Carer & Caree : A Partnership ? After 15 Years , The Message Is Finally Getting Through?

As background from my part , an old thread from the now defunct " Carers UK : Your Organisation " section.

https://www.carersuk.org/forum/admin-and-moderator-area/removed-posts/carers-uk-your-organisation/joined-up-thinking-planning-27169?hilit=partnership\

Long thread on the old CarerWatch forum wherein I argued the case … without much success , 11 years ago.

Also , during the infamous John Battle thread on Compass … met with derision by the Pink Left but caught the attention of
three academics amongst their members.

What follows is music to my ears … almost quite literally … interlocks with numerous other threads as you follow the exchange.

( Thanks yet again to The Original Trawler … May That Salmon Finally Arrive … Pet ! )

CARER AND THEIR CAREE … A PARTNERSHIP … DEMANDING JOINED UP THINKING AND A JOINT SOLUTION !!!




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House of Lords Debate : 17 June 2019 :

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Baroness Pitkeathley Deputy Chairman of Committees, Deputy Speaker (Lords) 2:44 pm, 17th June 2019
To ask Her Majesty’s Government what proposals they have to guarantee support for family carers following the cuts made to local authority and voluntary sector support services.
Baroness Blackwood of North Oxford The Parliamentary Under-Secretary for Health and Social Care

My Lords, the Government have given councils access to £3.9 billion in dedicated funding for adult social care in 2019-20. Last June, we published the carers’ action plan, a cross-government programme of targeted work to support carers, including a £5 million carers’ innovation fund to encourage new and creative ways of doing so. We are also working with local government to ensure that carers can access the support that they deserve and promote best practice in carer breaks provision.

Baroness Pitkeathley Deputy Chairman of Committees, Deputy Speaker (Lords)

I thank the noble Baroness for that Answer, which I listened to with great interest. I am the first to acknowledge that much progress has been made for carers in recent years, especially winning rights for them under the Carers Act. But I wonder how the noble Baroness would respond to the carer I spoke to on Friday. She is 79, recovering from cancer that has left her with severe back pain and caring for her 91 year-old partner, who has vascular dementia. Fourteen times she has asked her local authority for the assessment, to which she knows she is entitled. Fourteen times she has either been ignored or refused. Her local carers’ group, which was a support to her, has closed down because its funding has been cut. “It is no good telling me I have a right to services”, she says. “There are no services. There is only me and I am about to go under”. How does the noble Baroness respond to her?

Baroness Blackwood of North Oxford The Parliamentary Under-Secretary for Health and Social Care

The noble Baroness has raised an important point, which is that we need to provide carers with the support they need, because they do an amazing job. Unpaid care is a vital part of a sustainable health and social care system. This is why the long-term plan has put in place an ambition to ensure that we provide sustainable support across the public health system, and will ensure that we have a quality mark for primary care to highlight best practice. I am very sorry to hear about the experience of the carer in the case that the noble Baroness highlighted and would be pleased to follow this up with her directly, after today’s Question Time.

Baroness Browning Conservative

After decades of being a carer myself, I can say to my noble friend that it would help carers enormously for there to be an integrated approach to the carer and the person they are caring for. I cannot remember how many times I filled in a form asking what my needs are, and wrote across it, in large letters, “If the needs of the person I care for were met, my needs as a carer would be greatly reduced”. Until there is that joined-up approach in practice, carers will continue to suffer.
Baroness Blackwood of North Oxford The Parliamentary Under-Secretary for Health and Social Care

As so often, my noble friend speaks with common sense and insight. This is something that our carers innovation fund is supposed to root out, with its creative and innovative ways to drive reform and improvement through the system. That is why we brought it in, but it is also a commitment of the long-term plan. Best-practice quality marks in primary care are supposed to drive better identification and support of carers in the system. We will ensure that we see that.
Baroness Brinton Party Chair, Liberal Democrats
My Lords, 160,000 young carers have been assessed and can get support, but it is thought that there are up to 800,000 young carers. Councils have admitted to the Young Carers Trust that they cannot assess these young people at all. Some of them are doing over 50 hours of caring a week. They know that it is impacting their own physical and mental health. A third of young carers drop out of university and college. What are the Government doing to ensure that the basic funding to provide assessment for these vulnerable young people is in place, and to join up the work between social care and education?

Baroness Blackwood of North Oxford The Parliamentary Under-Secretary for Health and Social Care

This is crucial. We must ensure that young carers, who are often unseen in the system, have the support that they need and are not overburdened by caring responsibilities. That is why we have been working with the Carers Trust and the Children’s Society. The Children’s Society has led a project to identify and disseminate best practice to support and enable young adult carers, between the ages of 16 and 24, to make a positive transition. Guidance and resources have been published this week, and we will ensure that this is implemented effectively. As the noble Baroness rightly says, this is a crucial part of implementing the carers action plan.
Baroness Royall of Blaisdon Labour

My Lords, one group that is desperately in need of support and respite care is the carers of children who are dying. A recent report stated that hospices for children are no longer able to help parents in those categories. They are having to shut down some of their facilities because of lack of investment. What are the Government going to do to help the families who keep these kids going, without whom the whole system will fall apart? The Government must help children’s hospices.
Baroness Blackwood of North Oxford The Parliamentary Under-Secretary for Health and Social Care

The noble Baroness is absolutely right. This is an important part of the system. I noted those reports with serious concern. Significant work has been put into providing carers’ breaks and respite care within the Carers Action Plan. Local authorities are required to provide that support. We shall investigate what has happened in those instances

The Countess of Mar Deputy Chairman of Committees, Deputy Speaker (Lords)

My Lords, the noble Baroness, Lady Pitkeathley, made it clear that what is needed is action now, not a long-term plan. What plans do the Government have to help people who are having problems now?

