Hi @RachelK - sorry I’ve been a bit quiet for a couple of days and not offering much support. Thx to @Victoria_1806 for the nudge. I think she did it cos I had quite an experience over Carers Assessment and I have fairly strong views.
Graham (hubby) had a stroke at New Year 2022 but started to make a reasonable recovery. Not enough to prevent me having to close our medical practice with little warning and no chance to sell it on. The result was that we had no income but G was able to claim his state pension (timing!!). Due to being quite careful we had savings which meant we can get little or no state support. Then things went downhill and he suffered one medical set back after another. I have LPA (we both brought up the topic one evening which was ‘interesting’) so I went ahead and claimed AA for him and when that was awarded I claimed CA.
The AA form was a nightmare and needed so much detail. If you haven’t already claimed I suggest you are brutally direct with your answers. Make a note of just how many times and for how long you are up every night with personal care needs. Include changing bed/assisting shower or bath.
When it comes to the Carers Assessment as has been said - this relates to YOU and YOUR NEEDS so don’t be confused about that. Again you have to be blunt with what help YOU need and how you would like to see that put in place. The form I received (by email) read like a ‘Human Resources’ annual performance review. Questions like ‘How do you feel you are coping in your role’; ‘How do you see your role developing in the next year’; What do you need to help you in your role’; ‘What are your priorities in your role for the next year?’ You should have heard my comments when I read that piece of (expletive deleted)…
I completed it and emailed it back as I had been told it was just a form to initiate a discussion about my needs. Imagine my shock when I got a letter from our local Council stating that I had been party to a discussion about me needs and ‘it appears you do not wish further assistance at this time, however the Council is prepared to award yo a grant of £200 towards gym membership which you mentioned.’ I replied asking when and where the discussion had taken place - and heard nothing back until I lodged a formal complaint. This was passed back to the Carers Support Centre as the official stated they were the Council’s Contractor. @Charlesh47 pointed out that they cannot delegate their responsibilities under the Care Act but I was brushed off again with a call from the Carers Support Service. They kept asking which of their services I thought would be of use - and I replied I did not know WHAT services they provide so how the heck do I know?
They eventually said that the only thing which may be of help was a monthly zoom meeting. I joined two of them and gave up. The only bit of interest was a Walk and Talk group - but when I asked about where they are centred I found out it is the other side of Bristol - 45 minutes drive from home… A waste of time.
I am being negative and perhaps I needed to review the form and change my answers. You will need to be direct in your answers and not be fobbed off with platitudes so spend a little time working through a typical week and seeing where YOU need some support or want time out from your Caring Role. Dont try to see how YOU will develop as that’s a load of bull in my opinion. They really should not be pushing the emphasis onto you to say what you need - they should be ASESSING what you need. There’s a clue in the title.
Sorry I have rambled a bit and been on my soapbox so forgive me for that. If you need any help filling in a form like that feel free to DM me and I will try to help - or contact CarersUK help line as they will give impartial advice.
Above all - dont give up and dont be fobbed off or forced to agree to do more than you are TOTALLY comfortable with. Walk through the home and list things like handrails, and as much safety equipment as you think might help. A good OT or physio should make suggestions and know what they can and cannot provide. Consider bathroom grab handles, and everything else you think may possibly be of the smallest help. It took a while til I found some of the adjustments that they can help with - we didnt have a second stair rail installed because G’s mobility improved sufficient, but there are times when it could have been useful.
@Victoria_1806 has listed few more items but unless you know to ask they dnt always volunteer them.
Best of luck and to you. Ask if I can expand on anything else (I am sure you think I cant write any more…)