Having him home isn’t the answer, once there they will “forget” about him. Have you investigated renting a flat privately for him? The LA have a responsibility to meet his needs wherever he wants to live. In the meantime, talk to CQC about the current standard of care.
Hi @user1
This certainly does not sound a suitable place for your son to live.
He sounds like he needs a calm, quiet and nurturing home environment to recover from being institutionalised for so long and to learn life skills.
Was he sectioned for the 27 years he was there in hospital? I’m asking because with certain types of sectioning there is funding following a person’s discharge from hospital.
Is the so called supported living run by a the local authority or a care company or is it an HMO with a landlord?
On what grounds is he not allowed to have visitors ie you within his current accommodation?
I can understand the temptation to bring him home with you, my only concern is that he would then not be considered a priority for rehousing. However, this is not an area I have a lot of knowledge or experience in.
If you go decide to have him back home, he can have a needs assessment and you a carers assessment. From this he could have agency paid carers or direct payments to pay someone of your choice to support him.
Hi @user1 Social Services are not being reasonable in suggesting he come home. He’s been out of your care for 28 years - there has to be a reason for that, as he would have been about 17/18 at the time. I can guarantee that the problem has been that he isn’t coping in the “new” environment because he was wrongly placed and not given any preparation prior to the change.
Social workers HAVE to have training in autism nowadays. Ask for a social worker who is not only trained but has some experience. Whatever you do, DON’T accept him home without looking at other options - certainly don’t accept social services’ word for it that it’s the only choice left. Access to OTs to help with learning daily tasks can take months in my area - I don’t have a clue in your area, but I doubt it’s much different.
Also, be aware: you do not have a duty of care to your son, but social services do. If you refuse, they have to find another option. No choice. They’re trying to abdicate their responsibility, IMHO.
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Morning
Yes my son had been sectioned for 27 in total
Hertfordshire partnership foundation trust placed him in support living run by ENRICHED adult services they also have a house in Slough my sons is in WGC
They told me they were going to decorate through your with new furniture and never happened instead they told me the decorators are letting them down . Last night the director of enriched adult services took on another house in WGC so what he is doing is earning thousands of pounds from First house and not refurbishing and then the next house the same etc etc .
I have reported this to social services
HMO ? Not that I’m aware of
It is privately run and HPFT are funding around £1000 per week I heard for each resident
My son needs to live in a quiet environment
I have to bring him home because HFPT are telling me there is no other place for my sons needs
I don’t believe this
No, you don’t have to. THEY have the duty of care , it’s their problem. They’re not taking your needs into account.
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Hi
You are so so right
27 years in psychiatric hospitals since he was 17 under section three with home leave but so many times he was not allowed home .
No doctor and no psychiatrist diagnosed my son correctly they diagnosed him with treatment resistant paranoid schizophrenia and put him on Clozeril for most of his hospital life
So many staff would say my son does not look like he has schizophrenia.
Only two years ago he was officially diagnosed with autism .
This is serious neglect and I have been trying to find a solicitor in mental health neglect it’s impossible .
I am being told by a few Debbie can you cope with looking after Adam 24/27 you won’t have any freedom but will have burnouts how will you cope
I have also been told from another carer social services do not help whatsoever once your son is back home .
The social worker I saw a new one , which changes every year in my opinion that HPTF ( Hertfordshire trust ) is planning that my son comes home permanently as they can’t keep moving him.
Hertfordshire partnership foundation trust are the funding team they choose where to put my son .
That’s what I was told few days ago
It’s HPTF that keep moving him to the wrong places
He has an order in place that if he ever stops taking medication he will be returned to hospital .
I am going around the houses from one social worker to another there are so many that are involved in my sons welfare and placements
Hi it’s run my enriched adult support living which is private and funded by Hertfordshire trust ( HPFT)
HPTF told me I’m not allowed in the building for safety reasons as there are 5 male residents .
From time to time I would like to check my son’s clothing to see if any need replacing or gone missing which has been the case for the last 27 years .
They only ever aloud me once to enter the building and escorted me to my son’s room and watched me . M
They told me after that I’m not aloud anymore .
Having agency staff coming into my home to care for my son won’t work as my son won’t talk to them he does not trust people unless it’s the same carer coming all the time perhaps he will eventually trust that person .
