My son was brain damaged at birth, incredibly hyperactive when young. He could only sit in a school assembly if he was sat on the lap of a teacher with both arms across him! He’s now 47, and has fortunately slowed down. The biggest regret of my life was not being able to have a career because living in a rural area, the New Forest, support was very limited. I had 16 years without a child free day which ruined my health forever. My friends who could work now have occupational pensions, I just have my state pension, living off my late husband’s life insurance and an inheritance from mum. Councils trying to save money can be very “economical with the truth”! Make sure you know your rights before asking for support. It’s really important to try to look ahead at what might happen to your son if you were suddenly ill or needed to be admitted to hospital. Having a second pair of hands in emergency and school holidays would make life so much easier for you. Family members cannot be relied upon.
Hi @alin05 welcome to the form. You say that you have a colleague that has similar caring responsibilities. Is there any way you could help each other out, by babysitting for each other giving each of you a break or help, however infrequently?
A long time ago I knew of a family in difficult circumstances where a child was taken to school by someone else, collected from school and taken home later. It might be easier for your son to have a regular system like this, rather than chopping and changing. My own son with LD, now 47, always likes to know what is going to happen to him.