses and they do what they can to help.
@Autumn_Moon….welcome to the forum. It sounds like you have an awful lot that you are dealing with. I’m not surprised you are feeling overwhelmed and it doesn’t sound pathetic at all. My husband has osteoarthritis along with severe mobility issues and has had a lot of other health issues, he too was pretty much housebound and had anxiety/panic attacks as well so I understand how hard it is and how you feel. I’m glad you’ve reached out to this forum. You’ll find a lot of support here and it’s a chance to say how you feel without being judged. You’ve mentioned district nurses but do you have any help from carers?
@Autumn_Moon Welcome to the forum. as @Sue24 says, there are lots of friendly souls here who have tons of empathy and understand what you’re going through. Definitely no judgments here! Several giggles, and jokes though!
I cared for my Dad who had similar heart issues with AFib, congestive heart failure as well as Rheumatoid Arthritis and cancer so I understand how you get overwhelmed with everything. You don’t sound pathetic at all. It sounds like you’ve had a lot on your plate for a long time with only minimal support, if any.
Do you have any friends locally or who you can call for a chat?
You may like to join Carers UK Cuppa chat: Care for a Cuppa | Carers UK
It may be worth talking more to your GP about the memory issues or perhaps an Admiral nurse: What is an Admiral Nurse and how can they help? - Dementia UK
Unfortunately heart issues can lead to vascular issues and in turn memory/brain issues so if you haven’t already ask your GP about local support for yourself
Here’s a useful link about getting a Carers needs assessment done: Needs assessment | Carers UK
I hope you’re managing to get sleep amidst all this, especially with the heat and humidity we have right now! Sending best wishes and some hugs!
Victoria
Welcome from me too. It’s important to recognise when you are over tired. You’ve done too much for too long without enough help and enough breaks. Everyone here knows what that feels like, so you are in good company. Money doesn’t make anyone better, but it can make caring easier. Is your husband claiming Attendance Allowance? Did you know that from the date AA is claimed due to a severe mental impairment, he is then exempt from Council Tax? It’s easy to claim and can be backdated. Have you had a Carers Assessment from Social Services? There may be Carers Groups near you with activities for carees.
When I was disabled in a car accident, I used my benefits on a dishwasher, a large capacity washing machine and large capacity dryer. I call them my Mechanical Slaves.
@Autumn_Moon Welcome from me too. I think many of us can relate to your post - caring is exhausting.
I cannot really add much to the other suggestions. Roll Call is a great place to share the ups and downs of caring. Lots of empathy and support and some humor (albeit black at times) but it has been a lifesaver for me. The regular posters truly ‘get it’.
Also if you have a local Support for Carers may be worth making contact? Mine has regular meetings which I do not go to but I do have a Telephone Befriender. Often they have been Carers themselves.
Hope to learn more about you over the next few weeks. Just ‘lurk’ on Roll Call and share as much or as little as you feel comfortable with.
Welcome - I agree with everything said above. Always welcome here and no judgement from anyone.
Welcome @Autumn_Moon, also new to the forum and seems like a great place to share, vent and listen, which always helps. Friends don’t always want to hear about the tricky things in life, particularly if they don’t have experience of caring. Hope you get lots of help and company in here.
Hi @Autumn_Moon
welcome to the forum.
I hope you find it friendly and supportive . I see lots of our regulars and newer members have welcomed you already.
There is a lots of experience on here to sound out ideas and come up with suggestions to make life a little easier. Caring is tough!
Feel free to join roll call for a ‘chat over the garden fence’ kind of chat when you feel you need a break from caring.
You may also enjoy the virtual meet ups run by Carers UK. @Victoria_1806 has put the link in her post.
@Autumn_Moon
Another welcome to the forum from me!
I’m an ex carer but certainly know how draining and heart breaking caring can be.
Have been with the forum since 2016. Found it very supportive. Had my own thread but often had a chat on roll call about other things. Still do.