State of Caring Survey 2022

Hello everyone

We would love to hear your experiences of being a carer in 2022.

We’re launching our State of Caring 2022 survey to help us paint a comprehensive picture of what life is like for carers at the moment, the challenges you might face, and the impact caring has on your finances, health, and wellbeing.

Take the survey:

What you tell us makes a real difference, not only to our campaigning activity, but also to the support and services that we provide as an organisation.

Last year over 8,000 carers shared their experiences with us. We used carers’ collective voice and evidence to secure new rights for carers in the Health and Social Care Act 2022 in England, to campaign for cost of living increases in England, Wales, Scotland and Northern Ireland, to provide evidence of the need for a right to Carer’s Leave and other support within the workplace, and to campaign for breaks and funding for social care - and there’s still much more to do.

As the survey is very comprehensive, designed to help us to really understand carers’ experiences, it is quite long. We hope it will take you about 20-30 minutes. We know carers are busy and very much appreciate everyone who takes the time to complete the survey.

With thanks and good wishes

Carers UK

complete the survey ?

As shown in the post above:

I have completed the survey.
However, I just wanted to say that as good as some of the gains for carers have been, the institutionalised attitudes towards carers remain as strong as ever.
I have been shocked ( perhaps naïvely) by the attitude of NHS staff towards me as someone who does a lot of caring for my mother in law.
On more than three occasions just recently, it has been assumed that I will visit and carry out treatment five times a day for seven days; that I can take my mother in law out for walks every day ( because of course, I have nothing better to do) and that I am able to drop everything and go around to her home if she needs it, including overnight.
All of these assumptions happened during her various appointments where she was sent away with her treatment/plan with no consultation with either myself or her son. Not one person asked about what we were already doing and if we could manage any more.
Similarly, when she was discharged from hospital, not one person discussed what she had been diagnosed with or how we could be involved ( or if).
It’s outrageous, disrespectful and discriminatory.

Hi Jane, welcome to the forum.
My late mum was very disabled for years, and I met that attitude regularly.
You cannot be forced to care. Tell us a bit more about mum, it sounds like she should be having a large care package. How long ago was she in hospital?

Has this survey been closed? I’m a new member today
and tried to take the survey only to get a message saying so.
If this is correct then no worries I can do next year.

Hi Helen - welcome to the forum

I think it closed last weekend.