Hi Allie … welcome to the forum ?
Ehlers-Danlos Syndrome ?
Over to the NHS for an explanation :
Ehlers-Danlos syndromes - NHS
Ehlers-Danlos syndromes (EDS) are a group of rare inherited conditions that affect connective tissue.
Connective tissues provide support in skin, tendons, ligaments, blood vessels, internal organs and bones.
There are several types of EDS that may share some symptoms.
an increased range of joint movement (joint hypermobility)
fragile skin that breaks or bruises easily
The different types of EDS are caused by faults in certain genes that make connective tissue weaker.
Depending on the type of EDS, the faulty gene may have been inherited from 1 parent or both parents.
Sometimes the faulty gene is not inherited, but occurs in the person for the first time.
EDS can affect people in different ways. For some, the condition is relatively mild, while for others their symptoms can be disabling.
Some of the rare, severe types can be life threatening. ???
Main types of EDS
There are 13 types of EDS, most of which are very rare.
( See the web site for a lot more ! )
A supporting organisation :
**EDS and BENEFITS … HIGHLY RECOMMENDED READING :
Guides to help with benefits claims – The Ehlers-Danlos Support UK**
Your partners as a carer ?
IF you receive either DLA or PIP ( And the correct flavour at that ) , no problem for your partner to claim CA.
Qualifications needed :
Carer's Allowance: Eligibility - GOV.UK
The person you care for
The person you care for must already get one of these benefits:
Personal Independence Payment - daily living component.
Disability Living Allowance - the middle or highest care rate.
Constant Attendance Allowance at or above the normal maximum rate with an Industrial Injuries Disablement Benefit.
Constant Attendance Allowance at the basic (full day) rate with a War Disablement Pension.
Armed Forces Independence Payment.
All of the following must apply:
you’re 16 or over.
you spend at least 35 hours a week caring for someone.
you’ve been in England, Scotland or Wales for at least 2 of the last 3 years (this does not apply if you’re a refugee or have humanitarian protection status).
you normally live in England, Scotland or Wales, or you live abroad as a member of the armed forces (you might still be eligible if you’re moving to or already living in another EEA country or Switzerland).
you’re not in full-time education.
you’re not studying for 21 hours a week or more.
you’re not subject to immigration control.
your income is less than £123 a week after tax, national insurance and expenses.
Can be done online through the above link.
Even if your partner doesn’t qualify , worth mentioning to your gp !
Enough from me … others will be along to extend their welcomes and , possibly , dig down into the actual caring side.