Feelings of guilt & future planning whilst caring for partner with CFS/ME in their 30s

All about caring Young adult carers
1

Hi,

I am trying to find a support network for partners of ME/CFS patients in the UK and in their 20s/30s but nothing seems to exist. I am struggling to deal with feelings around future planning (ie having children) & also that our current and potentially future life does not look how I expected it to and I currently have to partake in a lot of activities where I would like company, alone (ie walks/holidays). My partner has been ill for a year now and whilst we believe he will recover, he remains fully housebound and I take on a carers role.

If anyone can relate to the above I would love to chat.

2

My second son was brain damaged at birth 47 years ago, nothing was ever the same again. Although very different in some ways, similar in others. I had 16 years without one child free day, which ruined my health forever. Have you asked for counselling to talk your feelings through? When dealing with a housebound disabled mum dying, slowly, it helped me hugely. If you love your husband enough to care for him so much, then he should love you enough to let you have a 2 week holiday every year. There are an increasing number of solo holiday companies.