Hello, was wondering if anyone had any experience of caring for someone with MND. We have carer hours but my partner refuses personal care which limits the benefit to me. Any suggestions would be appreciated!
Hi @Magnifica
Welcome to the forum.
I juggle work and caring. I care for S he has autism, related learning disability and health needs. He communicates with a talker.
There will be other current and former carers with experience of carees who require personal care.
Do you think your partner would accept personal care from a same-sex carer?
Some of my clients at work have MND, it’s a cruel condition and tough on the whole family.
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Welcome to the forum. If your husband is refusing to allow the carers to do personal care now, are they doing things which would help you in other ways? Cleaning the house, meal preparations etc?
@Magnifica Hello, I’m sorry i don’t have any experience of caring with anyone with MND. I carer for myself but I had an idea but I don’t know if it would be of any help, you put you have carer hours So do you have the same people that come all the time or can it be different people and do you have carers to help you during the day or just morning with just referring personal care.i thought like Melly has said could They have a same sex carer for there personal care and the same person. So that they got to know them and built up a caring relationship with them . And perhaps the first time they met them wasn’t to care for them just so that they had met Before caring for them and then if it was the same person it would make it easier. Could that possibly help.
I don’t have personal experience of MND caring, but it’s quite common for people with care needs to reject personal care from anyone other than a loved one. For one thing, it’s a bit scary - they feel very vulnerable and exposed (in more ways than one). Then there is the “man thing” about not being Superman any more. It’s embarrassing, and takes quite a bit to get over.
Coaxing him to accept that is the only way you’ll get a break. Perhaps try to get him to talk about it? Otherwise as @Melly1 says, see if he’d accept a male care worker?
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