I don’t think the Care Act has made any difference, my caree/carees are eligible for support and do get support but minimum support.
Many have been disabled since birth and these disabilitys get worse and worse- more care, more help, support needed, but this just isn’t taken into account.
Off the record I was told that many of the services have just been cut and are very difficult to access, you have to have the right criteria, what is the right criteria? don’t know.
So yes you need the service but are not entitled to the service.
The council has contracted out the care to private care companys paying the minimum wage and carers with little or no experience training etc.
You have new carers who know nothing about complex issues cerebral palsy, never heard of it.
It takes time to build up a trusting relationship, then the carer leaves and you have to explain it all again.
The council should be thinking about wellbeing and providing services to prevent and delay needs.
Wellbeing means getting looked after properly, high quality care, good nutrition, being able to go out and about in the community, having extra support when things go wrong, at crisis time, or preventing crisis.
There should be help for unpaid carers, thinking about their health and welfare, access to help and support, regular breaks, respite, advocacy, a life on ones own.
There just isn’t any of that, the care and support is cut and someone has to take up the slack-unpaid carers, but what if there is no unpaid carer.
Carees are literally stuck at home, day after day, unable to live any life, living on simple meals as the carers don’t have time to cook a proper meal, lonely, isolated.
Even the voluntary sector which provides vital support for the disabled/elderly, has been cut, specalist services been cut, specalist disabled transport has been cut, the bus service has been cut.
10 years ago, my carees were receiving good quality services, able to go out and out about, were happy and as healthy as expected.
Now they are heavily dependent on unpaid carers, friends and neighbours for support.
Complaints , my caree put in a complaint, sent recorded, never received any responce, you are expecting someone elderly disabled to fight social services when they can barely make a cup of tea.
And where is the help for complaints, the days of having a support worker to help with issues are long gone again been cut.