Having him home isn’t the answer, once there they will “forget” about him. Have you investigated renting a flat privately for him? The LA have a responsibility to meet his needs wherever he wants to live. In the meantime, talk to CQC about the current standard of care.
Hi @user1
This certainly does not sound a suitable place for your son to live.
He sounds like he needs a calm, quiet and nurturing home environment to recover from being institutionalised for so long and to learn life skills.
Was he sectioned for the 27 years he was there in hospital? I’m asking because with certain types of sectioning there is funding following a person’s discharge from hospital.
Is the so called supported living run by a the local authority or a care company or is it an HMO with a landlord?
On what grounds is he not allowed to have visitors ie you within his current accommodation?
I can understand the temptation to bring him home with you, my only concern is that he would then not be considered a priority for rehousing. However, this is not an area I have a lot of knowledge or experience in.
If you go decide to have him back home, he can have a needs assessment and you a carers assessment. From this he could have agency paid carers or direct payments to pay someone of your choice to support him.
Hi @user1 Social Services are not being reasonable in suggesting he come home. He’s been out of your care for 28 years - there has to be a reason for that, as he would have been about 17/18 at the time. I can guarantee that the problem has been that he isn’t coping in the “new” environment because he was wrongly placed and not given any preparation prior to the change.
Social workers HAVE to have training in autism nowadays. Ask for a social worker who is not only trained but has some experience. Whatever you do, DON’T accept him home without looking at other options - certainly don’t accept social services’ word for it that it’s the only choice left. Access to OTs to help with learning daily tasks can take months in my area - I don’t have a clue in your area, but I doubt it’s much different.
Also, be aware: you do not have a duty of care to your son, but social services do. If you refuse, they have to find another option. No choice. They’re trying to abdicate their responsibility, IMHO.
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Morning
Yes my son had been sectioned for 27 in total
Hertfordshire partnership foundation trust placed him in support living run by ENRICHED adult services they also have a house in Slough my sons is in WGC
They told me they were going to decorate through your with new furniture and never happened instead they told me the decorators are letting them down . Last night the director of enriched adult services took on another house in WGC so what he is doing is earning thousands of pounds from First house and not refurbishing and then the next house the same etc etc .
I have reported this to social services
HMO ? Not that I’m aware of
It is privately run and HPFT are funding around £1000 per week I heard for each resident
My son needs to live in a quiet environment
I have to bring him home because HFPT are telling me there is no other place for my sons needs
I don’t believe this
No, you don’t have to. THEY have the duty of care , it’s their problem. They’re not taking your needs into account.
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Hi
You are so so right
27 years in psychiatric hospitals since he was 17 under section three with home leave but so many times he was not allowed home .
No doctor and no psychiatrist diagnosed my son correctly they diagnosed him with treatment resistant paranoid schizophrenia and put him on Clozeril for most of his hospital life
So many staff would say my son does not look like he has schizophrenia.
Only two years ago he was officially diagnosed with autism .
This is serious neglect and I have been trying to find a solicitor in mental health neglect it’s impossible .
I am being told by a few Debbie can you cope with looking after Adam 24/27 you won’t have any freedom but will have burnouts how will you cope
I have also been told from another carer social services do not help whatsoever once your son is back home .
The social worker I saw a new one , which changes every year in my opinion that HPTF ( Hertfordshire trust ) is planning that my son comes home permanently as they can’t keep moving him.
Hertfordshire partnership foundation trust are the funding team they choose where to put my son .
That’s what I was told few days ago
It’s HPTF that keep moving him to the wrong places
He has an order in place that if he ever stops taking medication he will be returned to hospital .
I am going around the houses from one social worker to another there are so many that are involved in my sons welfare and placements
Hi it’s run my enriched adult support living which is private and funded by Hertfordshire trust ( HPFT)
HPTF told me I’m not allowed in the building for safety reasons as there are 5 male residents .
From time to time I would like to check my son’s clothing to see if any need replacing or gone missing which has been the case for the last 27 years .
They only ever aloud me once to enter the building and escorted me to my son’s room and watched me . M
They told me after that I’m not aloud anymore .
Having agency staff coming into my home to care for my son won’t work as my son won’t talk to them he does not trust people unless it’s the same carer coming all the time perhaps he will eventually trust that person .
He is extremely clever he dresses up smart in high end clothing not cheap always showers and shaves
So good looking as he is half Iranian he is tall but put on tons of weight now
As mentioned before he is extremely intelligent but no one taught him in 27 years to learn how to use a computer a mobile phone , no living skills nothing whatsoever .
I’m fuming
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With regard to not letting you in the house as there are male residents, this is clearly breaching your son’s right to a normal family life under the Human Rights Act! I would suggest that you made a formal complaint to the provider, saying that they must allow you and your son to meet in HIS HOME.
We thought we were fit as fleas when we were 50. At 52 I had major cancer surgery, a year later my husband died of a heart attack, three months later I was disabled in a car accident.
Your son needs a permanent home of his own with appropriate care, so you can both make it as cosy as possible, and he can be as independent as possible, before you die.