Baroness Blackwood of North Oxford The Parliamentary Under-Secretary for Health and Social Care

I am sorry if I have given the impression to the noble Countess that action has not been happening now. I can outline that the Government have been taking ongoing action to support carers. The Care Act 2014 introduced important new rights for carers, putting them on the same footing as those whom they care for. Through the Better Care Fund, the NHS has contributed £130 million for carers’ breaks. The Carers Action Plan, published in 2018, set out a broad, cross-government programme of work to support carers, which included 64 points which have been delivered since that time. A review will be published in July. A £5 million Carers Innovation Fund to support innovation was announced just this week and will include innovative ways to improve care for patients. This is all ongoing work which is helping carers now, but we recognise that it is not enough, because carers deserve the very best. That is why we will continue to strive to improve support for carers within the system going forward.
Baroness Thornton Shadow Spokesperson (Health)
My Lords, according to Carers UK, 8.8 million people are carers in this country—that is up 2 million since 2011. Are the Government reviewing the funding provided in last year’s Carers Action Plan to take account of that? What discussion is the Minister’s department having with the department that funds local government? That is the nub of the problem: austerity has starved local government so that it cannot provide the right kind of care, and carers all over the country are suffering as a result.

Baroness Blackwood of North Oxford The Parliamentary Under-Secretary for Health and Social Care

I thank the noble Baroness for her question. Of course, £10 billion has been provided for adult social care between 2017-18 and 2020, with an extra £240 million for adult social care to reflect winter pressures and an extra £410 million to improve social care for older people, people with disabilities and children. However, the noble Baroness is absolutely right that a sustainable long-term plan for social care is part of the discussions taking place on the spending review and as part of the Green Paper planning. The consideration of dedicated employment rights and reviewing financial support for carers is part of those discussions.



WE OFTEN THINK OF JUST THE HOUSE OF COMMONS WHEN IT COMES TO THE GOVERNMENT.

OCCASIONALLY , THE SECOND CHAMBER … THE HOUSE OF LORDS … SHOWS UP THE HOUSE OF COMMONS FOR WHAT IT REALLY IS !!!

ODD … HOW THE LORDS AND LADIES ARE MORE IN TUNE WITH US THAN OUR MPs ???



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Add the Baroness to our proposed Guest Speaker list ?

I’m sure we can supply her with a virtual china tea cup and saucer … and silver service … real tea from a packet rather an three day old teabag … and some virtual ginger nuts … garibaldis at a stretch ?

No quiet sure about the butler ?

Virtual elderly or … beefcake ?

Perhaps the Baroness could tip us the wink beforehand ?

Noteworthy that they were all female…am sure the men would have done the same… oh wait, they had years to do so and didn’t.

That aside, what was the mention in there of July?

Yep :

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Baroness Blackwood of North Oxford The Parliamentary Under-Secretary for Health and Social Care

I am sorry if I have given the impression to the noble Countess that action has not been happening now. I can outline that the Government have been taking ongoing action to support carers. The Care Act 2014 introduced important new rights for carers, putting them on the same footing as those whom they care for. Through the Better Care Fund, the NHS has contributed £130 million for carers’ breaks. The Carers Action Plan, published in 2018, set out a broad, cross-government programme of work to support carers, which included 64 points which have been delivered since that time. > A review will be published in July. > A £5 million Carers Innovation Fund to support innovation was announced just this week and will include innovative ways to improve care for patients. This is all ongoing work which is helping carers now, but we recognise that it is not enough, because carers deserve the very best. That is why we will continue to strive to improve support for carers within the system going forward.



( £ 130 MILLION for carers breaks … 8.8 million carers mentioned … £ 14.77 each … bus trip into town … round of tea
and biscuits everyone … perhaps twice over a year ? )



When it comes to talking sense … especially in actual caring … I continue to take a back seat to the ladies out there … I did
so during my time with CarerWatch … worth recording that THE CARERS LETTER was down to them , with a little topping and
tailoring done by those " Inferior " carers known as males … we had our uses elsewhere … the bigger picture.

Mutual assistance … no gender distinction / no rules / no hierachy … we each did what we were good at … for the common
good and goal … to do what we could to ease the plight of family / kinship carers.

Halycon times … never to return in my lifetime.

" Without deviation from the norm , progress is not possible " … I wonder who said that ?

Strange … from elsewhere on this site :

Your relationships | Carers UK
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You and your partner.

Most couples have a lot on their plate. Whether it’s paying the bills or juggling work and family, it can be hard to find time for each other. But when disability or illness happens to one of you then things can get a whole lot harder.

If I freeze it there … you and your partner ?

You , the carer and … your partner , your caree.

Why does it take a stretch of most readers’s imagination to make that very connection ?

A question I repeatedly ask myself over the past … 20 odd years … 15 on the various forums.

That word again from biology … PROTOCOOPERATION … one cannot live without the other … how many carers / carees
are in that precise relationship ?
( From my mother’s experience … 83 year old blind mother , 57 year old wheelchair bound son … living together as a " Unit "
for years … each totally dependent on the other … local SS were aware but … as each were capable of living together ,
relying occasionly on the goodwill of neighbours , no additional outside help was needed … 2001 / 2002 … have things
really changed since then ??? )

A partnership requiring joint solutions … not just the caree … nor just the carer … individuals yes but in a situation where
the partnership reigns supreme … individual needs wrapped around the partnership needs.

Just like nature … remove the carer and the caree will wither away … that chain often mentioned over the years.

Perhaps the real question to ask is … " How light can we make that chain bearing in mind there is no key available ? "

Extend this relationship to the Benefits system … which I / we did a decade ago inside CarerWatch.

I leave that thought with readers … realms of postings available as background … as valid today as they were then.