He is extremely clever he dresses up smart in high end clothing not cheap always showers and shaves
So good looking as he is half Iranian he is tall but put on tons of weight now
As mentioned before he is extremely intelligent but no one taught him in 27 years to learn how to use a computer a mobile phone , no living skills nothing whatsoever .
I’m fuming
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With regard to not letting you in the house as there are male residents, this is clearly breaching your son’s right to a normal family life under the Human Rights Act! I would suggest that you made a formal complaint to the provider, saying that they must allow you and your son to meet in HIS HOME.
We thought we were fit as fleas when we were 50. At 52 I had major cancer surgery, a year later my husband died of a heart attack, three months later I was disabled in a car accident.
Your son needs a permanent home of his own with appropriate care, so you can both make it as cosy as possible, and he can be as independent as possible, before you die.
Hello
Thank you for your advise
My son would never cope living on his own 28 years in many psychiatric hospitals
No occupational therapy no counselling, mis diagnosed , over drugged him on Clozeril but no longer on that as he became very very ill .
He is now taking alternative meds .
Every single week I am raising complaints with enriched adult support services limited
My son is being allowed to buy 4 bottles of coke 2 litre sizes every single week . The staff are letting him buy what he likes pre packed meals , pot noodles etc
I told them a hundred times my son must buy healthy options when food shopping .
My son use to eat so healthy without my encouragement .
Since he has been in support living in just 12 months he has gained 22 kilos .
I can see he is suffering with his stomach its huge compared to the rest of his body.
He also suffers with acid reflux and prescribed omperzole for quite some years now .
I told the staff stop giving my son drinks of coke early in the morning not with a stomach that suffers with acid reflux it will make it worse and will end up with hertis hernia just like me .
There answer is we can’t stop your son drinking Coke we can’t stop him buying what he likes to eat .
Are they kidding me 22 kilos extra in just 12 months .
No activities apart from taking him out to buy his daily Costa coffee that it nothing else then back home to watch tv the rest of the day .
He is also smoking a total of 5 vapes per day plus one refillable vape .
I did check if they were registered with CQC once they moved my son from Hospital 12 months ago which they were at the time and the feedback was inadequate and needing improvements in healthy eating for all residents and the care given was also inadequate on another properly they own .
The one my son has moved to is not registered with CQC but owned by the very same directors in Slough .
How comes they have de registered from CQC I wonder
I did not want my son to go there but HPTF The funding team told me if you don’t take this they will give the room to someone else
I was told they need an answer now I replied I have only just seen the place I need time to think .
They rushed me to make a very quick decision and that’s so wrong .
Three weeks ago I needed to call my son around 8 pm I just wanted to know which after shave he wanted was not urgent .
The support worker was hammering on my son’s bedroom door kept saying “ Adam mum is on the phone . I told him very clearly leave him alone let him sleep .
Would not listen to me and continued banging and banging on his bedroom door calling out his name .
In the end I put the phone down on the support worker .
My son suffers with autism as well and can’t take loud noises .
I have reported this to social services , the funding team HPTF and no one is responding to me .
I emailed them three weeks ago and still nothing
My son is becoming very irritable and bored and now often shouts at me in front of people in the shops for the last three weeks .
The staff keep telling me he is ok no problems with him .
Managers of support living are saying he has his off days like the others but as a mother I can see he is becoming more unhappy .
He does not talk to people this is another problem and only talks when he wants something .
With me he does not stop talking 
All they think about is the money they get paid a lot that I know , but my son should not be living with loud residents , residents continually spitting out on the drive way some swearing and one ex prisoner .
My poor son does not talk to them whatsoever I know he is not happy there but no one is listening to me
You clearly don’t like the current situation. Would your son be able to cope with living in a 2 bed flat with a team of carers, or is there someone else he could live with sharing staff between them? The agency are clearly useless.
I would rather my son come home to live
No Point putting him into another support living they are all the same .
HPFT need to act now
My son needs occupational therapy to start with and his vaping is out of control .
Is getting worse
Once these issues have been dealt with I can start the transitioning of my son living at home permanently.
I and my son will of course need support for this
I know he will be happy living at home but HPTF are not allowing this at present , they tell me we have been to see your son and he seems okay
He is not okay he is only happy when staff give him his vapes and when they take him out for coffee
I have always focussed on how my son would manage when I die, especially sine in a 2 year period I had major cancer surgery, my husband died of a heart attack and then I was nearly killed in a car accident! My son lives 15 miles away, and I’ve supported him to make a lovely home. He comes home regularly and we speak every night.