@Paule I’m so sorry you are going through all this.before I say anything do not fill in the financial form in .do not tell them anything about yours or your wife’s finances either. That is your weapon against them.
Yours are nothing to do with them anyway.
Why did the ICB take her funding away.what reason did they give.they cannot remove her funding because she is still alive that is beyond disgraceful.
JContinued health care. Is not just for end of life. It is for anyone who had primary health needs due to an illness, disability ,or accident. This is not social care this is Continued health care.whenever you talk about your wife you say primary health needs due to her physical illness. Always use the words health and physical .they are not social.
I’ll try and help you I only know what I’ve learned and read.
First when your wife came home and had the care from hospital and you say the funding was removed for the care.do you know what that care funding was called? Was it called fast track or what. I don’t know why it would be that if she was only given 12 weeks to live.and because she is still here they removed it.i would not think they would be allowed to do that she is still them same.
So wasnt the care she had when she came out of hospital continued health care did they not do a continued health care assessment.in the hospital.what was the care called she was sent home with.
So your wife had 3 months care coming out of hospital.who paid for that what was it called ?.
They removed the funding what was the funding called they removed what she had when she came out of hospital. How did you know it had been taken away. Did they write?, did they say why?.
Who has told you that continued health care is not applicable.so we know.
There are lots of people just like me and you so don’t feel alone. Social workers don’t know their own laws. And they lie. Everything they say to you, you research it or come on here. Don’t take it as the truth. All they are bothered about is money. Remember that. If a social worker rings or writes it is not for your benefit it is for there’s. They only bother when they want something.
WHO stopped the physiotherapy for your wife.
I am not an expert I only know what I have read and learned and will tell you what I know and ask you the names like above who is doing it .
To me on what I have read I would have said it was unlawful to take away your wife’s funding just because she has lived. She is still the same.
The council I’ve reported the hospital I have reported. I will answer your questions and then I will tell you anything else I know . I only know from reading and fighting them myself ,I’m not an expert. But the website I gave you to read it’s all on there.
How come all them orgnisations don’t know what to do?.i have found with the citizens advice bureau it depends who you speak to some are better than others.
I’ve recently read.they are not allowed to stop your care because you will not fill in a financial assessement so tell them that.
They tried to grind me down they lied to me I was in tears everyday. I found that website spent two weeks reading it and fought back.it is not easy. Don’t let them blackmail you.
I know what you mean I never thought it would be like this the nhs and social services are a disgrace and I can say that because I’ve told them they are.
Is you wife still classed as having terminal cancer. Or have they given her another diagnosis.
Has your wife had a continued health care assessment. It is against the law to ask for money until you have had a continued healthcare assessment and checklist.
That’s why I asked you the question above about who stopped the care. Who said that continued health care is not applicable.what care was she on when she came out of hospital. how much care did they give her when she came out of hospital?
She should have been given one in hospital like that.i should have had one .they didn’t do one. Social services put me through hell. Anyone who comes out of hospital if the hospital know that they have primary health needs they should do one CHC assessment before discharge.
About the money do not fill the form in. Do not tell them anything to do with yours and your wife’s finances. While we all try and sort it all out. They are not allowed to know anything about your finances they are nothing to do with them. Reqarding care people are treated as individuals they are being nosey. Everything I’m telling you is on that website.
Now there is various things I can think of to try and help but it’s if these people know what they are doing.if they have done them before.but the should do.
On that website I given you the name of I think if you go on the website I think there is a free advice line.i think they give a free call so you could ring and talk to them and tell them everything that has gone on ,these people know all about continued care. I suggest before you ring. You write a list of questions and things you want to know like you have in the email to us above and have a pen.then as they tell you things if you need to jot things down you can.
You could also ring the citizens advice bureau you might get someone different who knows what there doing I’m not saying they don’t just some may no more than others on different things.you could also ask them to write to the council to tell them to stop all this while it is being investigated that you are appealing.
Your council also have a Quality care team they will be on your local council website under feedback and complaints. Write all this to them ,tell them everything that has happened. Tell them it is all being appealed. They should also investigate this.
Also did your wife have a consultant at the hospital. I read the other day that when something like this happens .to ring her consultant at the hospital who she is under. Give him a ring tell him what is happening .i am sure he will sort it and put a stop to it.
Lastly there is also her GP. You could also ring him tell him all what is happening . And ask him to get the funding back.
If she hasn’t got long get him to fast track it like bowlingbun said . Or reinstate it.it don’t seem right to me that they can do what they have. She is still the same.
If you look on the caretobedifferent.co.uk website at National framework of continued healthcare and nursing care .if you look at that section and go down the sub sections there should be sections on the law about the questions you want to know.
But I would ring the citizens advice bureau to write a letter to the council with what I have said above that you are appealing and it’is all being looked into.Then it will stop them harassing you.
Don’t give up.
Hope so of this helps.
